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  • #16
    Re: Tap Water & IC

    I'm going to try drinking only bottles spring water!
    I have never had a flare of any kind while on vacation and eating and drinking anything I want.
    I come home and within a day or two my symptoms are back....
    This would make sense if it's in the water. Here's hoping!

    Comment


    • #17
      Re: tap water and IC

      Originally posted by jodi.b View Post
      Hi there,
      if I drink tap water I am flared up in 24 hrs. For me it is the chlorine in the water. I live in Melbourne Aust and only drink Nobles water which is totally pure. I have tried other brands of water but this is the only one that works for me. Alot of bottled water still has chlorine , minerals etc even though they claim to be relatively pure water.
      Not drinking tap water, and just drinking Nobles, was the first thing that aided my symptoms. I am sure you will notice a difference for the better after you do this for a couple of days.
      Jodi. B
      ps rain water was OK for me too!!
      Hi all
      This popped up after all these years . I wrote this in 2006. It is now 2015 . I totally believe it is the chlorine and chlorides in tap water that upset me. I am still on Nobles in Australia, Penta water in the US,
      EQUIL WATER in Indonesia and can't remember the name of the water I drank in Argentina but I could only find it in Walmart over there. Thank god for Google when travelling

      Comment


      • #18
        Re: Tap Water & IC

        Hey Jodi!
        I did a Google search on the topic and poof!
        So, are you symptom free since switching water?
        Just wondering how long you had symptoms and how bad your flares were/are....
        I'm new to the forums but have tried so many things. I'm exhausted. I just started Elmiron so hoping I can figure this out :/

        Comment


        • #19
          Re: Tap Water & IC

          Originally posted by Pcoleary View Post
          Hey Jodi!
          I did a Google search on the topic and poof!
          So, are you symptom free since switching water?
          Just wondering how long you had symptoms and how bad your flares were/are....
          I'm new to the forums but have tried so many things. I'm exhausted. I just started Elmiron so hoping I can figure this out :/
          Hi there
          No not symptom free but certainly helps ALOT and if I do drink tap water in soups, jellies, or anything really I do get agitated.
          I was pretty good for 4 years sticking fairly closely to the IC diet.
          Then I hit menopause and my problems came back really badly. That was due to the change in hormones etc.which affects the skin down there .
          One thing I am almost certain of is that having my IUD removed has helped me too . I don't need it anymore due to going through menopause . I had the copper based IUD .

          Comment


          • #20
            Re: Tap Water & IC

            Ironically, I got much worse 2 years ago when I started menopause too.
            I just started using estrogen cream at night after seeing it on a post in the group and I think it really helps. I'm not sure if that might help you as well but what's not worth a try, right?

            Comment


            • #21
              Re: Tap Water & IC

              Originally posted by Pcoleary View Post
              Ironically, I got much worse 2 years ago when I started menopause too.
              I just started using estrogen cream at night after seeing it on a post in the group and I think it really helps. I'm not sure if that might help you as well but what's not worth a try, right?
              Me too . have been on Vagifem for quite a few years now.
              I had major problems with the scar tissue damage from my 7 kidney stones . Menapause started all my nerve problems again. Funnily enough,I finally got the name of a specialist in Melbourne Australia ... From this site. God knows what sort of problems I would be dealing with now if I hadn't found her .

              Comment


              • #22
                Re: tap water and IC

                My water company Epcor provides the water quality information. I like the quality. Ph of 7.1 to 7.5. Glad to know about the taste aspect that will improve if I let it run out the chlorine. I am not sure that our RO filtered water is better. If the filters are dirty. it can be worse.

                Comment


                • #23
                  Re: tap water and IC

                  I started to think water was causing my worst flares when I realized that I never have any pain while on vacation. I have been doing research on water and made the mistake of buying a Brita water pitcher. As soon as I started drinking water filtered through that my pain was at its consistent worst for a month.
                  I now know that Brita lowers the PH in tap water. I bought the PH testing sticks on line and the Brita pitcher literally turns my water to acidic (5 PH) when it's normally a 6ph ( still not good!). So, I bought a few different types of water and tested them. The Deer Park water tests consistently at a 8 PH which is much better for me. I'm still recovering from the Brita flare but hopefully it's winding down. I won't even use tap water again unless I'm dying of thirst.
                  I hope this helps!

                  Comment


                  • #24
                    Re: Tap Water & IC

                    Originally posted by Pcoleary View Post
                    I started to think water was causing my worst flares when I realized that I never have any pain while on vacation. I have been doing research on water and made the mistake of buying a Brita water pitcher. As soon as I started drinking water filtered through that my pain was at its consistent worst for a month.
                    I now know that Brita lowers the PH in tap water. I bought the PH testing sticks on line and the Brita pitcher literally turns my water to acidic (5 PH) when it's normally a 6ph ( still not good!). So, I bought a few different types of water and tested them. The Deer Park water tests consistently at a 8 PH which is much better for me. I'm still recovering from the Brita flare but hopefully it's winding down. I won't even use tap water again unless I'm dying of thirst.
                    I hope this helps!
                    Very interesting! I have tried Deer Park, Evian, Essentia and Nestle Pure Life. So far Nestle Pure Life seems like the best fit for me.
                    Diagnosed via cysto/hydro 2/6/2015
                    Symptoms: frequency, urgency. uretha discomfort, mild bladder pain (a raw sore type feeling.)
                    CURRENT TREATMENTS:
                    IC Diet (2/15) , Elmiron 100-300mg (3/15-5/16) insurance issues switched to PPS-DR (5/16-present) 2 150mg capsules daily (pentosan polysulfate sodium same formulation in Elmiron) DH Aloe 3-6 capsules daily (3/15), Schiff Digestive Advantage probiotics 1 pill daily (3/15), Amitriptyline 25mg- (5/15-8/16)attempting to wean down due to suspected weight gain side effect. Hydroxydine 25-50mg as needed at bedtime (5/15) Quercetin 2 pills daily to help immune system and body inflammation. Cystoprotek 4 capsules daily (8/15). Prelief as needed.
                    USE DURING FLARES: Heating pad, ice packs for PFD, Vaginal Valium 10-20mg, Uribel, Pelvic floor stretches.
                    PAST TREATMENTS: PFD physical therapy (6/15-10/15) & Counseling for stress mgt (9/15-12/15) both very helpful. GNC brand progesterone cream (not sure if this made a difference). Too many different diets and herbs to list.
                    TRIGGERS: STRESS STRESS STRESS. BCP. Hormonal fluctuance (ovulation/period). Coffee, artificial preservatives and dyes.

                    Comment


                    • #25
                      Re: Tap Water & IC

                      I think everyone needs to experiment because we are all different. I do best with filtered water. :-)
                      Julie Beyer, MA, RDN
                      IC Dietitian, Patient Advocate, Speaker, & Author


                      Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

                      Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

                      You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

                      ........ ........


                      Other IC Diet Resources:

                      IC Diet Webinar
                      IC Diet Website
                      For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
                      Free IC Diet Booklet: What Can I Eat?
                      Confident Choices IC Diet Blog
                      IC Diet Newsletter


                      *Let's Connect!*

                      Comment


                      • #26
                        Re: Tap Water & IC

                        I was drinking filtered water. Check the pH, and it was a little acidic, so went to spring water to see if that would help.

                        Comment


                        • #27
                          Re: Tap Water & IC

                          This whole thread is so helpful and interesting. (It's now 2017!) I typically drink tap water (in Oregon it tastes good). I didn't think anything of it until recently I began reacting to everything, including water! I was going to buy a filter to avoid the use of plastic bottles but maybe not? Or, are there recommended brands of filters?

                          Comment


                          • #28
                            Re: Tap Water & IC

                            Originally posted by michellelynn View Post
                            This whole thread is so helpful and interesting. (It's now 2017!) I typically drink tap water (in Oregon it tastes good). I didn't think anything of it until recently I began reacting to everything, including water! I was going to buy a filter to avoid the use of plastic bottles but maybe not? Or, are there recommended brands of filters?
                            If you think there's any possibility that water is a problem for you, it might be less expensive to drink bottled water for a while to see if it makes a difference. I'm also in Oregon, but we have a deep well (no chemicals) and I do drink from the tap. However, when we go to town, I don't --- I can taste the chlorine and it tastes like iodine to me.

                            Donna
                            Stay safe


                            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                            Have you checked the ICN Shop?
                            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                            Patient Help: http://www.ic-network.com/patientlinks.html

                            Sub-types https://www.ic-network.com/five-pote...markably-well/

                            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                            [3MG]

                            Anyone who says something is foolproof hasn't met a determined fool

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                            • #29
                              Re: Tap Water & IC

                              Hi Donna, trying out spring water today and so far so good.

                              Comment


                              • #30
                                Re: Tap Water & IC

                                Hi MichelleLynn, I also drink our well water, filtered from the refrigerator because I like the taste better, and I do just fine with it. I miss my water so much when we travel! Hope you are still doing well!
                                Julie Beyer, MA, RDN
                                IC Dietitian, Patient Advocate, Speaker, & Author


                                Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

                                Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

                                You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

                                ........ ........


                                Other IC Diet Resources:

                                IC Diet Webinar
                                IC Diet Website
                                For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
                                Free IC Diet Booklet: What Can I Eat?
                                Confident Choices IC Diet Blog
                                IC Diet Newsletter


                                *Let's Connect!*

                                Comment

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