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  • #1

    Supplements?

    Hello.......I was wondering, I went to a Nutritionist and I'm eating really healthy and I know I'm not eating anything that "should" be bothering my bladder but I'm still in pain. Could it be the supplements she put me on? She put me on things like CoQ10 and L-Carnitine and Uva Ursi..There's nothing in them that would tell me it should be bothering my bladder, but could it be that? Here I'm trying to do so well with the diet but obviously something isn't right. Any suggestions?

    Thanks,
    Kari
    Kari

    I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!
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    • #2
      I would stop the supplements and see if you feel better. I have at one time or another tried two of the ones you mention and the first two definitely flared me. If you're eating a balance diet, why the supplements?

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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        • #3
          Thanks Donna....I guess she has me taking the supplements to feel better and to help with some other problems I've been having...I hate to stop taking them because I am feeling better, but I guess if they keep bothering my bladder I will have to...Gosh, it seems like we can't take anything without a problem huh? I didn't think the supplements would be a problem...Thanks for the reply.

          Kari
          Kari

          I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!

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            • #4
              I have quit all supplements (and I've spent hundreds of dollars on same in the last several months) and only take my liquid Chinese herbs and my rx for ulcerative colitis and a tablespoon of Barlean's flax oil a day.

              Any thing in a capsule or tablet - no way - I've learned through bitter experience they are terrible for me.

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                • #5
                  Why are the supplements bad though? I didn't think there was anything in them that would bother me. Gosh, we can't take multivitamins or supplements, that really stinks....I didn't know that, thanks for the info...

                  Kari
                  Kari

                  I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!

                    Comment

                    • #6
                      It could be the supliment itself bothering you, many are acidic, and example is vitamin C, I think the last one you read might have diaretic properties, which could increase frequency.

                      there are only a few supliments I can tolerate- yes it is frustrating, since i have other things, other then IC that need to be treated, even antibiotics hurt me :-(


                      Lyme disease diagnosed 11/05
                      vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
                      IC diagnosed with hydro/cysto- may 17, 2006

                      Over growth of lactobicilli found 8/07 treating with doxy.

                      Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

                      8/22/07- was able to get my first speculum exam, with pap

                      Strep D found in bladder with United medical labs May 2006
                      2 strains of strep in stool culture 9/06
                      high Strep ASO titre found 10/06

                      NEW MED

                      Capsasin cream-once a day for 20min,
                      BUt wont lie it does burn

                      About to start valium supositories for PFD

                      Trigger point injections- oct 07

                      Current meds:
                      Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
                      Zanaflex 2mg
                      IC and low oxalate diet, no sugar diet
                      Xanax for appointments to help relax me since they cause so much pain

                      Started PT 3/07, PT has really helped me in ways I never knew that it would

                      Meds ive tried
                      Lyrica
                      Klonopin
                      Singulair
                      Claritin
                      Pyridium
                      Soma- can barely tolerate half a pill
                      Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
                      Estradiol cream
                      Urelle- caused worse bladder spasm and retention

                      Various antibiotics for lyme which caused yeast and made the IC and VV worse

                      waiting for the next chronic illness to pop up


                      "Did you know?
                      Every 15 seconds,
                      a person is
                      diagnosed with
                      interstitial cystitis."
                      Source: J. Dimitrakov, MD

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                        • #7
                          So if I can find supplements only in powder form are they ok then? I'm so confused...The Uva Vursi she told me is for your bladder, it's suppose to help it, I was trying it to see if it did. Gosh this is so frustrating.......

                          Kari
                          Kari

                          I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!

                            Comment

                            • #8
                              Uva Ursi and Co q10 both bother me. Mostly the Uva Ursi. Its more for infections.

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