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vitamins? Hair loss? HELP!!!!!!!!!!!

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  • vitamins? Hair loss? HELP!!!!!!!!!!!

    Hey there, I have I.C. and I have shared before that I am experiencing some hair thinning but my uro/gyn doesn't think it is from the Elmiron... I was wondering if anyone out there takes vitamins? I use to take them but after being diagnosed with I.C./PFD/VV I stopped... I think Vitamin E is good for your hair and nails, right? Has anyone had any luck with being able to take vitamins, if so, what brand??? God Bless

  • #2
    My hair started thinning after my hysterectomy. It was just starting to thicken up when I had my hydrodistension and started losing handfuls of hair in the shower. Usually the anaesthesia causes some hair loss but I think it's a combination of things with me.
    I have a hard time with vitamins so don't get anything regular which I am sure doesn't help.
    http://www.TheCraftyEwe.etsy.com

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    • #3
      I use to take trader joes childrens gummie bear vitamins. They never bothered me and only 60mg of vitamin c is real low. Can't take no more because they have corn and corn syrup. I am on a strict no sugar from any source diet.
      not yet dx with ic-diagnosing myself as of aug 2006
      diagnosed ic-october 5 2006(huh just what I thought)

      Charcoal
      cod liver oil (for vitamins a and d)
      bladder is not getting worse but maybe better
      diagnosed ibs-september 27, 2006
      don't know if it's ibs or some other underlining condition. hair loss, weight loss, constipation
      all this even though I eat.
      Mercury toxicity with Candida Albicans
      Realy toxic and sick
      Dental almagams removal and chelation for heavy metal toxins and candida cleansing as soon as fillings are out
      had catscan, ultrasound, colonoscopy
      Matthew 21 verse 22: jesus quotes"and all the things you ask in prayer, having faith, you will receive."

      I eat to live, not live to eat.

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      • #4
        Biotin is a vitamin for the hair; it increases growth rate and general hair health
        Vitamin E helps the circulation of your scalp.
        Viatamin B6 and B12 help prevent hairloss.

        A lot of food contain these vitamins, like, eggs, chicken, fish, milk, liver, beans, nuts and fruits and vegetables
        IC Live Journal

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        • #5
          HI I see you have IBS with constipation. I have that since I was 20....and am 50 now. After trying all kinds of things for the IBS my dr. said 'Eat Prunes!" So now I buy the Sunsweet dried prunes and eat 5 or 6 with my breakfast each morning and I haven't had constipation or diarrehia since! (almost 2 yrs now!) It's amazing. I truely thought that eating them would cause diarrehia but it doesn't.....just makes me 'normal'. Now I have several friends who also suffer with IBS eating prunes and they are doing great also. Just proves, natural is better! lol Good luck! Roxie

          Double Spinal Cord Stimulator surgery 8/09
          Unsuccessful MiniArc sling surgery 12/07
          Dx'd Hypothyroid
          Dx'd Chronic Axonal Neuropathy & Myopathy
          June 2007
          Dx'd IC May 2006 (after suffering for 25+ yrs!)
          First Cysto 1979
          First Hydro 1981 (Many treatments since then!)
          Collagin"Durasphere" injections for urethra
          Gall bladder surgery Aug. 2004
          Gastric Bypass Dec. 2004
          Dx'd: Barrett's Esphogus July 2004
          Dx'd: Vaginal Atrophy 2005
          Bladder surgery 2000
          Dx'd: IBS 2000
          Hysterectomy (fibroids) 1999
          Laminectomy 1989
          Dx'd: Degerative Disk Disorder 1989

          For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
          I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

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          • #6
            I wish I could eat prunes but anything real sweet like that cause me to get yeast infections or vaginal discharge so I tried to stay clear from most fruits.
            not yet dx with ic-diagnosing myself as of aug 2006
            diagnosed ic-october 5 2006(huh just what I thought)

            Charcoal
            cod liver oil (for vitamins a and d)
            bladder is not getting worse but maybe better
            diagnosed ibs-september 27, 2006
            don't know if it's ibs or some other underlining condition. hair loss, weight loss, constipation
            all this even though I eat.
            Mercury toxicity with Candida Albicans
            Realy toxic and sick
            Dental almagams removal and chelation for heavy metal toxins and candida cleansing as soon as fillings are out
            had catscan, ultrasound, colonoscopy
            Matthew 21 verse 22: jesus quotes"and all the things you ask in prayer, having faith, you will receive."

            I eat to live, not live to eat.

            Comment


            • #7
              Huntermommy

              Are you sure it isn't the Elmiron causing the hair loss? That is one of the side effects.

              Roxie2007,
              Prunes work great, except they caused bladder flares in me. Oh well.
              Diagnoses: Mast Cell Activation Syndrome (2012),Interstitial Cystitis (2003), Postural Orthostatic Tachycardia (2003), GERD (since ?), IBS (since ?), Low Blood Volume (2006), Small Intestine Bacterial Overgrowth (2007)

              Medicines:
              Claritin 10 mg/AM for MCAS and allergies
              Synthroid
              Aciphex 20 mg in PM for GERD
              Zantac 75 mg, one at night for MCAS and GERD
              Singulair 10 mg in AM, for MCAS & allergies
              Zyrtec 5 mg/PM for MCAS and allergies

              Non-Medicinal Helps:
              glucosamine 500mg/MSM 500mg 2 X/day
              I avoid foods that I react to in my esophagus, bowel and bladder, and I react to many things. It is an imperfect method, but it is all that I do at the moment.

              I can do all things through Christ which strengtheneth me. (Phillipians 4:13)

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