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Water question?

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  • Water question?

    I never knew until reading some of these posts that there was any difference in the bottled waters! How do you know that some of them aren't good? I don't see any ingredients in water that would tell me that...So now I've just been drinking Distilled Water which my nutritionist recommended, is this ok?


    I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!

  • #2
    Some people have problems with the added minerals they put in bottled water to make it "taste better"...seems ridiculous to me! I don't know if they add anything like that to distilled water. I think you could probably tell after drinking several glasses if it was bothering your bladder.
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.


    • #3
      Distilled water has the minerals and the other "extras" removed from it. So it should be okay and be the least irritating I would think.


      • #4
        I can drink distilled water and bottled water with no minerals in it..

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

        Link to Patient Handbook:

        Diet Reference Sheet:

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


        • #5
          For me it is the acidity. Spring water tends to have a higher ph so it is more alkaline and better for me. Some bottled waters such as Aquafina are a bit acidic, I have tested it at 6.5.

          I keep test strips so I can make sure I am drinking water that is either neutral (ph of 7) or a tad bit alkaline. I also use AlkaLife drops which increases the water's ph.

          You have to have your symptoms and diet in pretty good control to be able to tell the subtle differences between waters, but there is definitely a difference.


          • #6
            Does anyone drink tap water? My local tap water has a high amount of chlorine, so I can't drink it. I can't carry the large packages of bottled water and I got through about 2 L of water per day. I was thinking maybe I need some type of filter for tap water - but I haven't found one that can remove chlorine. Does anyone have a filtering system that works?

            My issues:
            Adenomyosis -Diagnosed 2010
            Fibromyalgia - Diagnosed 2009
            IBS - Diagnosed 2007
            IC - Diagnosed 2003
            Endo - Diagnosed 1998
            Cystic Acne

            My meds:
            Elmiron orally 100 mg 2x per day
            Effexor 75mg 1x perday
            Welburtin 150 mg 1x per day
            Maxalt (as needed for migraines)
            birth control pills


            • #7
              I think a simple carbon filter will remove chlorine, such Brita etc...