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Can someone please help me?

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  • Can someone please help me?

    Hi everyone again. I was needing to ask everyone a question. Is pork skins, white cheddar popcorn, grapes, apples, frozen dinners okay? These sre just a few things I eat. Also is koolade okay to drink? If somone could please help me I would be grateful. Thanks everyone.

  • #2
    It seems food effects people differently but cheddar is supposed to be a no no and I'm sure there are other things in white cheddar popcorn that would be bad for IC, grapes and apples are a no. Really the only fruit that is safe is pears, blueberries and some melons. Frozen dinners probably have all kinds of preservatives and other things that might bother your bladder, you should probably read the labels. I don't drink koolaid because it has citric acid in it which is supposed to be bad. If you're eating these things and having a lot of problems you probably want to cut them out and see if that helps

    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus


    • #3
      I do okay with red grapes. I don't eat a whole lot of apples, but I've heard the lighter the skin the easier on the bladder. I drink a lot of koolaide with no problems. If you think they are bothering you, try cutting one out for a week or so and see how you do. Until last year I had a Mt. Dew everyday and didn't think it was bothering me much until I cut it out completely and now I feel so much better. Its just a personal trial and error. The best advice I can give is everything in moderation. I can even have a little bit of chocolate or salsa if I don't do it everyday and drink plenty of water with it. Hope this helps!


      • #4
        gala apples are o.k. for me. I put almond butter on them. Pears are good to. blueberries also.
        not yet dx with ic-diagnosing myself as of aug 2006
        diagnosed ic-october 5 2006(huh just what I thought)

        cod liver oil (for vitamins a and d)
        bladder is not getting worse but maybe better
        diagnosed ibs-september 27, 2006
        don't know if it's ibs or some other underlining condition. hair loss, weight loss, constipation
        all this even though I eat.
        Mercury toxicity with Candida Albicans
        Realy toxic and sick
        Dental almagams removal and chelation for heavy metal toxins and candida cleansing as soon as fillings are out
        had catscan, ultrasound, colonoscopy
        Matthew 21 verse 22: jesus quotes"and all the things you ask in prayer, having faith, you will receive."

        I eat to live, not live to eat.


        • #5
          Hi Alicia,
          Welcome to the ICN!
          Here is a list of foods for IC patients,

          categorized into foods that are "usually ok", "sometimes ok", and "usually problematic". You will also find that label reading is very important to avoid preservatives (citric, sorbic, malic acids) and colorants.

          The diet is not easy, but it can be very worthwhile in reducing symptoms. It often takes several weeks eating foods on the "usually ok" part of the list for the irritated bladder to calm down enough that you can then test one by one the foods in the middle column.

          The diet is my number one most effective treatment! And it doesn't cost extra money, cause hassles with the insurance company, or have side effects that bother the rest of my body. So, even though I don't like it & it was a major lifestyle change (I was queen of takeout before IC), it is essential to my feeling well most days!

          Wishing you welcome & wishing you better days soon!

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
          Source - Pinterest

          Current treatments:
          -IC diet
          -Elavil 50mg at night
          -Continuous use birth control pills (4-5 periods/year)
          -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
          -Pyridium if needed,
          -Pain medicine at bedtime daily, as needed during the day several times per week
          -Antibiotic when doing an instillation to prevent UTI
          -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
          -Dye Free Benadryl 50 mg at bedtime
          -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
          -Managing stress= VERY important!
          -Fur therapy: Hugging the cat!


          • #6
            Well put, Kadi!! The diet is definitely the easiest thing to do in an effort to reduce your symptoms. And, as the others said, something that may be okay for one person may send another into a mega-flare. I, too, can drink Kool-aid just fine, but even looking at a caffeinated beverage puts me in a huge flare. If you are eating all the items you mentioned, remove them all from your diet for a week or two, then add back one at a time, noting if you have an increase in symptoms. This will tell you what you specifically cannot tolerate. Good luck!


            "A heart is not judged by how much you love; but by how much you are loved by others."
            ~ The Wizard of Oz

            "If I ever go looking for my heart's desire again, I won't look any further than my own
            back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


            • #7
              diet directions

              Hello! SOrry to be the nth poster to say that those things in your list are all no-nos for me. ANything processed like popcorn treats or TV dinners are just out. No more going into the middle aisles at teh grocery store. It's the veggies, the dairy aisle and some of the meat aisle.

              And as everyone else has said. THe diet is really the day to day saviour for me. It is way cheaper to buy unprocessed foods (like beans and lentils etc.) and make my own food, and it is way better for me. It takes more time and our cutlure of fast and easy does not reinforce how good it is for everyone to take the time to cook and eat from scratch and carefully.

              I miss those fruits thats for sure. But I imagine that i will be able to eat them again. I have been able to add little bits of things back in over time with good results. Once you get on the diet and follow the "OK" list for a few weeks then add some or bits of the "usually OK" list and then you will start to have a good idea which things can really trigger you. A food diary helps with this as well.

              There is no hurrying it. It took me months of the "OK" list before symptoms reduced enough that I could start to tell which new things might cause troubles. and then I would binge when I found something I could eat and it would start to hurt me ...

              oh, the cycle!
              hope you're having a good day!