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Has Anyone Tried ENABLEX?

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  • #1

    Has Anyone Tried ENABLEX?

    Hello, havent posted in awhile....
    Wondering if anyone has tried "Enablex"? It is a fairly new drug, some pharmacies dont even have it yet, or haven't heard of it, but my local walmart has it (ughhh 125$ for the lowest dose for a 30 day supply!!!!!) it sounds like a wonder drug... maybe combined with a carefully managed diet, it could really help. At least from what I've read. If anyone has tried this please post because I'd like to hear if its worth the price. I can't afford it, but I may try to get into a perscription drug program or something... thanks!
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  • #2
    Yes I take enablex.. It has help me alot with my urgency and some with frequency.
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment

    • #3
      I took Enablex for a while (got free samples from my doctor), and it helped a little with the frequency/urgency, but not a LOT. I stopped taking it and decided to try Elavil instead.

      Comment

      • #4
        really! Does Elavil work better for you? What dose do you take? The doctors at my college here tried in a last ditch effort to help me with pain by giving me elavil, but said they didn't know if it would help or not. I am taking a fairly low dose right now, but the DR said I could take much more than what I am currently taking. I'd love to hear your story, as I am getting frustrated about the enablex.. because its way too expensive

        Comment

        • #5
          I take 25mg of elavil a night..And yes it has helped a lot with my pain.
          I also take cymbalta, and it is also helping..
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment

          • #6
            I'm on it, along with other meds and nothing has worked yet. I think it has caused me to have more trouble going which is causing me more stress than going a lot.

            Comment

            • #7
              For me, the Elavil has helped with pain and mostly with getting some sleep at night. I still have to get up to pee every 2-3 hours. But I can live with that. Nothing has really helped my urgency/frequency, but if a combination of meds can help "calm" my inflamed bladder, then the urgency/frequency tends to be less. I hope the Elavil helps you...it's much less expensive!

              Comment

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