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ICN Chat Tonight 3/5

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  • ICN Chat Tonight 3/5

    Hi everyone.......Come join us for our LIVE ICN Chat tonight! Meet others with IC. Hope to see you there..........ICNLESLIE

    5PM PST
    6PM MST
    7PM CST
    8PM EST
    9PM AST

  • #2
    how do you do the chatting?


    • #3
      There's a link up at the top of the page for chat. Click on that and it will take you to the chat where you put your name in and click on connect and there you go.

      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus