TWhen I was diagnosed with IC many years ago, I went on Elmiron and it helped so fast I actually forgot that I had it. I was fine for 6 years. Then BOOM, it came back.
So I figured I had to use the Elmiron for a few months, and It would be OK. So I hoped.
And it got better and worse and better and worse, and I've tried all the testing and such, but testing sure is for me prtty meaningless when you don't know how long things take to hurt, some foods and OK and then not, and you can have flares with no bad food whatsoever.
Then, as I was going thru this, I was finally diagnosed with fibromyalgia, which makes your whole body hurt and get going through the motions of the day hurt. And now I also have Fear of Food (FOF) and frankly there's just nothing that I want to eat anymore. I am sick of everything. I appreciate the recipies that people have put out, and I can eat bland stuff for a while. I miss Mexican, I miss Thai, I miss being able to eat out at a restaurant. When I go to my sister;s house, she naturally forgets what I can't eat and has a hard time believig me.
"You can't year yougurt? But it's so GOOD for you!"
So WHat do I do? I should not eat sugar because it's addictive and I don't feel good about it physically or mentally. But what CAN I eat that I like? Well, of course, all kinds of cards, complex and simple. I love complex carbs. But I gain weight on it and don't feel great---and THAT"S most of what I can eat?
So after a few days of Boring Bland Food I go crazy, like today, and eat 6 cookies, pumpkin bread, coffee cake, chocolate stuff I shouldn't have eaten including five chocolate cookies, two almond Starbucks thing, a cream cheese roll. Also some Peanut MMs and 3 dove small chocolates. And a strawberry (yes STRAWBERRY) poptart. Did I mention I ate all that today>
It was like I didn't really want it, and was angry at the Ic, saying SEE WHAT YOU MADE ME DO??????????
I can't stand to lose avacado. I can't stand to have no dressing on salads and sandwiches. Mostly, I HATE the lack of variety. I need low card and hi protein too, and lots of IC recipies are heavy on carbs.
Because of the Fibro some days I don't leave the house, or can't exercise. I don't call my friends because I get jealous hearing what a normal life is like.
On my yes, I have tried recipies and they have turned out servicable. Food is servicible. It is not anything I enjoy anymore. It is something to do to not be hungry. Yes, I've been to a therapist, are on meds, blah. My husband does the cooking and I have boxed him out of making all the things he likes even when I tell him to do it so he's not so affected by me.
I wish I hadn't eaten so much today. Yet when I wake up, there it will be again.
Nothing really to eat, and another boring day.
So I figured I had to use the Elmiron for a few months, and It would be OK. So I hoped.
And it got better and worse and better and worse, and I've tried all the testing and such, but testing sure is for me prtty meaningless when you don't know how long things take to hurt, some foods and OK and then not, and you can have flares with no bad food whatsoever.
Then, as I was going thru this, I was finally diagnosed with fibromyalgia, which makes your whole body hurt and get going through the motions of the day hurt. And now I also have Fear of Food (FOF) and frankly there's just nothing that I want to eat anymore. I am sick of everything. I appreciate the recipies that people have put out, and I can eat bland stuff for a while. I miss Mexican, I miss Thai, I miss being able to eat out at a restaurant. When I go to my sister;s house, she naturally forgets what I can't eat and has a hard time believig me.
"You can't year yougurt? But it's so GOOD for you!"
So WHat do I do? I should not eat sugar because it's addictive and I don't feel good about it physically or mentally. But what CAN I eat that I like? Well, of course, all kinds of cards, complex and simple. I love complex carbs. But I gain weight on it and don't feel great---and THAT"S most of what I can eat?
So after a few days of Boring Bland Food I go crazy, like today, and eat 6 cookies, pumpkin bread, coffee cake, chocolate stuff I shouldn't have eaten including five chocolate cookies, two almond Starbucks thing, a cream cheese roll. Also some Peanut MMs and 3 dove small chocolates. And a strawberry (yes STRAWBERRY) poptart. Did I mention I ate all that today>
It was like I didn't really want it, and was angry at the Ic, saying SEE WHAT YOU MADE ME DO??????????
I can't stand to lose avacado. I can't stand to have no dressing on salads and sandwiches. Mostly, I HATE the lack of variety. I need low card and hi protein too, and lots of IC recipies are heavy on carbs.
Because of the Fibro some days I don't leave the house, or can't exercise. I don't call my friends because I get jealous hearing what a normal life is like.
On my yes, I have tried recipies and they have turned out servicable. Food is servicible. It is not anything I enjoy anymore. It is something to do to not be hungry. Yes, I've been to a therapist, are on meds, blah. My husband does the cooking and I have boxed him out of making all the things he likes even when I tell him to do it so he's not so affected by me.
I wish I hadn't eaten so much today. Yet when I wake up, there it will be again.
Nothing really to eat, and another boring day.
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