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What do you think of this?

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  • What do you think of this?

    I've been diagnosed with IC about 3 weeks ago now. The first week, I did a total elimination diet, only ate what was considered "safe" by most IC'ers. The 2nd week and 3rd week I ate really healthy, tons of veggies, some tofu, no preservatives or sweets etc.... All the while feeling the same. My pain only seems to be at a point where I need a pain killer after Physical Therapy. Besides that, its been rather mild lately. I notice I'm sore after PT for a good 2 days.

    Now I have PMS...bad. I'm due on Monday. In the past 3 days I've eaten a burger and fries with seasonings on it and ketchup, movie theater popcorn, chocolate chip cookies, M&M's and OMG even a tomato and I am still fine. I will resume my "healthy eating" tomorrow though only b/c I really want my body to heal and do what is good for it right now. I am certainly not pushing my luck

    Could I assume, is it possible, that diet doesn't affect my IC one way or another? After eating all that crap, wouldn't I be curled up in pain?

  • #2
    I would just say you are an incredibly lucky woman! And keep experimenting. Anything seems to be possible with this stupid condition.
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

    On the Beach with IC


    • #3
      There are some people that can still eat what ever they want and it does not affect their IC. But while they can eat whatever they have problems with other stuff say stress, illiness PMS symptoms increasing the IC symptoms. Like the other said you are lucky that food right now is not bothering you. It maybe that your case of IC is mild and you will be able to control it well. Good luck
      God grant me the serinity to withstand the days ahead!!!

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      • #4
        Be careful. Sometimes, there is a cumulative affect that can happen. In other words, you can get away with a bit but if you go overboard for two long it can catch up with you.


        • #5
          I have a few food triggers that I absolutely, positively must avoid, but I am not nearly as diet sensitive as a lot of people on this site, luckily. In the beginning, I did the very basic elimination diet for two months, and I didn't notice a real difference. My symptoms remain pretty constant... but I have a feeling it's because my IC is severe and it's going to hurt to some extent anyway....regardless I still try to eat pretty healthy.

          *Diagnosed with severe IC in 2004
          *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
          *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
          *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

          **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


          • #6
            I wouldn't chance it for at least a while --- and I suggest taking it slowly when adding new foods. Some ICers aren't particularly diet sensitive, others are extremely so --- I fall somewhere in the middle.

            By taking it slowly, I mean add one new food at a time, eat it every day for three or four days, then add another.

            Stay safe

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            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Anyone who says something is foolproof hasn't met a determined fool


            • #7
              Well, you are lucky. I have heard from two really great Uro's that sometime, it can two weeks to affect you. I know its sounds long, but I guess its true. So be careful