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I was just diagnosed with IC this week and I was wondering what is the reaction time after you eat or drink something for most people? I'm not aware of how long it takes once you drink or eat something to travel through the digestive system and into the bladder. I wouldn't think it would be immediately, but could it be as soon as an hour before you realize you ate or drank something that causes a reaction? My symptoms have been so constant lately that I can't tell if something particular is causing me problems or not and I've been strictly adhering to the IC diet for the last 4 weeks. I'm not in an extemely painful mode like I was since I started the diet, but symptoms as not completely gone either. So, I can't figure out how to isolate any particular food or drink to avoid. I have to eat. Any suggestions would be appreciated.
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For me it's exactly 2 days from eating something till a bad effect. For drinks, it's less than 1 day. It can be up to 3 days for some people. So the idea is to try one new thing, then wait three days. If your diet is similar from day to day, any bad effect is obvious by the 3rd day.
You can also use this to find foods that help make you better. -
HI! Sorry to hear you were diagnosed with this rotten problem but you've come to a great place to get support, learn, vent and find new friends. There's lots of great info here.
I"m the same as cprice. It takes me a cpl days if I eat a food that I shouldn't have. I never eat a 'bad' food 2 days in a row (leftovers, etc). Some times it is difficult to figure out what caused a flare. Maybe it's medication related....or a vitamin you take? Good luck! Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:Comment
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For me, a reaction can happen as soon as 40 minutes after eating something that triggers symptoms. It usually happens that day or that night. Sometimes it will last only a few hours, but can last several days.Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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For me depending on what it is, for drinks it could be an hour or so. For food a day or 2. My flares can last anywhere from a day to 2 days. Again, just depending on what it is on what I had.
Sorry you have this stuff, its a bummer!Comment
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I usually will flare within a couple of hours, sometimes the next day, but usually sooner then that. And like everyone else said it could last anywhere from a few hours to a couple days. It can be really tough figuring it all out, I'm still working on it. So hang in there and good luck.
Kari
Kari 
I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!Comment
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I've had trouble telling what flares me as well. I think I can get away with foods that a lot of ICers can't. The one thing that I knew flared me for sure was Motrin. I usually take it with Prelief but the one day I didn't have any with me at work and I had a headache so I took it w/o the Prelief. About an hour and a half later I was burning like crazy and it really really hurt. There was nothing else that I would have had to cause it so I knew it was the Motrin. I learned my lesson on that one, no Motrin w/o Prelief.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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Just wanted to say thanks for all those who replied to my post. I've been monitoring everything I eat since the diagnosis and been doing pretty good. Being on the IC diet has helped as far as I can tell at this point. My OBGYN put me on Elmiron and I've been taking it 3 x's a day. I've been out of town for the last week and was careful to watch my diet while I was gone and didn't really have too much of a problem. I was afraid I'd flare while not at home. Stress seems to be a problem for me as I can tell when I'm stressing because then I start burning. Right now it is too hard for me to tell if food/drink or stress is causing more of my problem since this is all so new to me. And I can't tell if Elmiron is helping yet or not. I've read it can take months to tell if it is helping. But so far things have been much better. My dr. said I could introduce a few new things in my diet that I have cut out completely just one at a time for several days to see if I have any reaction. I drank about 1/4 cup of decaf coffee this morning and no reaction as of yet. I'm not a big coffee drinker anyway so it wasn't hard to eliminate that but I do like it every now and then. My husband and I also had some intimate time yesterday and so far so good with that too as I have abstained from that activity for over a month now. Having intercourse seemed to always cause all of my previous UTI's that I kept having. Well, thanks again for replying. I have a question about Elmiron, but I believe I should go to a different forum for that.Comment
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