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  • #1

    Help Me Understand...

    Where does the IC diet come from? Did someone gather information from patients to find out what irritates IC bladders? I understand that bodies metabolize things differently, but there seems to be a lot of variation. I do notice that citrus fruits, chocolate, tea, coffee, tomatoes, and salad dressing seem to bother more people. I have been trying to follow the IC diet and stick to it most days. I do notice that caffeine upsets me, but that acts as a diuretic (not a irritant)... so upping the volume makes my frequency 10X worse.

    Anyways, I was just wondering how the IC diet was developed or why it is supposed to work for some people. Why is watermelon ok but cantaloupe is bad?

    Thanks!
    [SIZE="1"][B]Be well, Alyssa :hi:[/B]

    [
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    • #2
      Another thing... why is cheese supposed to be bad?
      [SIZE="1"][B]Be well, Alyssa :hi:[/B]

      [

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        • #3
          Hi There,
          I also wondered about the IC diet myself. What I honestly think is that everyone is different and will react to the foods on the IC diet diferently. I mean some people can eat an apple or some fruit, where there are some that cannot eat any. I am thinking the cheese restriction could be more so for people with lactose intolerance, but I am not sure.
          I think the only diet to stick to is the one that you can tolerate, and that takes trial and error. For me diet is hard because I can get bothered by any one thing on any given day, but then eat that same thing an some days and be fine. Our bodies are different in how we will react to certain things. They put all those foods on the IC diet because there are people who have been bothered by these foods, but that does not mean that all of those foods bother every person. Like I said, I think it takes alot of trial and error.
          Jen

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            • #4
              I would think that a stdy had taken place to be able to discover the trigger foods. I am one that nearly everything bothers me.
              'The will of God will never take you where the Grace of God will not protect you.'

                Comment

                • #5
                  What hurts?

                  What ever hurts is what is "bad" for you. I am not very food sensitive myself and eat and drink a lot of stuff that seems to put the more sensitive into a fit. You just cant expect everyone to react the same and you can keep a food diary and see after you eat something how long and how much it has or has not irritated you?
                  Sammi

                  Sammi

                  Meds: Melatonin 3mg @ bedtime if needed. Estrogen 1.5 mg troche and 0.1 mg Estrace cream.
                  Diagnosis: IC, PFD (both in remission)

                    Comment

                    • #6
                      It's my understanding that the IC diet was developed from the experience of thousands of people with IC. At the time I was diagnosed (1975) not much thought had been given to a food connection so I discovered my personal triggers through my own experience. The first thing I suspected was either coffee or cranberry juice (I frankly can't remember which) and from there I found other triggers by recording food and drink intake. I had one child with severe food allergies so I knew about elimination diets to find problem foods and drinks.

                      I found it very interesting when I saw a printed "IC diet" and found that every one of my personal trigger foods and drinks were listed as problems.

                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                       [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

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                        • #7
                          Thanks guys for the feedback! I was just curious about it.

                          Another question: When you eat a trigger food, does it increase the pain, frequency/urgency, bleeding?

                          This is all new to me... and hopefully I will have a clear diagnosis soon!
                          [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                          [

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                            • #8
                              HI Depending on the food ..citric acid causes major bladder pain, urgency/frequency. Some foods just cause the bladder discomfort. It's a trial and error process to figure out what causes your pain......and it can be a real headache in the mean time!
                              Most Night Shade foods bother me. Choc., caffeine, spicy food, acidics.......are big time triggers.
                              Good luck to you! Roxie

                              Double Spinal Cord Stimulator surgery 8/09
                              Unsuccessful MiniArc sling surgery 12/07
                              Dx'd Hypothyroid
                              Dx'd Chronic Axonal Neuropathy & Myopathy
                              June 2007
                              Dx'd IC May 2006 (after suffering for 25+ yrs!)
                              First Cysto 1979
                              First Hydro 1981 (Many treatments since then!)
                              Collagin"Durasphere" injections for urethra
                              Gall bladder surgery Aug. 2004
                              Gastric Bypass Dec. 2004
                              Dx'd: Barrett's Esphogus July 2004
                              Dx'd: Vaginal Atrophy 2005
                              Bladder surgery 2000
                              Dx'd: IBS 2000
                              Hysterectomy (fibroids) 1999
                              Laminectomy 1989
                              Dx'd: Degerative Disk Disorder 1989

                              For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                              I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

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                                • #9
                                  I agree that the list is so huge because the variety of things that can be harmful is so wide depending on the person. I think the reason some things bother some people and not others is because what causes our individual conditions are so different. The way my urologist explained it, IC isn't always a disease on it's own, but it can be a "constellation" of symptoms created from numerous conditions existing at the same time. It can be like a back injury that has multiple irritants, like poor posture, improper lifting, and a bad mattress. All of those factors will make your back hurt, and together, they make it hurt in a very specific way. This is why I think that if you have an IC diagnosis, then you should pay attention to the rest of your body and start trying to deal with whatever problems you have. It's rare on this site to see someone who only has IC and nothing else.

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                                    • #10
                                      Mullusk, You are SO right! I have SO many other issues I'm dealing with and they all have some relationship to IC in one way or another! I have to be really careful with other medications because they bother my bladder. It really sucks to have IC! Roxie

                                      Double Spinal Cord Stimulator surgery 8/09
                                      Unsuccessful MiniArc sling surgery 12/07
                                      Dx'd Hypothyroid
                                      Dx'd Chronic Axonal Neuropathy & Myopathy
                                      June 2007
                                      Dx'd IC May 2006 (after suffering for 25+ yrs!)
                                      First Cysto 1979
                                      First Hydro 1981 (Many treatments since then!)
                                      Collagin"Durasphere" injections for urethra
                                      Gall bladder surgery Aug. 2004
                                      Gastric Bypass Dec. 2004
                                      Dx'd: Barrett's Esphogus July 2004
                                      Dx'd: Vaginal Atrophy 2005
                                      Bladder surgery 2000
                                      Dx'd: IBS 2000
                                      Hysterectomy (fibroids) 1999
                                      Laminectomy 1989
                                      Dx'd: Degerative Disk Disorder 1989

                                      For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                                      I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                                        Comment

                                        • #11
                                          Aged cheese is usually bad. Am. cheese, parmesan in the green can, motzerella, and ricotta are usually okay

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