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  • KOOL AID with SPLENDA

    Does anyone know if this is bothersome? I mean, Kool Aid with NO caffeine, and NO artificial sweeteners. It probably is, because the first ingredient is citric acid...does anyone know what I CAN drink, besides water? Thank you.

  • #2
    I used to drink peppermint and speramint tea alot. I would actually use the Mr Coffee iced tea maker to make iced tea with it. It was really yummy. I had horrible frequency one night after drinking a whole glass of it really fast at dinner so I stopped but I think it was probably the splenda and not the tea itself. I've been able to drink a little bit of sprite myself but some might not be able to tolerate it. I've been in such a yucky flare lately though I've only been drinking water.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

    Comment


    • #3
      what to drink

      Hi, I'm new at this too but here's what I do for variation. Someone told me that I could try Peligrino (sp?) water has just a bit of fiz to it. Now and then I take a glass, fill it with ice, then some Peligrino water and a litter of root beer extract. For sweetnes I use a little splenda with equal amount of sugar. I don't seem to have a reaction to it. I have heard something about grape cool aid but haven't tried it yet. I was a great fan of non fat supreme milk until I realized I was having a reaction. I never suspected that it was the non fat supreme milk. I now try the 1% and do ok. You can always use some flavoring if it doesn't have citric acid or other problem ingredients. I seem to be ok with the low acid orange juice and I always use the prelief with it for a safe gauard. Hope this helps, you can pm me at [email protected]

      Comment


      • #4
        I've had luck with A&W root beer. I am OK with small amounts of grape Kool-Aid. It still increases my frequency, though. My hubby is a Kool-Aid fan and we're trying to be a bit more health conscious. I made some with Splenda and it got all clumpy. He said it was gross. I didn't try any.

        1% milk is also a favorite aside from water. I've even been OK with 1% chocolate milk and instant hot chocolate. BUt, I have handle chocolate if I don't go crazy and eat a pound at a time. If I'm going riskier with some Sprite or caffeine-free Diet Coke, I usually take Prelief with it. I didn't add those things until my symptoms were more under control.
        ~ Stacey

        Comment


        • #5
          I tried the Kool-Aid recently and my bladder was on fire afterwards! No Kool-aid for me. I was really hoping though for something new to drink. The only thing I can tolerate is water and Gerber baby pear juice. I love it!

          Kari
          Kari

          I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!

          Comment


          • #6
            Yeah, it is now about 1 hour after I drank the Kool-Aid with Splenda, and it did in fact make me worse! I can't believe it! Now I can't even drink that!

            Comment


            • #7
              Oh that sucks!!! Try to see if you can find pure mint tea and that makes some yummy iced tea and of course you could use sugar instead of the splenda
              Christine



              I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
              1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
              2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
              I have tried every oral medication as well as rescue instills and DMSO.

              I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

              Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
              Also proud mom to the best Bullmastiff on earth, Claus

              Comment


              • #8
                Hi Christine, where do you get that, or what kind do you use? Thanks!

                Comment


                • #9
                  ummm, I think my mom got some at Trader Joe's, I don't have a trader joe's around me though. I got mine at a discount store that I go to, lets go see what the name is, crap, I can't find the stuff that I was buying. The stuff my mom got me was from Trader Joe's though
                  Christine



                  I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                  1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                  2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                  I have tried every oral medication as well as rescue instills and DMSO.

                  I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                  Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                  Also proud mom to the best Bullmastiff on earth, Claus

                  Comment


                  • #10
                    I just looked in the ICN shop and they sell some mint tea there too
                    Christine



                    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                    I have tried every oral medication as well as rescue instills and DMSO.

                    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                    Also proud mom to the best Bullmastiff on earth, Claus

                    Comment


                    • #11
                      Okay, thank you, that is great, I think I will try that. I've just been drinking water and milk, which I can tolerate, and I want to try something else.

                      Comment


                      • #12
                        Supreme Milk?

                        Judy Gee,

                        What is Non-fat Supreme Milk?

                        Thanks!


                        Originally posted by Judy Gee View Post
                        Hi, I'm new at this too but here's what I do for variation. Someone told me that I could try Peligrino (sp?) water has just a bit of fiz to it. Now and then I take a glass, fill it with ice, then some Peligrino water and a litter of root beer extract. For sweetnes I use a little splenda with equal amount of sugar. I don't seem to have a reaction to it. I have heard something about grape cool aid but haven't tried it yet. I was a great fan of non fat supreme milk until I realized I was having a reaction. I never suspected that it was the non fat supreme milk. I now try the 1% and do ok. You can always use some flavoring if it doesn't have citric acid or other problem ingredients. I seem to be ok with the low acid orange juice and I always use the prelief with it for a safe gauard. Hope this helps, you can pm me at [email protected]
                        [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                        [

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