Does anyone know if this is bothersome? I mean, Kool Aid with NO caffeine, and NO artificial sweeteners. It probably is, because the first ingredient is citric acid...does anyone know what I CAN drink, besides water? Thank you.
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KOOL AID with SPLENDA
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I used to drink peppermint and speramint tea alot. I would actually use the Mr Coffee iced tea maker to make iced tea with it. It was really yummy. I had horrible frequency one night after drinking a whole glass of it really fast at dinner so I stopped but I think it was probably the splenda and not the tea itself. I've been able to drink a little bit of sprite myself but some might not be able to tolerate it. I've been in such a yucky flare lately though I've only been drinking water.Christine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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what to drink
Hi, I'm new at this too but here's what I do for variation. Someone told me that I could try Peligrino (sp?) water has just a bit of fiz to it. Now and then I take a glass, fill it with ice, then some Peligrino water and a litter of root beer extract. For sweetnes I use a little splenda with equal amount of sugar. I don't seem to have a reaction to it. I have heard something about grape cool aid but haven't tried it yet. I was a great fan of non fat supreme milk until I realized I was having a reaction. I never suspected that it was the non fat supreme milk. I now try the 1% and do ok. You can always use some flavoring if it doesn't have citric acid or other problem ingredients. I seem to be ok with the low acid orange juice and I always use the prelief with it for a safe gauard. Hope this helps, you can pm me at [email protected]
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I've had luck with A&W root beer. I am OK with small amounts of grape Kool-Aid. It still increases my frequency, though. My hubby is a Kool-Aid fan and we're trying to be a bit more health conscious. I made some with Splenda and it got all clumpy. He said it was gross. I didn't try any.
1% milk is also a favorite aside from water. I've even been OK with 1% chocolate milk and instant hot chocolate. BUt, I have handle chocolate if I don't go crazy and eat a pound at a time.If I'm going riskier with some Sprite or caffeine-free Diet Coke, I usually take Prelief with it. I didn't add those things until my symptoms were more under control.
~ Stacey
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I tried the Kool-Aid recently and my bladder was on fire afterwards! No Kool-aid for me. I was really hoping though for something new to drink. The only thing I can tolerate is water and Gerber baby pear juice. I love it!
KariKari
I'm 47 years old, married 27 years. I have two wonderful boys and two wonderful grandchildren. I was diagnosed in 1994. Life has certainly thrown me many many surprises, all of which I'm trying to stay positive and hopeful, and I try to think about my blessings not my misfortunes, when possible. Stay Strong!
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Oh that sucks!!! Try to see if you can find pure mint tea and that makes some yummy iced tea and of course you could use sugar instead of the splendaChristine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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ummm, I think my mom got some at Trader Joe's, I don't have a trader joe's around me though. I got mine at a discount store that I go to, lets go see what the name is, crap, I can't find the stuff that I was buying. The stuff my mom got me was from Trader Joe's thoughChristine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
Comment
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I just looked in the ICN shop and they sell some mint tea there tooChristine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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Supreme Milk?
Judy Gee,
What is Non-fat Supreme Milk?
Thanks!
Originally posted by Judy Gee View PostHi, I'm new at this too but here's what I do for variation. Someone told me that I could try Peligrino (sp?) water has just a bit of fiz to it. Now and then I take a glass, fill it with ice, then some Peligrino water and a litter of root beer extract. For sweetnes I use a little splenda with equal amount of sugar. I don't seem to have a reaction to it. I have heard something about grape cool aid but haven't tried it yet. I was a great fan of non fat supreme milk until I realized I was having a reaction. I never suspected that it was the non fat supreme milk. I now try the 1% and do ok. You can always use some flavoring if it doesn't have citric acid or other problem ingredients. I seem to be ok with the low acid orange juice and I always use the prelief with it for a safe gauard. Hope this helps, you can pm me at [email protected][SIZE="1"][B]Be well, Alyssa :hi:[/B]
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