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  • Starting the IC Diet

    Sorry if this has already been asked and answered.

    I had a friend (she is allergic to Gluten" suggest to me to go through the cupboards and then what is NOT IC Friendly to either toss it (if it has been open), give it away (if it has not been open) OR put that stuff in one cupboard and then the stuff I CAN have into another cupboard. I was just wondering if anyone else has done this and did it work?

    Thanks,
    Kim

  • #2
    Hi there,
    I don't see why that wouldn't work. Some of the things you might be able to eat a little of or may they may not bother you at all. The IC diet works great but it is trial and error. If dividing the foods into groups works for you that will be great! Good luck to you! Roxie

    Double Spinal Cord Stimulator surgery 8/09
    Unsuccessful MiniArc sling surgery 12/07
    Dx'd Hypothyroid
    Dx'd Chronic Axonal Neuropathy & Myopathy
    June 2007
    Dx'd IC May 2006 (after suffering for 25+ yrs!)
    First Cysto 1979
    First Hydro 1981 (Many treatments since then!)
    Collagin"Durasphere" injections for urethra
    Gall bladder surgery Aug. 2004
    Gastric Bypass Dec. 2004
    Dx'd: Barrett's Esphogus July 2004
    Dx'd: Vaginal Atrophy 2005
    Bladder surgery 2000
    Dx'd: IBS 2000
    Hysterectomy (fibroids) 1999
    Laminectomy 1989
    Dx'd: Degerative Disk Disorder 1989

    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

    Comment


    • #3
      I haven't done that, but I think it could be a good idea, at least until you become accustomed to the IC diet. It does get to be second nature almost over time.

      Sending encouraging hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Hi Kim

        That is a coping strategy that we used to suggest to people in the weight management program that I worked for a few years ago. That way, when you are hungry, you only look in your spot, and are less likely to be tempted by the rest of the family's food.

        I have to say, my husband bought a ton of strawberries last weekend and the family has been eating them night & day..... ...I am SO glad they are gone. That is one food I just can't play around with...nadda, zilch, nope, no way.........and I LOVE strawberries..........

        Oh I have to stop, just writing about them makes me want them..........off to get some frozen blueberries instead.......lol
        Julie Beyer, MA, RDN
        IC Dietitian, Patient Advocate, Speaker, & Author


        Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

        Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

        You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

        ........ ........


        Other IC Diet Resources:

        IC Diet Webinar
        IC Diet Website
        For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
        Free IC Diet Booklet: What Can I Eat?
        Confident Choices IC Diet Blog
        IC Diet Newsletter


        *Let's Connect!*

        Comment


        • #5
          If you are okay with cinnamon, a tiny bit really enhances the flavor of blueberries.


          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            I went through my cupboards & fridge

            Hi All,

            Just wanted to let you all know that I went through my cupboads and fridge this morning and my oh my, I could not believe what I found was on the NO No list. I found a total of 74 items that were NO NO's. 17 items that were OK and 16 items that I am not sure about. I am going to lsit the ones I am not sure about and if any of you out there know about these PLEASE let me know.
            Items I was not sure about:
            1) Jasmine Tea (I got this in China, so I have no idea what is in it, I assume just Jasmine Tea)
            2) Package Ice Cream Cones
            3) Cornmeal
            4) Velvetta Cheese
            5) Jell-O mix
            6) Pudding Mix
            7) Powder Sugar
            8) Corn Starch
            9) Pancaske Mix
            10) Flour (all-purpose)
            11) Marshmellows
            12) Green Beans
            13) Wheat Germ
            14) Ritz Crackers (Regular & Vegetable)
            15) American Cheese (white and yellow-I don't have the package so I can read it)
            16) Apples
            17) Green Peppers

            Thank You for all your help!
            Kim

            Comment


            • #7
              1) Jasmine Tea (I got this in China, so I have no idea what is in it, I assume just Jasmine Tea) I WOULDN'T TRY IT!
              2) Package Ice Cream Cones PROBABLY OKAY, BUT TRY A LITTLE BIT FIRST.
              3) Cornmeal PROBABLY OKAY
              4) Velvetta Cheese IT'S PROCESSED SO SHOULD BE OKAY
              5) Jell-O mix I WOULDN'T
              6) Pudding Mix NOT A PROBLEM FOR ME
              7) Powder Sugar OKAY UNLESS YOU'RE GOING SUGAR FREE
              8) Corn Starch NOT A PROBLEM FOR ME
              9) Pancaske Mix USUALLY NOT A PROBLEM
              10) Flour (all-purpose) USUALLY OKAY
              11) Marshmellows OKAY UNLESS YOU'RE ON SUGAR RESTRICTION
              12) Green Beans OKAY
              13) Wheat Germ ?????
              14) Ritz Crackers (Regular & Vegetable) I DON'T DO THE VEGETABLE
              15) American Cheese (white and yellow-I don't have the package so I can read it) AMERICAN IS PROCESSED CHEESE SO SHOULD BE OKAY
              16) Apples I CAN HAVE GOLDEN DELICIOUS AND FUJI
              17) Green Peppers USUALLY OKAY

              Hope this helps.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                Thanks Donna! That helps.
                Kim

                Comment


                • #9
                  I’ve done the same thing with food. I’ve put stickers on the IC-safe food, so even if my boyfriend is cooking he knows what I can have. I did the same thing with recipes – I put the IC-safe ones in a special folder. And, as someone else said, it’s a lot easier to open ‘my’ cupboard and not see all his yummy but forbidden goodies like chocolate and tomatoes.
                  Allison

                  Allergies (Claritin)
                  Anemia (iron supplement)
                  Asthma (albuterol inhaler)
                  Bilateral hearing loss (hearing aids)
                  Chronic migraines (amitryptiline, midrin, special diet)
                  Chronic rhinitis and sinusitis
                  Endometriosis – stage IV (lapex surgery done by specialist 3/07; now pain- and symptom-free!)
                  Other treatments tried: surgery, 13 birth controls, Lupron (poison! ), and Depot Provera (the worst thing my body’s ever gone through! )
                  Interstitial Cystitis (Elmiron, Tramadol, Darvocet, IC diet)
                  Knee problems (ballet-related injury – no diagnosis 10 years later)
                  Scoliosis (>10 years of chiropractic treatment – none currently)
                  Seizure (4/03)
                  Surgeries: 6/95 – maxillo-facial surgery to realign jaw; currently have 8 screws in jaw
                  2/06 – laparoscopy with excision of endometriosis and ovarian cyst, appendectomy, hysteroscopy, D&C, removal of uterine polyp
                  3/07 – laparoscopy with excision of endometriosis, hysteroscopy, cystoscopy, hydrodistention, insertion of stent in ureter

                  Comment


                  • #10
                    Wow that sounds like a great idea. I think I might have to try that. I do find when I go shopping for food I tend to forget that my hubby and kids can still eat what they want and have to go back for more stuff.
                    I am 28 and have been married for 7years. I have two boys one is 6 and the other 2. I have worked at the same job for 10 years.

                    Comment


                    • #11
                      When my mom got IC (after me), we printed out the IC diet from the handbook & put it on her fridge. As she tested things out, she wrote "yes" or "no" on the fridge list. My dad that way was able to cook for her without having to pepper her with questions. And he had a list to take to the grocery store for shopping. *Yes, my dad is the grocery shopper & chief chef in their house
                      Kadi

                      -------------------------------------------------------------
                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      ------------------------------------------------------


                      New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
                      Source - Pinterest
                      "


                      Current treatments:
                      -IC diet
                      -Elavil 50mg at night
                      -Continuous use birth control pills (4-5 periods/year)
                      -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
                      -Pyridium if needed,
                      -Pain medicine at bedtime daily, as needed during the day several times per week
                      -Antibiotic when doing an instillation to prevent UTI
                      -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
                      -Dye Free Benadryl 50 mg at bedtime
                      -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
                      -Managing stress= VERY important!
                      -Fur therapy: Hugging the cat!

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