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  • What vitamins can we take...

    I used to always take a multivitamin daily ever since I was diagnosed and read that they would cause a flare I immediately stopped taking them.

    I am now worried about my vitamin deficiencies. What vitamins can I take? And how are we suppose to get our daily amount of Vit C if we can not have it? I am so confused and I am just worried about my health. I am trying to stick to the IC diet, but it really isn't that health conscience.

    Thanks,
    Sue
    Last edited by zanne; 05-11-2007, 11:28 AM.
    Dx with IC April 30 2007
    Dx with Endo Sept 2007
    Supra Cervical Hysterectomy April 9 2009

  • #2
    I am worried about the same things. Our diet is so restrictive it can't be healthy if we stick to it 100%. However, wht I am finding is if I take Prelief I am able to have some of the things that we're not supposed to have. My best suggestion with the vitamins is to ask your doctor. I know I had asked my doctor if I could take calcium pills to help with my not drinking milk or having any milk products. My doctor also has IC and she said that's fine. I see my doctor in a week and I will ask her about any multivitamins that are safe of IC flares if you'd like.
    IC Diagnosed: January 3, 2007
    Pelvic Floor Dysfunction
    Vulvodynia

    Meds:
    Estrostep FE
    Urocit K
    Prelief (as needed)
    Urelle (as needed)
    Darvocet (as needed for pain)
    Singulair (for seasonal allergies affecting the IC)
    Cymbalta (for the pain)

    Have been on and off too many to list because of adverse reactions...

    Comment


    • #3
      HI! I have found that I can take the Whole Food Complete vitamins from the Whole Foods store. It has Vit. C. in it and it's never bothered me....and then I take "Blood Builder" iron pills from the Mega Food. They are cold fusion "foodstate" nutrients. (reg. iron pills cause constipation for me) I have to have my blood checked every 6 mo. now because I've had gastric bypass and all my levels have come back ok for vit.s Good luck. Roxie

      Double Spinal Cord Stimulator surgery 8/09
      Unsuccessful MiniArc sling surgery 12/07
      Dx'd Hypothyroid
      Dx'd Chronic Axonal Neuropathy & Myopathy
      June 2007
      Dx'd IC May 2006 (after suffering for 25+ yrs!)
      First Cysto 1979
      First Hydro 1981 (Many treatments since then!)
      Collagin"Durasphere" injections for urethra
      Gall bladder surgery Aug. 2004
      Gastric Bypass Dec. 2004
      Dx'd: Barrett's Esphogus July 2004
      Dx'd: Vaginal Atrophy 2005
      Bladder surgery 2000
      Dx'd: IBS 2000
      Hysterectomy (fibroids) 1999
      Laminectomy 1989
      Dx'd: Degerative Disk Disorder 1989

      For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
      I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

      Comment


      • #4
        Some ICers find they can tolerate children's vitamins with no problem.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Lord have mercy, no vitamins for me. They cause huge problems.

          Comment


          • #6
            Vitamins

            I have started taking Centrum Chewables. I have trouble swallowing big pills. I know that the Centrum Chewables has the citric acid in them, BUT I had to get on a multi-vitamins regimine because I am thinning out a little on top (can't have that) so I thought taking a vitamin may help. The doctor did blood test to check for Thyroid and Anemia, but those came back OK.

            Kim

            Comment


            • #7
              vitamins when on ic diet

              Hi there,

              I don't take any vitamin pills. Maybe I will try at some time when my IC is stable. For now, I just am very careful with my diet. I asked the dr when I was first diagnosed (he sees a lot of IC patients) about vitamin pills. He told me not to even think of going there at that point.


              For Vitamin C I make sure that everyday I eat vegetables that are high in vitamins C like peppers, broccoli and brussel spouts. I try to use green, red, yellow and orange peppers in as many ways a possible, I cut them in strips to dip raw into mashed ricotta cheese that is thinned with a bit of milk and olive oil. I add dill or oregano plus salt and pepper to this. I also use the same mixture to make tuna or chicken salad and add peppers and celery to it. I put peppers in salad. I add peppers and/or broccoli (sauteed or microwaved) to pasta, pizza or soup. I cut brussel sprouts in half the long way and microwave them in a little bit of water until they are cooked just right - don't over cook them. It takes about 4 min for about 2 cups - but try less to start.

              As far as they rest of my diet goes, I try to eat as widely as the IC diet allows me to & most of time only eat foods that are good nutrition-wise. I do eat potato chips, vanilla ice cream or white chocolate once in a while.

              Take care.

              Kathy

              Comment


              • #8
                HI Kathy! Do you know that peppers are on the BIG no no list for IC? Any night shade foods are bad for ICer's. As is salt and pepper. You also mentioned pizza. Do you put tomato sauce on it?...another no no. You might try eliminating these things and taking a good vitamin instead, I'll bet you'll see a big difference in your IC symptoms. Roxie

                Double Spinal Cord Stimulator surgery 8/09
                Unsuccessful MiniArc sling surgery 12/07
                Dx'd Hypothyroid
                Dx'd Chronic Axonal Neuropathy & Myopathy
                June 2007
                Dx'd IC May 2006 (after suffering for 25+ yrs!)
                First Cysto 1979
                First Hydro 1981 (Many treatments since then!)
                Collagin"Durasphere" injections for urethra
                Gall bladder surgery Aug. 2004
                Gastric Bypass Dec. 2004
                Dx'd: Barrett's Esphogus July 2004
                Dx'd: Vaginal Atrophy 2005
                Bladder surgery 2000
                Dx'd: IBS 2000
                Hysterectomy (fibroids) 1999
                Laminectomy 1989
                Dx'd: Degerative Disk Disorder 1989

                For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                Comment


                • #9
                  I go back to the uro at the end of the month I will have to make up a list of questions for him, one will be about vitamins for sure, this IC diet is really hard to do, I feel I am eating the same thing over and over and I am really getting bored with it. I wish I could just wake up one day and my bladder would be healed and I could go out and eat my favorite dinner of baby back ribs with sweet barbecue sauce. I know that is what I miss the most and also mayonnaise and pizza and I could go on and on about the foods I used to love. But what is wierd is I am watching everything I eat and I am still in pain, so what gives? This IC is sooooo hard to understand, it takes up so much of my time, it is very hard.
                  Sue
                  Dx with IC April 30 2007
                  Dx with Endo Sept 2007
                  Supra Cervical Hysterectomy April 9 2009

                  Comment


                  • #10
                    HI Sue!
                    Yes you are right....it's difficult to live with....but after a while it will become 2nd nature to you...sad to say!
                    I know it's hard to live with out favorite foods. I had gastric bypass 3 yrs ago so I am limited by that......and I have IC and IBS and Barrett's Esphogus....so I'm VERY limited as to what I can eat. It really sux!
                    I hope you get it all figured out soon so you can get on with life.
                    BTW, I can eat Smartbalance Mayo.....not a lot.....but once in a while. Roxie

                    Double Spinal Cord Stimulator surgery 8/09
                    Unsuccessful MiniArc sling surgery 12/07
                    Dx'd Hypothyroid
                    Dx'd Chronic Axonal Neuropathy & Myopathy
                    June 2007
                    Dx'd IC May 2006 (after suffering for 25+ yrs!)
                    First Cysto 1979
                    First Hydro 1981 (Many treatments since then!)
                    Collagin"Durasphere" injections for urethra
                    Gall bladder surgery Aug. 2004
                    Gastric Bypass Dec. 2004
                    Dx'd: Barrett's Esphogus July 2004
                    Dx'd: Vaginal Atrophy 2005
                    Bladder surgery 2000
                    Dx'd: IBS 2000
                    Hysterectomy (fibroids) 1999
                    Laminectomy 1989
                    Dx'd: Degerative Disk Disorder 1989

                    For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                    I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                    Comment


                    • #11
                      I was taking Centrum Chewables for awhile and I stopped it when I got my IC diagnosis. I thought I'd try it one night before bed... yikes! I was up all night (more than I had been the previous nights). I get the same response with chocolate and Tylenol... so I figured those vitamins were a no no for me. I am also looking for a vitamin. I just got a multi-mineral, but I have not taken it yet. It doesn't have any fillers or artifical flavors. Amy posted this on another thread (I hope that it is ok that I put it here!):

                      "All of the vitamins I take are from The Vitamin Shoppe and I use their generic brand. Their stuff is usually free of all the extra fillers that can irritate me. I use their multi-mineral that contains iron. They also make one without iron. I use their A, D, E, and K also---all bought separately. I know for sure it's the B & C vitamins in regular multi-vitamins that hurt me. I also use their brand of aloe vera b/c it's a lot cheaper than the Desert Harvest brand. If you don't live near a Vitamin Shoppe, they have a website.

                      I just bought their brand of buffered vitamin C because its supposed to be an anti-inflammatory. (Buffered vit C is not acidic like regular vit C). I'm going to try it starting tomorrow.

                      I would much rather get all these nutrients through food but IC makes it hard for me to eat fruit of any kind----so I feel like I need to supplement my diet with these vitamins. Who knows, it could be a huge waste of money but I feel like the mult-mineral especially helped me with that sluggish feeling. I've been using it for about 4 months now and I think it has helped."

                      I think I will check out that place (there is one in my mall here). I was trying to find a vitamin containing the fat-soluble vitamins (D,E,A,K) and I'm surprised that nobody makes one.
                      [SIZE="1"][B]Be well, Alyssa :hi:[/B]

                      [

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