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Decaf Tea? Splenda?

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  • Decaf Tea? Splenda?

    I have seen that tea and artifical sweeteners are high on the trigger list for IC flares, especially caffeine is mentioned.

    Has anyone had experience with drinking decaf tea vs reg. caffeined tea? Do you think it is the caffeine in tea or would decaf be better? I am a tea addict and would love to know if any of you has had any experience with this.

    What about splenda? Do any of you notice a difference with Splenda vs other artificial sweeteners, like Sweet n Low, etc?

    It is so hard living with IC when I also have to struggle with weight issues.

    Thank you for your time!
    Happily married and mother of three wonderful sons: 16 year old twins and a fourteen year old.

    Diagnosed August 2000
    Have been in severe flares since February 2005

    [email protected]

  • #2
    Caffeine can be a problem as well as the acid in the tea. Getting the decaf won't help with the acid. I have read that some people have a problem with splenda and some don't. I didn't think I did until I drank a whole lot of mint iced tea one day that had splenda in it. I had to pee every 5 minutes about an hour later. I'm thinking it was the splenda because mint isn't supposed to bother our bladders and the tea was just straight up mint leaves.
    Maybe try some mint tea, it's yummy as iced tea and see how you do w/ the splenda or just use a little real sugar? Good luck!

    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus


    • #3
      I use Splenda with no problem. It's been a life saver for me. Tea, however, is a different story. I can tolerate herbal teas, but the acid in regular tea is too much.

      Stay safe

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      • #4
        I am fine with Splenda. I even bake with it.

        I drink decaf iced tea but I do not boil my water to make it. I put hot water in a pitcher and put the tea bags in that and let it sit until the tea is room temp. I have heard that the acid in tea is released if you put tea bags into boiling water. I do know that the tea tastes bitter if I do that.

        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

        Where I can be found most days.

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        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


        • #5
          I can't tolerate tea no matter how it's prepared, caffeine or not, no tea.
          Splenda gave me one of the worst flares I've had, but some people do fine with it. I think it's definitely a "try and see" individual thing.


          • #6
            I don't like tea so that's not an issue for me but Splenda is one of my only definite triggers. I used to drink a coffee light frappucino every morning from Starbucks and now I notice immediate pain if I drink those. I was told they contain Splenda but am not positive. I have heard Splenda is similar to chlorine so I can see why it would bother some of us. Asparatame seems to be an automatic no for everyone.
            The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC
            First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007; IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation
            Treatments for my IC/PFD: Elmiron 400 mg per day; walking, Zyrtec, Claritin, Singulair, Neurontin 100 mg per day; Ice packs and laying down; About to try Cytotec
            Tried and Failed: Heat (always makes me worse!), Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches (just plain don't work), Cystoprotek (only tried a couple months but didn't seem to do much), Aloe Vera caps, pelvic floor therapy, trigger point work flared me worse, Lyrica (bad stomach pain)
            Other Diagnoses: PFD 2009; Fibromyalgia 2006, Osteopenia 2012, GERD 2006, Gastroparesis (delayed gastric emptying) Anxiety: Other medications: Ambien, Dexilant, Ibuprofren, Necon 1/35, Voltaren gel for tailbone
            BABY GIRL 10/28/08 *** BABY BOY 7/8/11