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I was just diagnosed with IC and have lots of papers telling me what I cannot eat, but that's kind of hard for me to tell what I can eat. Or what kind of dishes I can make from the foods that I can eat. If anyone has any suggestions or recipes that they recommend please let me know!
THANK YOU!!!!!
ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!
Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring
Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure
Meds I have Tried:
Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
Lexapro< Bad reaction to this med!
Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..
Dx With IC in Nov 2006 with Hydro/Cysto
Hydro/Cysto Caused Bladder to Rupture.
Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.
ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
Well, that is pretty much up to you. You will just have to eat what you want one food at a time and you will be able to tell if it gives you pain or not. The little pamphlet you get when you are diagnosed has some indicators of what you can eat as well. I just have some burning pain at urination immediately after having something I should not. But it only last like one or two times, then I don't eat that or drink that anymore. I did a bit of experimenting when I was diagnosed. I can't stand the pain, but at least I am clear on what I can or can't eat/drink now. My absolute worst flares come if I have ANY kind of rasberry flavor. I used to drink that type of tea a lot and after taking elmiron, I thought I would see how it did. Horrible. I can't even have rasberry flavored gum. But some people I know, it doesn't even phase their IC. So it really just depends. But I find for me, almost everything organic is fine. My biggest thing now is coffee, but I gotta have it so I just deal with the pain on that. Good luck. It is not as bad as it seems after you have been on the IC diet for awhile. I think it helps me to eat healthier really.
Mrs. Ridings
I was on...
Loestrin 24(to prevent period induced flares)
Elmiron since Feb.'07 for a year and half
Atenolol for Migraines(caused by elmiron) since June '07(Had to have the amount doubled)
Tried Prevacid didn't work.
Tried Axert for migraines didn't work.
Tried Frova for migraines made worse.
Atarax Feb.'07-Feb'08
Used to take IBS meds of all kinds, now I use Yerba Mate guayaki drinks, eating lots of fiber and flax seed, and taking probiotics and added magnesium. My probiotics help w/ flares too.
Now for the occasional flare related to stress, I take probiotic eleven and marshmallow root and it will make it stop and Im fine again. Otherwise I dont have many problems w/ my severe IC like I used to.Thank God!
Find the good in all things and then
anticipate the good so that you may enjoy it.
(KJV)Psalms 37:
3 Trust in the LORD, and do good; so shalt thou dwell in the land, and verily thou shalt be fed.
4 Delight thyself also in the LORD: and he shall give thee the desires of thine heart.
5 Commit thy way unto the LORD; trust also in him; and he shall bring it to pass.
HI! I can eat most meats....just plain tho with no spices. Condiments usually cause me to have a painful bladder. I can eat french fries or mashed potatos.....no peppers. I can eat Mexican food......just not the spicy stuff. I can't eat any Italian food Once in a while I can handle garlic bread. The only drink I can handle is water. I can eat a little milk on cereal (and I can eat granola cereal as long as it doesn't have cranberries in it) I can eat pears, watermelon, apples and grapes for fruit. For veggies I can eat celery, carrots, cucumbers, lettuce, green beans, peas, beans and cooked cabbage. Onions and peppers kill me! I can eat most ice creams, but popcicles have citric acid in them so they are a no-no foods. You have to be a label reader. If something has citric or absorbic acid....usually that's a no-no food. Start out slow and try foods......if they bother you, you'll know with in a day. I hardly ever eat the same food 2 nights in a row..exp. if they are foods I'm not sure of. It's trial and error in the begining......good luck! Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:
I know it's overwhelming at first but it seems like most people only have a reaction to about 1/4 or half of the foods. So the diet is a guide and it will take time for you to experiment. I have been suffering since mid-April and still am not 100% certain on what is a safe food. I have only noticed definite reactions to red food dyes and artificial sweetners. I also have problems with coffee and soda on some days and some days I don't! I was starting to think there was no diet connection for me and now my dr is not even sure I have IC so it's confusing. I am just trying to eat less processed stuff in general. Also someone else here recently mentioned that drinks seem to bother them more than solid foods which I also think is true for me. Hang in there -it gets easier but I know how emotional it is when you are first diagnosed. What kind of treatment are you receiving besides the diet? What type of symptoms do you have?
The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC
First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007; IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation
Treatments for my IC/PFD: Elmiron 400 mg per day; walking, Zyrtec, Claritin, Singulair, Neurontin 100 mg per day; Ice packs and laying down; About to try Cytotec
Tried and Failed: Heat (always makes me worse!), Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches (just plain don't work), Cystoprotek (only tried a couple months but didn't seem to do much), Aloe Vera caps, pelvic floor therapy, trigger point work flared me worse, Lyrica (bad stomach pain)
Other Diagnoses: PFD 2009; Fibromyalgia 2006, Osteopenia 2012, GERD 2006, Gastroparesis (delayed gastric emptying) Anxiety: Other medications: Ambien, Dexilant, Ibuprofren, Necon 1/35, Voltaren gel for tailbone
BABY GIRL 10/28/08 *** BABY BOY 7/8/11
BECKY
Once in a while I can handle garlic bread. The only drink I can handle is water. I can eat a little milk on cereal (and I can eat granola cereal as long as it doesn't have cranberries in it) I can eat pears, watermelon, apples and grapes for fruit. For veggies I can eat celery, carrots, cucumbers, lettuce, green beans, peas, beans and cooked cabbage. Onions and peppers kill me! I can eat most ice creams, but popcicles have citric acid in them so they are a no-no foods. You have to be a label reader. If something has citric or absorbic acid....usually that's a no-no food. Start out slow and try foods......if they bother you, you'll know with in a day. I hardly ever eat the same food 2 nights in a row..exp. if they are foods I'm not sure of. It's trial and error in the begining......good luck! Roxie
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