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I'm just going to have to starve!

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  • I'm just going to have to starve!

    My doctor is pretty sure that I have IC, but I haven't officially been diagnosed yet. My first step is to do an elimation diet. But... along with severe migraines limiting my diet, (no nitrates, sulphates, msg, chocolate, caffeine...) I have to now add citris fruit, which is ALL I could eat and enjoy. I was doing okay as long as I had tomatoes and fruit, and now I can't have that. I made cashew butter to replace the peanut butter, and I can eat cereal, but what about dinner? I have a family to cook for too, so it's difficult to figure out what to make that they'll enjoy and won't make me sick.

    Does anyone have any secret tips that will help my family from starvation?!

    Thank you all!
    Rachael

  • #2
    If you look at the diet section of the Patient Handbook and concentrate on the foods that are usually okay, you'll find there are many foods you can eat. I don't always serve myself and my family the same thing --- sometimes I take my serving out before I add anything that might be an irritant for me. For example, when I cook spaghetti, I remove mine before adding the tomato sauce, then just add some processed cheese and butter to mine.

    If I order a pizza, I order it without red sauce. There are lots of ways to get around it.

    Hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      In addition to the Patient Handbook Donna mentioned, there is a book called "Confident Choices"--it's written for us by a dietician who is also an IC patient. It's got recipes, meal plans & guidelines. I highly recommend it, you can get it in the ICN shop linked at the top of the page.

      Diet is one of the most effective strategies we have to manage IC. None of my medicines are worth anything if I am eating "trigger foods".

      Hang in there,
      Kadi

      -------------------------------------------------------------
      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      ------------------------------------------------------


      New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
      Source - Pinterest
      "


      Current treatments:
      -IC diet
      -Elavil 50mg at night
      -Continuous use birth control pills (4-5 periods/year)
      -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
      -Pyridium if needed,
      -Pain medicine at bedtime daily, as needed during the day several times per week
      -Antibiotic when doing an instillation to prevent UTI
      -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
      -Dye Free Benadryl 50 mg at bedtime
      -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
      -Managing stress= VERY important!
      -Fur therapy: Hugging the cat!

      Comment


      • #4
        you can also buy prelief and take it before you eat the no no foods. Not all of us are the same with trigger foods. I tolerate coffee well where others do not.
        'The will of God will never take you where the Grace of God will not protect you.'

        Comment


        • #5
          I have to agree w/ Tig, so many people are so different with IC. I have no problems with a lot of foods that would kill someone else with IC. I've had iced coffee drinks from dunkin donuts a couple of times and no problems, I can eat ketcup. I'm really can get away with a lot and just try to take it easy when I'm already flaring.
          Christine



          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
          I have tried every oral medication as well as rescue instills and DMSO.

          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
          Also proud mom to the best Bullmastiff on earth, Claus

          Comment


          • #6
            Migrane triggers

            I used to get migranes a lot, now I don't but I seem to recall that my doctor told me to stay away from Citrus Fruit, that it could cause Migranes. I've been eating a lot of Blueberries and Pears. Do you like those fruits? How about carrots? My children love those fruits too.

            Comment


            • #7
              Pears & blueberries (in small amounts only for the blueberries) are fine for me. I also eat dates & brown raisins. Carrots are fine for me too
              Kadi

              -------------------------------------------------------------
              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              ------------------------------------------------------


              New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
              Source - Pinterest
              "


              Current treatments:
              -IC diet
              -Elavil 50mg at night
              -Continuous use birth control pills (4-5 periods/year)
              -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
              -Pyridium if needed,
              -Pain medicine at bedtime daily, as needed during the day several times per week
              -Antibiotic when doing an instillation to prevent UTI
              -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
              -Dye Free Benadryl 50 mg at bedtime
              -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
              -Managing stress= VERY important!
              -Fur therapy: Hugging the cat!

              Comment

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