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Hi, So what do IC patients really think of Marshmallow Root Tea? I am ready to try it.
Thanks everyone.
Diagnosed with IC in September 2010, after suffering from chronic UTI's. I suffer from pretty bad insomnia as well.
Prosed in the beginning of diagnosis. Cysta- Q helped heal my bladder.
Amitriptyline (discontinued now, but was very very helpful), and Macrobid to maintain pain relief and get some sleep. Prelief and Marshmallow Root capsules/ or tea leaves, daily to maintain pain relief.
Lyrica and Pristiq to maintain bladder urgency and help with nerve pain and sleep.
IC diet is my life now. Stress reduction is a MUST to survive this illness.
Some feel it helps, but it's a diuretic and I'm already taking a diuretic for blood pressure so not for me. I really don't like taking diuretics, but it seems to be the only way to keep my BP at an acceptable level. I just stay at home most mornings so it will have a chance to get somewhat out of my system.
Donna
Stay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool
Some people love it and it really helps them. I'm not so much of a fan. Not because it doesn't help me, I never got that far. The taste is just a total turn off for me. BUT, I'm going to try it again because Jill and IMOM (lOl) swear by it. I just haven't gotten up my nerve yet. And my last box went in the garbage. But, remember, that's me!! You may really like it and it could help your IC problems alot. It's worth a try. And maye a 2nd try!!
Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
Lexapro-20 mg
Aciphex
Ambien-as needed
Percocet-7.5 up to 3 per day as needed
Valium-10 mg x2 per day
Phenergan-1 at night
Prelief w/everything
Now recovering from acute pancreatitis
Currents treatments that help somewhat:
Heating pad
Hot baths
Ice
Being VERY still while lying down with legs elevated
I throw a bag of it in with my peppermint and chamomile tea every day but honestly not sure it does much for me. Like other supplements I keep taking it in the hopes its doing something for me!
Cindi
Gelnique for frequency/urgency - works great
Macrobid after sex
Prilosec, continuous birth control pills
synthroid .088mg, mucinex-d, restasis
Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil
Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.
Bob loves it, we buy it bulk, just got 15 lbs of the stuff. We cram it in an electric percolator we just got for that it perks it within minutes. I will usually leave half of the brewed junk and add more fresh for the next batch. (It is a little slimey but apparently that is the good stuff, or so they say). A touch of honey and cream and it's not bad. Also may try a cinnamon stick in there or a vanilla bean. Bob does find it very soothing, whether it actually helps or not who knows, but it makes him feel better. Jill, wife of Bob
I liked it, I feel it helped me. Start with just a small amount and work your way up (very important) I too, added honey. It's worth a try.
Good luck, and let us know.
Minds are like parachutes-they ony function when they are open.
-Thomas DeWar-
ICN Newbie Volunteer
*ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
I love Marshmellow Root tea! I get it at the health food store in loose leaf form along with peppermint tea leaves. I mix it in a tea ball half and half and drink it straight. It is refreshing and it does have a duretic effect which I happen to like because I tend to hold fluid and I'm always in the bathroom anyway so what to heck I may as well have somthing to void. I think of it like a natural instant elmiron. I hate taking medication so this is a fantastic option for me. I hope you get the relief I do from it. I found it worked straight away but I have to wonder because I started taking it about two weeks after hydrodistention so maybe it's a coincidence but I intend on keeping it up. I keep it at work and at home and like to have one or two cups a day.
Good luck I think it's a God send!
Cindy-Lou
P.S. It is slimey to touch (but not in your mouth) so you can see how it would immediately help sooth the bladder.
smilesplease - On another topic but I saw that you have insomnia. Have you tried melatonin to help with your insomnia? Just thought I'd mention it as it helps me sleep through the night. I neve have problems falling asleep though it helps with that too, my problem is when I wake up around 3 or 4am to go to the bathroom I often have a really hard time falling back asleep. Its much easier when I consistently take melatonin before bedtime. It gives me really vivid dreams but I kinda like that since they aren't bad dreams.
My doctor even has me give it to my 12 year old on Sunday nights as she will often lay awake until midnight and end up in tears because she can't fall asleep. Since giving her melatonin that problem is totally gone.
Cindi
Gelnique for frequency/urgency - works great
Macrobid after sex
Prilosec, continuous birth control pills
synthroid .088mg, mucinex-d, restasis
Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil
Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.
Thank you to everyone. This is good news to me. I bought some marshmallow root tea and peppermint tea and will try it as soon as I get over this UTI, I have right now. I am excited to try it. I will update you after a week or so of trying it. Yes, I have tried melotonin and it worked for a while, but then I was waking up after 4 hours of sleep and couldn't get another wink in. I may try it again soon to see if it helps some more.
You guys are so wonderful to have as a support group!
Diagnosed with IC in September 2010, after suffering from chronic UTI's. I suffer from pretty bad insomnia as well.
Prosed in the beginning of diagnosis. Cysta- Q helped heal my bladder.
Amitriptyline (discontinued now, but was very very helpful), and Macrobid to maintain pain relief and get some sleep. Prelief and Marshmallow Root capsules/ or tea leaves, daily to maintain pain relief.
Lyrica and Pristiq to maintain bladder urgency and help with nerve pain and sleep.
IC diet is my life now. Stress reduction is a MUST to survive this illness.
Yes, I have tried melotonin and it worked for a while, but then I was waking up after 4 hours of sleep and couldn't get another wink in.
That does happen to me sometimes too so now I keep a bag of halves by my bed and if I still have another four hours to sleep then I take a half instead of lying awake for 2 hours before falling back to sleep! Well anyways, worth a shot.
Actually since I started taking vesicare it is making me tired enough I haven't needed it. I don't feel groggy or anything, just sleeping better.
Also, chamomile tea is thought to help you sleep better and I have to admit sometimes I drink a cup of it mixed with something else while watching tv and I'll practically fall asleep on the couch at 9 at night.
Cindi
Gelnique for frequency/urgency - works great
Macrobid after sex
Prilosec, continuous birth control pills
synthroid .088mg, mucinex-d, restasis
Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil
Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.
I'm glad you found something to help. I hope you are in less pain now.
Take care.
Diagnosed with IC in September 2010, after suffering from chronic UTI's. I suffer from pretty bad insomnia as well.
Prosed in the beginning of diagnosis. Cysta- Q helped heal my bladder.
Amitriptyline (discontinued now, but was very very helpful), and Macrobid to maintain pain relief and get some sleep. Prelief and Marshmallow Root capsules/ or tea leaves, daily to maintain pain relief.
Lyrica and Pristiq to maintain bladder urgency and help with nerve pain and sleep.
IC diet is my life now. Stress reduction is a MUST to survive this illness.
Some people love it and it really helps them. I'm not so much of a fan. Not because it doesn't help me, I never got that far. The taste is just a total turn off for me. BUT, I'm going to try it again because Jill and IMOM (lOl) swear by it. I just haven't gotten up my nerve yet. And my last box went in the garbage. But, remember, that's me!! You may really like it and it could help your IC problems alot. It's worth a try. And maye a 2nd try!!
Who is IMOM? Where do you get marmallow root tea? Asian grocery stores? Herbal place?
In memory of my beloved best friend in the whole world! Timmy (West Highland White Terrier)
11/24/04-9/5/2011
You can usually find it at health food stores but I usually order mine on-line through amazon. Just make sure to mix it with another "good" tea as its pretty nasty by itself.
Cindi
Gelnique for frequency/urgency - works great
Macrobid after sex
Prilosec, continuous birth control pills
synthroid .088mg, mucinex-d, restasis
Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil
Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.
I tried the capsules and it didn't seem to do much for me, so I'm wondering if there is a difference between the capsules and the tea. Has anyone tried both and noticed anything?
There's marshmallow root in the Throat Coat tea I drink (which also contains licorice root) and that seems to help me immensely when I do have a flare.
Don't take my word, be your own health care advocate. Research everything and make an educated decision on what treatments you think are right for you.
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Anyone who has never made a mistake has never tried anything new.
- Albert Einstein
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