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Ok Finally starting the IC diet for real this time need some advice

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  • #1

    Ok Finally starting the IC diet for real this time need some advice

    I have been thinking that I have been in denial all this time. that eliminating foods would not help my symptoms. I realized last night that Im very addicted to spicy foods and citrus fruits and i have been since i was a child. I dont really want to give them up but my IC has gotten progressively worst and I dont want to be in so much pain anymore. this is going to be hard. There are studies that show that certain foods that certain individuals eat can release endorphins for them. maybe this is me trying to cope with my depression cause eating these foods makes me feel so good and Im already sad thinking that I cant have them anymore or a very long time. For those of u that IC diet.

    1) how long to try before giving up. I read in the book the women's encyclopedia of women's health by tori hudson ND,to give it two weeks. i read different info all around the web. even as little as 3-7 days so idk

    2) when do u start adding foods back in from the "maybe safe" list or caution list to ur diet?

    3) any stories of people who thought that they wouldnt be IC sensitive but were? (my urgency and pelvic pain are worsening)

    4) I dont know if i should get any of the cookbooks or try the online recipes only first. no offense I think the cookbooks are great resources but since Im poor and dont know if the IC diet will work for me. Im not sure if I should hold off on that.
    Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

    I have moderate-severe IC

    Currently stopped taking all medications due to pregnancy
    Tags: None
  • #2
    1) how long to try before giving up. I read in the book the women's encyclopedia of women's health by tori hudson ND,to give it two weeks. i read different info all around the web. even as little as 3-7 days so idk

    I WOULD GIVE IT AT LEAST TWO MONTHS.

    2) when do u start adding foods back in from the "maybe safe" list or caution list to ur diet?

    WHEN YOU FEEL GOOD.

    3) any stories of people who thought that they wouldnt be IC sensitive but were? (my urgency and pelvic pain are worsening)

    I HONESTLY DON'T KNOW OF ANYONE WITH DIAGNOSED IC WHO DOESN'T HAVE AT LEAST A FEW FOOD SENSITIVITIES.

    4) I dont know if i should get any of the cookbooks or try the online recipes only first. no offense I think the cookbooks are great resources but since Im poor and dont know if the IC diet will work for me. Im not sure if I should hold off on that.

    THERE'S A RECIPE SECTION ON THE IC NETWORK SITE. THERE ARE LOTS OF GOOD RECIPES THERE TO TRY. AND THE FOOD LIST IS PRINTABLE SO YOU CAN HAVE A FOOD GUIDE AT NO COST.


    Good luck with the diet!

    Warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment

    • #3
      thanks
      Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

      I have moderate-severe IC

      Currently stopped taking all medications due to pregnancy

      Comment

      • #4
        Hi
        Just want to give you some moral support. I was right where you are at, finally only seriously started it a few weeks ago when my UG handed me a list of all the foods to cut out. His instructions are a little easier in that you go through and circle the foods on the list that you already eating and you cut those out for 3 weeks. After that period you try adding in the eliminated foods one at a time to see if symptoms are worse. I'm not suggesting his elimination is better then the one here its just a little less overwhelming.

        Not every food is bad for every person and there might be some you can still eat, though citrus I think is a tough one for most people.

        I have mild IC and I have to admit I am surprised how much the diet does effect me but its not all the foods but a select few. I am finding beverages are my worst offenders maybe because they go straight into the bladder for the most part. I was drinking alot of flavored water and even that really bothered me. After that citrus, tomatoes, yogurt of all things and a few others.

        So good luck and I think you will be hopefully pleasantly surprised and start feeling a little better.
        Cindi


        Gelnique for frequency/urgency - works great
        Macrobid after sex
        Prilosec, continuous birth control pills
        synthroid .088mg, mucinex-d, restasis

        Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

        Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

        IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
        AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
        AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
        Great treatment flowchart on page 19 of the pdf

        Comment

        • #5
          I agree with donna, for myself I am still to afraid to try the try it list.
          I wish you all the best keep us posted.
          <center>
          <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
          </center>

          Comment

          • #6
            CMCLien: Im glad that u are able to find ur triggers. Im pretty sure mine are probaly citrus fruits and spices I also love pickles. I dont drink, cofee, tea, or alcohol. and thanks for the other elimination method ur dr suggested, thats another option for me to try.

            LindaMay- If this does work I probaly wont try the caution foods for along time. I hope elmiron works. but if i just have to have it or have no other option I will limit my portions and take prelief
            Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

            I have moderate-severe IC

            Currently stopped taking all medications due to pregnancy

            Comment

            • #7
              I hope and pray all works out for you, keep in touch and let us know how things went with your precedure.
              <center>
              <a href="http://s1086.photobucket.com/albums/j441/linda5552/?action=view&amp;current=Picture005.jpg" target="_blank"><img src="http://i1086.photobucket.com/albums/j441/linda5552/th_Picture005.jpg" border="0" alt="Photobucket" ></a>
              </center>

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              • #8
                I have been having leg cramps and my doc. wants me to add pottassium. I have always avoided this as, but I see others use it. Has anyone had a problem with pottassium tablets and if not,how many mgs do you use?

                Comment

                • #9
                  When I took a prescription potassium supplement it was 20 meq per day.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                   [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment

                  • #10
                    What is the difference between a prescription potassium and one over the counter? I guess I could ask the pharmacist. Did you use it for leg cramps over something else.

                    Comment

                    • #11
                      For me the prescription was very inexpensive, plus I felt it was a more accurate dosage. I took it because a pre-surgery blood test diagnosed a very low level of this essential nutrient --- I was given IV potassium before my surgeon felt it was safe to proceed with the surgery. I had been having leg pain, but didn't know why.

                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                       [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment

                      • #12
                        I will try the potassium and hope it doesn't cause my bladder trouble. I know bananas are on the avoid list. Leg cramps are also painful so let's hope for the best. Donna, thanks for the information.

                        Comment

                        • #13
                          Originally posted by needsrelief View Post
                          I have been thinking that I have been in denial all this time. that eliminating foods would not help my symptoms.
                          I'm in denial too. Well, Idk for sure if I have IC, but my bladder sure as hell hurts. I'm still drinking coffee, and cursing myself as I do. I think that's a good thing...I'm looking at my coffee cup as something evil now, and that will help me get off the caffeine. And wow, it hurts when I do drink it! I've got to be more careful w/what I eat and drink; I can tell the next morning after tomato sauce, for ex.

                          Seeing ob today, finally, after 2 reschedules bc of snow.

                          Needsrelief, best of luck and keep us posted!
                          --Josie

                          Comment

                          • #14
                            Try KAVA. It has less acid so your bladder may tolerate it better. I had to buy it online, just type in KAVA and it will take you to their web site.

                            Comment

                            • #15
                              Originally posted by Sharyn View Post
                              Try KAVA. It has less acid so your bladder may tolerate it better. I had to buy it online, just type in KAVA and it will take you to their web site.
                              Was this for me? KAVA looks like a tea, is that right?
                              --Josie

                              Comment

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