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  • Caffeine, no-doz?

    Ok, I have to admit I am kinda pathetic and am really suffering without caffeine now that I have finally given up coffee. It has been 5 days and my headache withdrawal is gone but I miss how I feel with the caffeine. I read once caffeine gives you a sense of euphoria and I thought what the heck? But now that its gone it definitely gave me a sense of well being that I don't have anymore without it! boo hoo whine whine whine.

    So is it the caffeine thats an issue or just the foods that have it. I am wondering about no-doz. Haven't taken one of those since my college days.
    I printed out a list of drinks with caffeine and it seems like its not really the caffeine (correct me if I'm wrong) but the acid.
    For instance here are a few:

    Brewed coffee 8oz has 60-120mg
    decaf coffee 1-2mg
    black tea 45mg
    green tea 20mg
    white tea 15mg
    coca cola or pepsi 35mg
    chocolate milk 4mg
    dark chocolate 20mg per oz
    milk chocolate 6mg per oz

    These are items on the caution list with varying degrees of caffeine.
    Have any of you taken a caffeine pill without a flare? I know kinda sad but I gotta ask.
    Cindi


    Gelnique for frequency/urgency - works great
    Macrobid after sex
    Prilosec, continuous birth control pills
    synthroid .088mg, mucinex-d, restasis

    Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

    Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

    IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
    AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
    AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
    Great treatment flowchart on page 19 of the pdf

  • #2
    I buy low acid coffee and have a cup every morning --- and it does have caffeine. The brand I buy is Trader Joe's. If I have any coffee later in the day, it's Pureroast decaf.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      I can't do any caffieine at all.
      Jolene

      "Life is what happens when you are making other plans" John Lennon

      IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

      Information for Patients can be found here.
      http://www.ic-network.com/patientlinks.html


      Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




      Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

      "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

      Comment


      • #4
        Note from ICNDonna: Be sure to ask your physician before trying this.


        You might try a natural product called L-Tyrosine. Some people use it as a pick-me-up instead of coffee. It acts as a mild stimulant and boosts your dopamine levels, which makes you feel good! It might also help curb food cravings.

        My functional medicine doctor (he's an MD) suggested one capsule in the morning and another at lunchtime. If you take it after that it might keep you hyped up and awake at night.

        I have not had it bother my bladder, although I suggest trying everything new with caution.
        History: IC diagnosis in 1995, then 10+ years remission, flared up again in 2009, now well controlled

        Medications: Elmiron, Nortriptyline, Hyophen, Singulair, Zyrtec, Tizanidine, Prelief, Flector, Vicodin, Valium suppositories, quercetin, glucosamine, probiotics

        Self Care: Meditation, massage, acupuncture, dancing, walking, stretching, avoiding triggers, staying positive and spending time with my amazingly supportive fiancé

        Comment


        • #5
          I think I would try Donna's approach drinking one cup of low acid coffee before I would take no-doz. There is actually some research being done right now (I don't know if I can say who or where yet) where they actually used No-Doz as the caffeine source. I don't know much about the study except that the IC patient I talked to had a terrible flare for a couple of weeks. Hopefully, this study will come out soon!
          Julie Beyer, MA, RDN
          IC Dietitian, Patient Advocate, Speaker, & Author


          Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

          Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

          You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

          ........ ........


          Other IC Diet Resources:

          IC Diet Webinar
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          For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
          Free IC Diet Booklet: What Can I Eat?
          Confident Choices IC Diet Blog
          IC Diet Newsletter


          *Let's Connect!*

          Comment


          • #6
            Good idea

            Originally posted by Julie B View Post
            I think I would try Donna's approach drinking one cup of low acid coffee before I would take no-doz. There is actually some research being done right now (I don't know if I can say who or where yet) where they actually used No-Doz as the caffeine source. I don't know much about the study except that the IC patient I talked to had a terrible flare for a couple of weeks. Hopefully, this study will come out soon!
            I'll wait to see about that study. Have ordered a different kind of low acid coffee. I have been drinking another brand so thought I'd try a different kind to compare them. I have been taking 3 prelief with my mug of low acid half caf coffee. Decided it was worth a little discomfort to have my little bit of caffeine in the morning.
            Cindi


            Gelnique for frequency/urgency - works great
            Macrobid after sex
            Prilosec, continuous birth control pills
            synthroid .088mg, mucinex-d, restasis

            Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

            Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

            IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
            AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
            AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
            Great treatment flowchart on page 19 of the pdf

            Comment


            • #7
              Low Acid Coffe

              I have just suffered a relapse and am now back on "the diet". I pulled out my old Toddy Maker. I order coffee from a local roaster in my area and they have a couple varieties which are low acid. Before my recent flare, their low acid coffee didn't bother me. Now to be on the safe side I have made up some Toddy Concentrate using the low acid coffee and I am happily drinking coffee in the morning. I don't know if I can post the name of this coffee company or if it would be like free advertising. If it is okay to post this (moderator please let me know) I will follow up with their name and website plus the name of their low acid varieties. By the way the coffee I am drinking is not decaf. You may want to try a Toddy Maker with low acid coffee and see if that helps.
              Last edited by heidiho; 02-26-2011, 12:18 AM.

              Comment


              • #8
                Hi, Sorry for my ignorance but what is a toddy maker?
                Cindi


                Gelnique for frequency/urgency - works great
                Macrobid after sex
                Prilosec, continuous birth control pills
                synthroid .088mg, mucinex-d, restasis

                Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

                Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

                IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
                AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
                AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
                Great treatment flowchart on page 19 of the pdf

                Comment


                • #9
                  If you go to http://www.icnsales.com/coffee-low-a...omild_puroast/ and scroll down, you'll find a picture of a toddy maker.


                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment


                  • #10
                    Originally posted by ICNDonna View Post
                    If you go to http://www.icnsales.com/coffee-low-a...omild_puroast/ and scroll down, you'll find a picture of a toddy maker.


                    Donna
                    I had never heard of such a thing!
                    Does that mean it takes 67% more acid out of the already 50% reduced acid coffee like puroast? If so, it might be worth it for me to try. I'm drinking the puroast but still am taking 2 prelief and 2 magnesium citrates with it which works but any method of reducing it further would be beneficial.
                    Cindi


                    Gelnique for frequency/urgency - works great
                    Macrobid after sex
                    Prilosec, continuous birth control pills
                    synthroid .088mg, mucinex-d, restasis

                    Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

                    Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

                    IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
                    AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
                    AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
                    Great treatment flowchart on page 19 of the pdf

                    Comment


                    • #11
                      Toddy maker coffee has less acid because it is cold brewed; you add the concentrate to hot water, but it's still lower in acid.

                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment


                      • #12
                        I just had my second cup of Toddy/low acid coffee. So far so good...we'll see in a while if I'm still smiling.

                        Comment

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