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No-sugars diet; D-Mannose is a sugar?

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  • No-sugars diet; D-Mannose is a sugar?

    The traditional Chinese medicine doctor I've been seeing (actually I think he's both western & eastern) has told me a bunch of dietary restrictions, mostly the same as the main IC diet restrictions with the addition that I'm to stay away from cheese and stay away from sugar.
    I'm thinking about trying D-Mannose. Reading up on it, it sounds like it's a sugar. What kind of form of sugar is it though, like does the body recognize it as a sugar?
    Severe IC developed fairly quickly, autumn 2010.
    So severe that I was bed-bound & on 160mg/day morphine to cope with torturous pain levels, and unable to function other than hospital/medical appointments, for seven months. Then, miracle of miracles, something started working. I am steadily lowering the methadone dose level. I have been far out of that desperate nightmare hell zone for several months now and continue to improve.

    - Ranitidine (anti-histamine, H2-inhibitor) 300mg/day
    - Methadone 9 ml/day
    - Instillations:
    - 40ml Kenalog (steroid for inflammation) 2 x per
    week, along with rescue cocktail of heparin,
    lidocaine, sodium bicarbonate
    - 20ml Uracyst, monthly @ $100/per
    - Depo lupron injections for endometriosis, monthly @ $88/per

  • #2
    Not sure what that is but I do know that sucrose (simple sugar) can irritate things. I am fructose intolerant so I use dextrose instead of sucrose for all my sugar. It has helped with my IC symptoms also. There is a couple of books that talk about sugar and their relation to IC. I believe it is talked about in the better bladder book and to wake in tears.
    Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

    Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

    Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).