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having a hard time

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  • having a hard time

    I'm having a hard time figuring out what I can eat and what I can't. I am new to this, but it seems as if everything I try makes me hurt. If anyone has any suggestions I would greatly appreciate it.
    Melissa Barham

    currently taking Elmiron 100mg 3x daily
    currently taking Klonipin 1mg as needed for nerves and stress
    currently taking Ditropan XL 10mg (Oxbutynin ER) once a day for ugency and frequency.

    trying Aloe Vera Juice just a little mixed with water

    I am on my 3rd uro. The 1st I went to cause of an UTI it was clear in the culture by the next month, but I was still having issues so he continued me on macordantin (sp.) and urised for about a year and I just seemed to get worse. My 2nd uro said he thought I had an OAB and tried me on meds for that. Everytime I went to him he would dialate my uretha and he also did a hydro (streched my bladder) and supposely removed scar tissue from my bladder and urethea and said my bladder was inflammed. But he said I didn't have enought pain to have IC. I tried many OAB meds and nothing seems to help I was in the bathroom atleast once an hour if not more. I suffered for a while. Now I am on my 3rd uro. The 1st visit we talked and he instantly said I had IC. He checked me and did an ultrasound of my bladder and order a cat scan and put me on Elmiron. I am currently waiting for the results of the cat scan.

    A little about me that doesn't have to do with this is I am a stay at home mother of two kids and I have a very loving and supportive husband.

  • #2
    The food list at the link in my signature below should help. It's printable.

    Stay safe

    Elmiron Eye Disease Information Center -
    Elmiron Eye Disease Fact Sheet (Downloadable) -

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help:


    Diet list:

    AUA Guidelines:

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool


    • #3
      Melissa, keep sticking to the Bladder Friendly list because eventually it will help. Remember, so many other things can cause flares including sexual activity, stress, and exercise. You could be confusing some other source of a flare with food and I would hate to see you avoid foods that you don't have to.

      Also, give your meds (if you are taking them) time to work...

      Hang in is SO worth it in the long run!
      Julie Beyer, MA, RDN
      IC Dietitian, Patient Advocate, Speaker, & Author

      Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

      Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

      You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

      ........ ........

      Other IC Diet Resources:

      IC Diet Webinar
      IC Diet Website
      For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
      Free IC Diet Booklet: What Can I Eat?
      Confident Choices IC Diet Blog
      IC Diet Newsletter

      *Let's Connect!*


      • #4
        Hi Melissa~
        The IC friendly list is great, however be careful when purchasing what you think to be friendly from your super market, read all lables and take your IC Caution list with you to be sure you don't buy unfriendly foods, many brands have different ingredients and it may take awhile before you find one that's friendly for you. I canned foods for my Mother for almost a year. Cooking without problem ingredients is the safest way to go if you can. Carolyn