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  • Gluten Free?

    I recently learned that I have delayed allergic reactions to gluten, egg whites, some dairy products, and some other miscellaneous foods. I recently started a gluten-dairy-egg-free diet and have been advised by my doctor to do so for 2 months, and then test each food one at a time to see what happens. I'm curious if anyone else had luck with their IC symptoms by eliminating any or all of these foods. I've only been on the diet a few days but feel less tired than I usually do.

  • #2
    Hi there,

    I recently discovered (6/3) that I'm allergic to dairy. I'm attempting to put together a dining plan--I didn't realize dairy products are in MANY things. I'll keep you posted on my progress, and keep us posted on yours!
    March 2011-Symptoms began
    May 2011-Tentative diagnosis by OB/GYN
    October 2011-Confirmed diagnosis -- IC/PFD

    Current treatments:
    Elmiron- 300 mg (Began 12/11)
    Hydroxyzine- 50-75 mg (Began 7/11)
    Tizabidine- 2mg 3xTID, if needed (Began 12/11)
    IC Diet-Began 5/11
    Pelvic Floor Therapy-Began 12/11

    Current Supplements:
    Cystoprotek
    Magnesium
    Fish Oil
    Biotin

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    • #3
      Have either of you worked with a dietitian to help with your meal planning? It is often a great idea when you have multiple food sensitivities. Check out www.eatright.org to find someone in your area. :-)
      Julie Beyer, MA, RDN
      IC Dietitian, Patient Advocate, Speaker, & Author


      Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

      Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

      You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

      ........ ........


      Other IC Diet Resources:

      IC Diet Webinar
      IC Diet Website
      For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
      Free IC Diet Booklet: What Can I Eat?
      Confident Choices IC Diet Blog
      IC Diet Newsletter


      *Let's Connect!*

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      • #4
        In addition to following the IC diet, I also don't eat gluten or cow's milk.

        I always kinda knew that I was lactose-intolerant, but I would still have it. Finally, I gave up cow's milk products two years ago and noticed a difference in how I felt within a week.

        Last fall, I went gluten-free as well. That change made a huge difference for me. I always used to feel bloated after eating, had other IBS symptoms and, consequently, lots of flares. Now I just feel full with no pain. I miss having bread still, but not having all of the pain/flares is totally worth it! I also noticed that my complexion got better and I have more energy in general.

        I actually have a recipe blog (see link in my signature below) that might have some helpful ideas on what to eat. I do eat eggs though, so unfortunately, you would have to adjust any of the baking recipes.

        Good luck in transitioning into your new diet!
        Me: Canadian. 31.

        IC symptoms: Cramping, burning, frequency. Pain!

        Pain management: Ibuprofen. AZO. Marijuana. Prelief. The IC Diet.

        My IC-safe, Gluten-free, Lactose-free food blog:
        Good for Your Guts

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