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  • coconut water

    Can anyone drink that new coconut water that's popular now? I know coconuts are ok, but am wondering if any preservatives are bothersome?
    I just started a IC diet/low-oxalate diet blog! http://jennysicparty.blogspot.com/

  • #2
    Jenny, I would be interested in hearing people's response to this as well. I don't happen to like coconut. :-/ But if it is something I can recommend, that would be great!
    Julie Beyer, MA, RDN
    IC Dietitian, Patient Advocate, Speaker, & Author


    Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

    Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

    You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

    ........ ........


    Other IC Diet Resources:

    IC Diet Webinar
    IC Diet Website
    For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
    Free IC Diet Booklet: What Can I Eat?
    Confident Choices IC Diet Blog
    IC Diet Newsletter


    *Let's Connect!*

    Comment


    • #3
      I LOVE coconut and looked at the coconut water --- it's horribly expensive so I didn't buy any to try.


      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Sounds yummy! I would like to try it as well. Maybe I could convince myself it's a pina colada, LOL!
        Conditions:
        IBS 4/04; IC 8/05; Vitamin B-12 Deficiency 7/06; Asthma 9/06; Citrus, MSG, Sulfate/Sulfite, Nitrate/Nitrite, Sodium Benzoate Allergy diagnosed 9/06; Fibromyalgia 6/07; Pelvic Floor disfunction 2007; Hysterectomy 10/08; Fallopian Tube Cyst removed 5/10; Chronic Diarrhea since 12/10 ; Ulcerative Colitis 4/12

        Medications
        Elmiron 3x day
        Trazadone at bedtime
        Tramadol as needed for pain
        Monthly B-12 injections
        Continuous Birth Control (even though I had a hyst, to control cysts)
        heating pad, hot epsom salt baths, strict IC diet
        Interstim implant 9/11
        Ulcerative Colitis Meds - Remicade, Azathioprine, Lialda, prednisone several times a year

        Failed Bladder Treatments
        Lyrica, Elavil, Detrol, Detrol LA, Ditropan, Sanctura, Flomax, Prelief, Pyridium & Urelle (allergic!), Lidoderm patches, long term antibiotics - Macrobid and others, instillations (ouch!), CystaQ, pelvic floor therapy, fulguration, bladder injections, bladder stretching

        Comment


        • #5
          It is pricey, But I had no problems with it..
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment


          • #6
            Yes, I have tried it and yes very pricey & I haven't had any problems with it either.
            Minds are like parachutes-they ony function when they are open.
            -Thomas DeWar-



            ICN Newbie Volunteer


            *ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

            Comment


            • #7
              Tried it, but I didn't like the taste.

              Comment


              • #8
                Can any of you give an ingredient list and where this product can be purchased?

                Comment


                • #9
                  I bet this is one of those things that will go down as demand increases. Since this first post I have read and seen a lot about it. (Probably was there all along, but your post brought my attention to it! )

                  I am glad to hear that people are doing fine with it. Good good to hear!
                  Julie Beyer, MA, RDN
                  IC Dietitian, Patient Advocate, Speaker, & Author


                  Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

                  Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

                  You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

                  ........ ........


                  Other IC Diet Resources:

                  IC Diet Webinar
                  IC Diet Website
                  For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
                  Free IC Diet Booklet: What Can I Eat?
                  Confident Choices IC Diet Blog
                  IC Diet Newsletter


                  *Let's Connect!*

                  Comment


                  • #10
                    I use it all the time, I also am on a RAW vegan diet so I use nothing but almond and coconut milk and water for drinks and desserts. It is cheaper if you just buy young coconuts and take the juice out that way. Then you have a beautiful coconut left over to make a smoothie with.
                    http://www.vanessaic.wordpress.com Read my blog about my journey into RAW food, not taking meds or horrible instillations and having stem cell treatment done for IC that I have had forever.

                    Comment


                    • #11
                      glad to hear there were no problems for the people who tried it. I bought some, but it's been sitting in my fridge. I was scared to try it b/c it's naturally high in potassium, but doesn't have added potassium. Isn't potassium bad for bladders?

                      Tuckersmom-the only ingredient is coconut water. there are two types, Vita Coco and Zico. One has added things (presevativies I think) and the other has just plain coconut water. I can't remember which is which though, just check the label. I bought it at Whole Foods, but I work in NYC and they sell it in all the deli's. It's a fad here I think. In People magazine, they always mention celebrities drinking it as well.
                      I just started a IC diet/low-oxalate diet blog! http://jennysicparty.blogspot.com/

                      Comment


                      • #12
                        Last week Costco had a "tasting table" for coconut water so I did taste it --- I thought it was awful! I suggest anyone wanting to try it purchase just one at first.

                        Donna
                        Stay safe


                        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                        Have you checked the ICN Shop?
                        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                        Patient Help: http://www.ic-network.com/patientlinks.html

                        Sub-types https://www.ic-network.com/five-pote...markably-well/

                        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                        [3MG]

                        Anyone who says something is foolproof hasn't met a determined fool

                        Comment


                        • #13
                          I just bought four 11.2oz juice box style boxes at whole foods for 5$, which isn't too bad in my book, especially if it means I can drink something other than water and pear juice. It's the zico brand.

                          has more potassium than a banana, which seems bad, but it has relatively low acidity.

                          I love the taste! it is a bit acquired though, the secret is to drink it cold at first
                          Last edited by ICNDonna; 07-19-2011, 02:00 AM. Reason: Removed sales site.

                          Onset of symptoms 1/04 after laproscopic appendectomy
                          Diagnosed with prostatitis 3/04, again 6/04, again 9/04, went through various cycles of anti-biotics.
                          Self diagnosed with PFD 6/05, received PT on and off for a year with good results but recurring symptoms.
                          Self diagnosed with IC 2/07, officially diagnosed via potasium test 3/07

                          Current meds:

                          Uracyst
                          Benedryl

                          Having great results with Uracyst

                          Alex

                          Comment


                          • #14
                            i'm nuts for coconuts!

                            I am an expert on coconut water, hahaha! ;-) Coconut water seems to be the only yummy drink I can still have! It has less sugar than carrot and pear juice and in my opinion it tastes amazing! It's also super-hydrating, and I always feel dehydrated these days thanks to the Elavil.

                            Caution: Many brands contain Vitamin C or ascorbic acid. Make sure you only get the kinds that list just 1 ingredient!!

                            Taste Nirvana Coconut Juice- this is my favorite!! It's got a rich, toasty flavor, and of all the juice I've tried it tastes most like it's straight out of a fresh coconut! Comes in a green glass bottle.

                            Zico and VitaCoco- have not tried, I think they must usually be more expensive than the other options.

                            Amy and Brian- really good, light refreshing taste. Seems to always be the most economical, too. Love the kind with coco pulp!

                            Naked-I was not impressed. Refreshing but not sweet or toasty. Comes in an economical carton size though, which is why I bought it.

                            CocoHydro "instant coconut water"- In an attempt to get more coco for my buck, I bought powdered "instant" coconut water. It's not bad, but it ain't the good stuff. You have to use a lot of powder to get even close to the taste of real fresh coconut water. I won't buy it again, since for me it's more about having a treat than hydrating myself after running a marathon or something.

                            Fresh outta da coco- By far the best way to go, although more expensive. Get the big white ones that have a pointy top (young coconuts) and not the hard brown round ones. Staff at Whole Foods and New Leaf (in Santa Cruz) will complimentarily cut open your coco for you. If its a good coconut, it tastes like heaven on earth, with the added bonus later of the meat inside. All you have to do is take a spatula and scrape it out. Yummy!
                            IC symptoms since Dec. 12 2010 after confirmed bladder infection "never went away." Recently also diagnosed with PCOS, piriformis syndrome, and pelvic floor dysfunction, sinus issues. I was in great health before fall 2010.
                            Current medications: citalopram 40 mg, valium 2.5 mgs a night, lidocaine patch (for back pain), Prelief
                            Therapies tried or continuing: stretches, walks, baths, internal massage, physical therapy, IC diet, IF unit, heating pad, mindfulness based stress reduction classes, cognitive therapy, books on IC and pelvic pain...

                            Drugs Tried: the urinary analgesics, 4 kinds of muscle relaxants (including in suppository form), hydroxyzine, 3 kinds of TCA's, lyrica, cymbalta, 6 months elmiron, vesicare, antibiotics, prednisone (after sinus surgery), NSAIDS...
                            Supplements: over 20 herbs and supplements, including regimens from TCM practitioner and a naturopathic MD
                            Intravesical/Surgical: 3 instills of Uracyst, 2 “rescue instills” lidocaine, bicarb, elmiron; 1 self-instill of marcaine, a steroid, bicarb and heparin; 1 hydrodistention and capsaicin instill (made me worse, still recovering two months later...)
                            Other: Acupuncture treatments, magnets (LOL), Anti-Candida Diet (2 months), Wheat free diet, water pH

                            Comment


                            • #15
                              I'm nuts for coconuts!

                              Originally posted by DaniMSC View Post
                              I am an expert on coconut water, hahaha! ;-)
                              Thanks SO MUCH for that summary. I printed (only) the comments on the individual products and stuck it in my coupon folder to have with me at the store. It's been a loooooong time since I've had a new food to shop for! I use coconut oil/cream/dessicated all the time, but water is the only thing I seem to be able to drink. My list of foods is so small these days...but I bet I could handle coconut water! Wow! I never thought I could walk in an buy a ready to consume drink again. This will be fun!

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