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Can we have Rooibus tea(red leaf tea). I think I seen on here that it's a "try it" item but I'm not sure. I also want to know if we can have spearmint. I know peppermint is ok but are all forms of mint ok?
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Daughter your faith has made you well,go in peace, and be healed of your disease.(Mark 5:34)
Tried:
Detrol:only took one pill and it made me sick
Elmiron:caused horrible pain(took 1 week)
CystaQ:caused alot of burning and pain(only took one pill)
Wellbutrin:only on it for three days as it caused alot of bladder pain
Elavil:Took one pill and it caused a flare that lasted almost two weeks. It was the longest flare I've ever had. Never again..ouch
Prelief:made my bladder burn and feel tingly.
Take:
Uracyst:Started May 19 2011
Enablex:take one pill daily with no issues
Naproxen:for pain as needed
Baking Soda with water:as needed and it's a God send. It brings down my pain within 20 mins.
Venofer: Started April 2012 by IV for low Iron. I do not tolerate oral Iron so this is the route I had to take.Does not bother my bladder but did have other side effects. I take Benedryl with each treatment to avoid side effects.
Supplements:Whey Protein powder daily
Dessert Harvest Aloe It has been helping alot but I can only take it every two days as my "die off" reaction has been severe. -
I'm fine with rooibus tea, but I read labels to be sure there isn't anything added that might be a problem.
DonnaStay safe
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Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
thanks Donna and yes I'm a fanatic about reading labels. It's just the rooibus leaves and nothing else. I wanted to make some ice tea with it. Do you know if all forms of mint are ok?Daughter your faith has made you well,go in peace, and be healed of your disease.(Mark 5:34)
Tried:
Detrol:only took one pill and it made me sick
Elmiron:caused horrible pain(took 1 week)
CystaQ:caused alot of burning and pain(only took one pill)
Wellbutrin:only on it for three days as it caused alot of bladder pain
Elavil:Took one pill and it caused a flare that lasted almost two weeks. It was the longest flare I've ever had. Never again..ouch
Prelief:made my bladder burn and feel tingly.
Take:
Uracyst:Started May 19 2011
Enablex:take one pill daily with no issues
Naproxen:for pain as needed
Baking Soda with water:as needed and it's a God send. It brings down my pain within 20 mins.
Venofer: Started April 2012 by IV for low Iron. I do not tolerate oral Iron so this is the route I had to take.Does not bother my bladder but did have other side effects. I take Benedryl with each treatment to avoid side effects.
Supplements:Whey Protein powder daily
Dessert Harvest Aloe It has been helping alot but I can only take it every two days as my "die off" reaction has been severe.Comment
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I love rooibos tea. When the bladder problems started for me a few months ago, I tried peppermint tea, and it caused discomfort. However, I'm feeling well enough that I may give it a go again.March 2011-Symptoms began
May 2011-Tentative diagnosis by OB/GYN
October 2011-Confirmed diagnosis -- IC/PFD
Current treatments:
Elmiron- 300 mg (Began 12/11)
Hydroxyzine- 50-75 mg (Began 7/11)
Tizabidine- 2mg 3xTID, if needed (Began 12/11)
IC Diet-Began 5/11
Pelvic Floor Therapy-Began 12/11
Current Supplements:
Cystoprotek
Magnesium
Fish Oil
BiotinComment
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It was years ago when I tried it, but I could not tolerate roobios tea. I can only do spearmint, peppermint or chamomile tea. Lucky you if you can handle it!Conditions:
IBS 4/04; IC 8/05; Vitamin B-12 Deficiency 7/06; Asthma 9/06; Citrus, MSG, Sulfate/Sulfite, Nitrate/Nitrite, Sodium Benzoate Allergy diagnosed 9/06; Fibromyalgia 6/07; Pelvic Floor disfunction 2007; Hysterectomy 10/08; Fallopian Tube Cyst removed 5/10; Chronic Diarrhea since 12/10
; Ulcerative Colitis 4/12
Medications
Elmiron 3x day
Trazadone at bedtime
Tramadol as needed for pain
Monthly B-12 injections
Continuous Birth Control (even though I had a hyst, to control cysts)
heating pad, hot epsom salt baths, strict IC diet
Interstim implant 9/11
Ulcerative Colitis Meds - Remicade, Azathioprine, Lialda, prednisone several times a year
Failed Bladder Treatments
Lyrica, Elavil, Detrol, Detrol LA, Ditropan, Sanctura, Flomax, Prelief, Pyridium & Urelle (allergic!), Lidoderm patches, long term antibiotics - Macrobid and others, instillations (ouch!), CystaQ, pelvic floor therapy, fulguration, bladder injections, bladder stretchingComment
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