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  • #1

    Food complaint

    This disease is so strange. I noticed that radishes are on the safe list so I thought great I'll try them. I ate 1/2 a radish and had pain all afternoon I can't eat 1/2 a radish or a Gala apple which are on the safe list but I can eat Ceasar dressing which is on the caution list..go figure! Well if I had to choose the Ceasar dressing is the best tasting of all anyway..lol
    Daughter your faith has made you well,go in peace, and be healed of your disease.(Mark 5:34)

    Tried:
    Detrol:only took one pill and it made me sick
    Elmiron:caused horrible pain(took 1 week)
    CystaQ:caused alot of burning and pain(only took one pill)
    Wellbutrin:only on it for three days as it caused alot of bladder pain
    Elavil:Took one pill and it caused a flare that lasted almost two weeks. It was the longest flare I've ever had. Never again..ouch
    Prelief:made my bladder burn and feel tingly.

    Take:
    Uracyst:Started May 19 2011
    Enablex:take one pill daily with no issues
    Naproxen:for pain as needed
    Baking Soda with water:as needed and it's a God send. It brings down my pain within 20 mins.
    Venofer: Started April 2012 by IV for low Iron. I do not tolerate oral Iron so this is the route I had to take.Does not bother my bladder but did have other side effects. I take Benedryl with each treatment to avoid side effects.
    Supplements:Whey Protein powder daily
    Dessert Harvest Aloe It has been helping alot but I can only take it every two days as my "die off" reaction has been severe.
    Tags: None
    • #2
      Oh, I would chose the ceaser dressing! I know..I am able to eat things on the OK and the AVOID list! It's crazy.
      Minds are like parachutes-they ony function when they are open.
      -Thomas DeWar-


      ICN Newbie Volunteer


      *ICN Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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        • #3
          Yeah, I can't have apples either. And I'm better off with blackberries which are higher in vitamin C than blueberries. Weird.
          Kadi

          -------------------------------------------------------------
          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          ------------------------------------------------------


          New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
          Source - Pinterest
          "

          Current treatments:
          -IC diet
          -Elavil 50mg at night
          -Continuous use birth control pills (4-5 periods/year)
          -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
          -Pyridium if needed,
          -Pain medicine at bedtime daily, as needed during the day several times per week
          -Antibiotic when doing an instillation to prevent UTI
          -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
          -Dye Free Benadryl 50 mg at bedtime
          -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
          -Managing stress= VERY important!
          -Fur therapy: Hugging the cat!

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            • #4
              maybe you could try fuji apples. i am lucky, no problems with those. but all bottled dressings tear me up! good luck!

                Comment

                • #5
                  Originally posted by carole
                  This disease is so strange.
                  Agreed! I can't handle a handful of peanuts which are on the bladder friendly list yet I can drink a beer with no consequences. Go figure! All I can say is that this is where that food diary works wonders!

                  Yes, I would choose the Ceasar dressing over a radish or apple. Lucky you!

                  Vicki
                  "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

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