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  • Is anyone else gluten intolerant?

    I'm gluten intolerant, and I've noticed a few others mention it. I was wondering if this is more common for people with IC, and if they're connected, and in what way. Is it possible that gluten intolerance and IC have a cause/effect relationship?

  • #2
    I am very gluten/wheat sensitive. I cannot eat any of it. I do think there must be some kind of link. I know the wheat today is genetically altered and bleached and changed. Maybe this is making us ill? I wonder when they chemically alter the wheat with to create things like cake mixes, soft breads, etc. Btw the bread UDI (gluten/wheat/dairy free) is AMAZING!! It is the only non-wheat bread that everyone in my family loves. it tastes like fresh french bread and has the same texture as normal bread.
    You might want to also check of you are dairy sensitive. I can't eat any dairy at all (my PCP says these two allergies go hand in hand in some conditions). After I went off of these are few others my headaches, fatigue, etc went away completely! Except for my bladder problems: urgency, pain and such. Now that I am adapting my food allergy diet to this low acid diet I am getting some relief.
    The interering thing is I had that food allergy sensitivity test over a month ago and found out I was allergic to many things... the odd thing was a lot of them are high acid food llike mustard and pineapple. So I am really thinking that this is very much linked to foods that we eat.
    I would love to see if the medical community would make food allergy tests a regular part of the diagnosis for IC!
    -Pammylynn Rose
    Wishing everyone a pain free bladder day!


    Painful symptoms start in May 2011
    Diagnosed with IC in Aug 2011

    MEDICATIONS
    Elmiron
    Axert (only for rare migraines)
    Strict IC diet
    Gluten/dairy/egg free diet


    Comment


    • #3
      I read an article that more and more people are getting diagnosed with gluten intolerance all the time, it has to be on the rise for some reason.

      I don't eat it but I can, I was tested by a blood test and a biopsy of my small intestines, they both came back normal.

      I just choose not to eat it, I feel better not eatting it.


      MG
      My are with you all. May you all find a way to peace and joy in your lives.

      Comment


      • #4
        I don´t have celiac but I am gluten/wheat sensitive and lactose intolerant so it is interesting to see how many of us who have this combo also have bladder issues. I hope that with time my bladder will calm down after eating raw food diet. Fingers crossed
        ***************************************
        I am not an English native.
        ***************************************
        I am starting with raw food diet, juices and green smoothies and salads. Nothing else (rx meds and holistic things like cystoprotek, IC aloe vera) helps with my frequency, urgency and burning. I was also tested and I am gluten sensitive, lactose intolerant, few other food allergies, so all in all it made perfect sense to try go "raw". Fingers crossed

        Right now I am on:
        Vesicare 5 mg
        Other stuff:
        Herbal mix for bladder and kidneys
        Herbal mix for adrenals
        Fish Oil
        Bladder Control
        Colostrum
        Probiotics

        Comment


        • #5
          What is it about raw that makes it better for your bladder?

          Comment


          • #6
            It calms down the bladder because I stopped putting food that irritates me or am sensitive to or intolerant to it (like dairy, gluten, wheat, some fish, some meat etc), it´s been only few weeks on raw, we will see how it goes
            ***************************************
            I am not an English native.
            ***************************************
            I am starting with raw food diet, juices and green smoothies and salads. Nothing else (rx meds and holistic things like cystoprotek, IC aloe vera) helps with my frequency, urgency and burning. I was also tested and I am gluten sensitive, lactose intolerant, few other food allergies, so all in all it made perfect sense to try go "raw". Fingers crossed

            Right now I am on:
            Vesicare 5 mg
            Other stuff:
            Herbal mix for bladder and kidneys
            Herbal mix for adrenals
            Fish Oil
            Bladder Control
            Colostrum
            Probiotics

            Comment


            • #7
              The differences in texture of wheat is a matter of how finely it is ground. If you look at the package, all ingredients must be listed, including any chemicals. I can eat things containing wheat flour with no problem.

              I do know several people who are gluten intolerant, but none of them have IC. It's fairly easy to diagnose via a blood test.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                Hi Chey~
                In regards to you having a Gluten reaction...Have you ever been tested for other things? The reason I ask is that my Mother never had any reaction prior to being diagnosed with IC. Having done your research you can note that the gag layer in your bladder has been somewhat diminnished and when paticular proteins enter the bladder, it is the main thing that can cause infliction/inflamation to the exposed bladder wall, and although there is not enough research to diagnose IC, we know that once exposed/gag layer effect, urine that contains protiens that cause inflamation are an incredible factor especially if you retain urine. A while back a news letter came via the IC network and then again just last week. Without giving the name of the test out of Florida, I can tell you that it is something that has helped my Mother tremendously where nothing else could, even the IC diet proposed. The test can test each individual for up to 250 foods plus add on's that include chemicals. herbs, aditives, and dyes. My Mother had several alergic reactions including gluten. I will go through the list of things that she now has an alergic reaction to that she never had prior to IC, I think you will be amazed and conflicted at the same time, as most of the IC friendly foods from this site was unacceptable for my Mother which she came to call her bible for a full year, never finding trigger food or releif, because everthing she was eating was keeping her in a flare all the time. When her test came back from Florida, I was shocked!!! After the test results were revealed we found that by following acceptable foods/proteins flowing through her blader things were looking up after only a month. Here is a list of her triggers/alergies. Severe Intolerance foods: Clove. icberge lettuce (Who would have thought), mint and orange. Moderate intollerance: almond, apple, blackberry,cauliflower. chili pepper, coffee, duck , hazelnut, kale, kelp, kiwi, lamb, olive, olive oil, oregano, paprika, phesant, pinto beans, pomegranate, radish, rosemary, salmon, tilapia, trout,wheat,zucchini. Mild intolerance: (OH BOY)!!! Artichoke, avocado, bananna, bass, bay leaf, black eye'd peas, black/green tea, brazil nut, brewers yeast, brussel spouts, buckwheat, cabbage, caraway, carob, cayenne pepper, chamomile, coconut, codfish, cottenseed, cumin, eggplant, flaxseed, garlic, ginger, herring, honeydew melon, jalopeno pepper, kidney beans, lemon, liquorice, beef liver, macadamia, mango, mustard, okra, onion, paprika, parsnip,peach,psyllium, pumkin, quail, rhubarb, rice, romain lettuce, saffron, saronre, shrimp, snapper, sole, soybean, soybean oil, strawberry, string beans, sweet potato,tapioca, thyme, tomatoe, turnip, venison. All dairy, ice cream, cheeses, breads,all breads and pastas, all sugars!!! The acceptable foods are all those that were not tested and are few, as it turns out though many of those foods she would not try due to 12 months of major flares, happen to be on the TRY IT LIST and THE CAUTION LIST via the IC DIET composed of thousands of women who came together with their best guess at what might help people. As you can see if you do a comparrison, there would not have been as much time wasted finding out triggers food for my Mother and to nail down trigger foods PERIOD!! Always in pain and never feeling better. There is much controversy about this test. I would advise you to sign up for the news letter if you haven't already. Carolyn
                Last edited by ICNDonna; 08-20-2011, 03:26 AM.

                Comment


                • #9
                  Just chiming in for the 'numbers'. I am not gluten or dairy intolerant. I do have mild IBS that a lot of IC patients have however mine correlates to hormones and not out of diet.

                  Comment


                  • #10
                    The IC diet is not guesswork. At the time I was diagnosed, not much thought had been given to a diet connection, but I discovered on my own that some foods and drinks caused me pain. A careful diary listing times foods & drinks ingested, urinary frequency, and pain levels identified the foods and drinks that are triggers for my IC. AND ALL OF MY TRIGGERS ARE LISTED ON THE "CAUTION" LIST.

                    There are many ICers who have found that following the diet helps more than any other single thing. I would never discourage anyone from giving it a try. It can be a challenge, but is so worth the effort.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      Just like any IC treatment the diet is not going to be the same or help everyone. While I think EVERYONE with IC/IC symptoms should at least try it if it's making you sick you shouldn't keep doing it. I am more referring to certain foods. For example bananas are on the good list but not everyone can tolerate them. So even though it's on a good list if it makes you flare stop eating them.

                      I don't think the diet itself is flawed it's just that not everyone is going to respond the same to everything. There is a level of user trial and error with the diet (just as there is with other IC treatments). But since more people benefit than experience poor results I think everyone should at least give it a thorough try.

                      Comment


                      • #12
                        Hello, what is the name of this food allergy test please?

                        Comment


                        • #13
                          Just chiming in......

                          I am gluten intolerant. I had been gluten free for almost a year before my bladder symptoms came into the picture so not sure if there is a connection there. I do think there was a connection between gluten and my Hashimoto's though as all my hypo symptoms went away when I stopped eating gluten.

                          Pam

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