Tweet
So I found that Evian would pretty much break my bank trying to buy that for my IC lol how does everyone else do it? and has anyone tried the crystal geyser water which I have seen several reports that it has a PH of 7 or over?
-
-
When I'm away from home I purchase bottled water. I just check labels and purchase spring water with no additives. It hasn't been a problem.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
Deer Park,Crystal Geyser and any water that has no minerals in it is ok for me.Comment
-
I've tried ozarka and walmart brand water and that doesn't work for me, either does my tap water. Evian seems to be the only thing that is working. I just bought crystal geyser and even tho the PH is low it doesn't show that anything has been added so maybe i will try drinking that tomorrow and see if it helps. If not then guess it's back to evianComment
-
Evian annoyed my bladder, which was actually a relief since it's so expensive. I drink Arrowhead and Crystal Geyser without any problem. I've had problems with Evian, Dasani & Kirkland brand waters. Not sure about Aquafina - I really like the taste, but am not sure it's ok.Kadi
-------------------------------------------------------------
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
------------------------------------------------------
New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
"
Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
Comment
-
I'm fine with Crystal Geyser. Evian was too expensive to drink all the time so I only drank it if I had a flare up.Comment
-
Yea i'm drinking a bottle of crystal geyser right now, although it was a 5 or 6 on the ph scale it has nothing in it so i'm hoping that works so i don't have to buy evian all the time. Wouldn't be bad if it wasn't so expensive. Here hopes everything goes well and there continues to be minimal burning.Comment
-
The crystal geyser still makes it burn when i void so i guess i'll just stick to evian i hardly have any burning if at all when i drink that. Figures something so cheap wouldn't work for me lol my body only likes the expensive stuff :pComment
-
Does anyone know why this happens? I haven't found any one water to be better than the next. But I am curious as to the cause of the potential to flare someone? Isn't plain water the same? Is it like the pH levels or something?Comment
-
Yea apparently it does have to do with the PH level anything lower than a 7 which is what i have been drinking is acidic and 7 is neutral and anything above 7 is alkaline which is better for you. So right now im stuck with evian cuz i can't drink anything else apparently. Its sad cuz it costs so much money but it does make me feel better.Comment
-
Ahh. That is a shame that the most expensive water would be the best one for us. But then again I am begining to sense that theme with a lot of IC related products. What an expensive diagnosis.
Comment
-
Lori
40 y.o. mom, wife and marketing manager
"Il faut manger pour vivre, et non pas vivre pour manger." -- Moliere ("One should eat to live, not live to eat.")
IC symptoms began Feb 2010; diagnosed Mar 2010
Treatments:
Oral
Elmiron 3x day; Elavil 25 mg/day; Prelief (when I remember!); Benadryl and Prosed DS as needed for flares
Other
Acupuncture 2x/month; yoga; IC Diet; meditation and breathing exercises for stress; heating pad for flaresComment
Comment