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  • #1

    Bad, bad idea....

    So with my recent sucsess in trying a mojito and a corona (bladder has been great recently) with no ill effects I decided I would have a coffee. Hubby tried to warn me.....oh but no, I can drink alcohol I must be invicible?!

    Within 20 minutes BANG. It feels like somone is jabbing a cork screw into my bladder and twisting it. frequency, urgeny, no volume. Urgh. Very angry at myself for doing this, ruining my good days!

    Tried Tums, Bicarb soda and I am living with a heating pad stuck to my tummy.

    Any other suggestions to help it calm down? I am drinking only pear bluberry and water and milk.

    I know I know, stupid girl

    I don't think I will ever drink coffee again, and I won't miss it either.
    TMJ Dysfunction 2009
    Vulvodynia and/or PFD 2010
    IC, based on symptoms alone 2010.
    PCOS March 2012

    8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

    Currently using: IC Diet...pain meds as needed
    Medications / treatment tried and discounted:
    Fluconazole 150mg 1 per week for 6 months (yeast)
    Endep 25mg - 4months
    Lyrica 75mg - 2 months - FLARE
    Oxytrol patch - I think this caused retention.
    Countless creams, lotions and potions.
    Cystoprotek - no change in symptoms
    PT - for 1 year
    Various herbs and supplements
    Tags: None
  • #2
    Have you tried some Prelief?

    I am sorry your coffee backfired on you.

    Comment

    • #3
      I'm sorry also. I did a similar thing to you with tomatoes. Not a good idea. And I gave up coffee for at least four months...and then started drinking it again! VERY dumb move. Now I'm off it for good.

      I hope your pain is gone soon!

      I read on this site that some people like vanilla shakes to help with flares. I haven't tried it but am planning to get one soon. Maybe you could try it.
      Frances

      Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

      Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

      Other conditions: Migraines, allergies, mild IBS.

      "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

      Comment

      • #4
        Toto's post reminded me someone from my support group metioned if they had plain baked potato it seemed to help their flares. I have no idea why that would work (maybe it soaks up acid or nuetralizes it?) Anyhoo, it might be worth a shot. I am going to try it next time I have a flare in the daytime.

        Comment

        • #5
          Thanks everyone,

          I will be sticking to plain foods for a long time again now. This is the first food flare for me. At first I was not diet sensitive at all and as of the last few months everything I ate seemd to make it worse so then I started the diet really strictly. Now this confirms it. I was 100% free of bladder symptoms for 6 days and now it's back and I can pin point it to exactly why and where it came from. A good thing in a way, because now I know.

          I have not tried a vanilla milshake yet. Milk seems to help though.

          I wish I had prelief. We can't get it here and mine is on order from the IC Shop.... 3 weeks away I didn't need it so bad at the time of ordering.

          Potato for dinner it is!
          TMJ Dysfunction 2009
          Vulvodynia and/or PFD 2010
          IC, based on symptoms alone 2010.
          PCOS March 2012

          8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

          Currently using: IC Diet...pain meds as needed
          Medications / treatment tried and discounted:
          Fluconazole 150mg 1 per week for 6 months (yeast)
          Endep 25mg - 4months
          Lyrica 75mg - 2 months - FLARE
          Oxytrol patch - I think this caused retention.
          Countless creams, lotions and potions.
          Cystoprotek - no change in symptoms
          PT - for 1 year
          Various herbs and supplements

          Comment

          • #6
            Drinking lots of water will sometimes ward off a food/drink induced flare.

            I hope you feel better quickly.


            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.             [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment

            • #7
              I did the same exact thing in the beginning. Was feeling really good so I tried a low acid decaf and it set me right back to the beginning. I did the same thing with tea and it did the same thing. I still can't figure out why a vodka martini is fine for me but coffee or tea isn't. I always seemed to have delayed reactions and never felt it right away but the next day was bad so it was hard to figure out the triggers. You're lucky in way that the reaction was so immediate. At least you know for sure what bothers you.

              Comment

              • #8
                Flares gone

                woke up this morning without pain. That was shorter than expected

                I am the same. The white rum didn't hurt me. But cofee did. Very odd.
                TMJ Dysfunction 2009
                Vulvodynia and/or PFD 2010
                IC, based on symptoms alone 2010.
                PCOS March 2012

                8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!

                Currently using: IC Diet...pain meds as needed
                Medications / treatment tried and discounted:
                Fluconazole 150mg 1 per week for 6 months (yeast)
                Endep 25mg - 4months
                Lyrica 75mg - 2 months - FLARE
                Oxytrol patch - I think this caused retention.
                Countless creams, lotions and potions.
                Cystoprotek - no change in symptoms
                PT - for 1 year
                Various herbs and supplements

                Comment

                • #9
                  How about this... 2 large glasses of white wine (taken with Prelief) won't hurt me... but WATERMELON does. Still boggles my mind.

                  I'm glad your flare was short lived.
                  Symtoms started July 2010.
                  Severe pelvic floor pain only.

                  2 time PT graduate!
                  In medical remission since August 2011; able to eat and drink anything I want currently.

                  IC meds:
                  200 mg Elmiron in the morning
                  100 mg Elmiron @ night
                  Macrobid after intercourse

                  03/11 07/11 01/12
                  If at first you don't succeed: 07/26/2013!

                  Comment

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