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does everyone do the IC diet?

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  • does everyone do the IC diet?

    My husband says he's read that the medicine is of no use if you aren't going to do the diet is this the truth?

  • #2
    I am no expert but I think many people do find that diet is essential. I also have seen posts by people who say they are not very diet sensitive and find that it makes no difference. I am on three different meds and if I have even so much as 2 strawberries, a little tomato, lemons etc.. I am in bed and on vicodin because of the pain. Sometimes these flares last for days, sometimes only for a few hours. That has been my experience if it helps.

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    • #3
      I'd have to agree with your husband.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        *sigh*
        it's hard for me to distinguish what I can and can't eat. I mean I know it's there and plain to read. But it's hard for me like when I'm at work to know what I'm going to be eating so lately I've just not been eating.

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        • #5
          When I was working, I took food with me to work.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            I pack my own lunch. And I do find that if I don't follow the diet, the meds are worth nothing and the quality of my life goes down dramatically.
            Kadi

            -------------------------------------------------------------
            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            ------------------------------------------------------


            New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
            Source - Pinterest
            "


            Current treatments:
            -IC diet
            -Elavil 50mg at night
            -Continuous use birth control pills (4-5 periods/year)
            -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
            -Pyridium if needed,
            -Pain medicine at bedtime daily, as needed during the day several times per week
            -Antibiotic when doing an instillation to prevent UTI
            -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
            -Dye Free Benadryl 50 mg at bedtime
            -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
            -Managing stress= VERY important!
            -Fur therapy: Hugging the cat!

            Comment


            • #7
              Some people have many more trigger foods and have to follow a much stricter diet than others but I think to some extent most of us have to follow some sort of an elimination diet. Once you learn your triggers it becomes easier and you get used to working around it but I remember at first it was really hard and discouraging. My triggers seem to be strange so it was crazy learning what they are. For example: corn products or things that are mostly made of corn. Hang in there with it and I'm sure you will have some success!
              Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
              _____________________________

              DX: IC - November 2002 after hysterectomy
              Interstim implanted March 2006 - died May 2011
              Interstim replacement June 2011
              Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
              Docs: Pain management doc, urologist, family practice

              Comment


              • #8
                I wish I could tell you that it the diet didnt make a difference to me, but it does. I didn't start getting any relief until I changed my diet. But then I found out that my biggest trigger is iced tea, tomatoes, and lemons. Some of the other foodsI can take in small doses. The diet has worked so well I might only need to add elmiron to get lots of relief. I would much rather change my diet than be on multiple medications. Good luck!!
                -Pammylynn Rose
                Wishing everyone a pain free bladder day!


                Painful symptoms start in May 2011
                Diagnosed with IC in Aug 2011

                MEDICATIONS
                Elmiron
                Axert (only for rare migraines)
                Strict IC diet
                Gluten/dairy/egg free diet


                Comment


                • #9
                  I'm not extremely food sensitive so I pretty much just avoid the major offenders like black tea, coffee, citrus, tomato sauce, and wine. I do add the prelief when eating out though just in case. If you have no food sensitivities at all then it seems like medication alone could possibly be ok. It may depend on what is causing your bladder pain and frequency. If it was just PFD causing bladder symptoms and there was nothing wrong with the bladder or bladder wall itself then the diet may not make any difference at all.

                  Comment


                  • #10
                    I'm like earthlady and as long as I'm not having a flare, I can tolerate most foods. If I'm already hurting, I'm much more diet sensitive. It seems like alcohol is the only thing ALWAYS hurts me.
                    Medications and Supplements:
                    BladderQ
                    Pyridium
                    D-Mannose powder
                    Cranmax

                    Lifestyle:
                    Lacto-ovo-vegetarian and IC diet
                    Meditation
                    Positive mental attitude!

                    Comment


                    • #11
                      I stick to the diet

                      I haven't really deviated from the diet much in the two years I've been on it. There have been a couple of occasions when I've had a flare because of being at other people's houses. I will have a couple sips of my husbands beer, but that's it. I'm too afraid of a flare to experiment like some people have.

                      The diet is alot of extra work, but I don't mind it. I actually have been sick less in the last year than I have been my whole life. I sort of wonder if the diet agrees with my overal health.

                      It wouldn't hurt you to go on the diet. It's just alot of work and hard to eat out. I figure too that I don't ever want to get any worse, so anything I can do to prevent that I'm happy. I'm not on any medicine, just the diet.

                      Comment


                      • #12
                        Hi, I agree with the hubby also. In fact, not only do I think meds work better, but if you are challenging your bladder with food that busts your bladder it is sort of like taking sand paper to a scrapped knee three times a day. It is never going to heal that way. :-)
                        Julie Beyer, MA, RDN
                        IC Dietitian, Patient Advocate, Speaker, & Author


                        Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

                        Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

                        You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

                        ........ ........


                        Other IC Diet Resources:

                        IC Diet Webinar
                        IC Diet Website
                        For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
                        Free IC Diet Booklet: What Can I Eat?
                        Confident Choices IC Diet Blog
                        IC Diet Newsletter


                        *Let's Connect!*

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                        • #13
                          Uggggh I am going to have to buy a cook book. I am already tired of eating nothing.

                          Comment


                          • #14
                            I know it's frustrating and hard to adjust to a new diet and remember what's on the list, but once you're past the first stage, it becomes intuitive. You'll know what works for you, and be used to it. It stops being a burden to adjust your life and just becomes second nature.

                            I printed the IC list, and then cut it up into a little booklet that is printed on both sides and folds neatly into my wallet. As a PDF doc on 8.5 by 11" paper, it seems totally cumbersome, but the little pamphlet I made is VERY handy and very easy to carry around. And after a little while, you won't even need that because you'll know intuitively.

                            Comment


                            • #15
                              You can also make your own little pamphlet of your personalized info.

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