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My doctor told me that tylenol and advil are acidic, which i had no idea I didn't know if anyone else out there knew that, but since all kinds of acidic things seem to effect me I didn't even think about medicine. So just letting ppl know that didn't before :p
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My Dr told me not to take Ibuprofen because it could make the bladder worse' but said Tylenol would be better.....God brought me to it, He will bring me through it!!!
Diagnosed 2003
by cysto/hydro
Elmiron took almost a year- made me sick, caused diarrhea
Pyridium -Made me sick
Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
Tried DMSO instill- had 5 out of 6
Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
Cysto/hydro April 6th 2011-- on expansion only hold one cup
IBS/ IC
High blood pressure meds and Crestor
Metformin (prediabetic)
Sinequan (depression) -
I can take Tylenol without any problems.
Julie Beyer, MA, RDN
IC Dietitian, Patient Advocate, Speaker, & Author
Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!
Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.
You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:
........ 
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Other IC Diet Resources:
IC Diet Webinar
IC Diet Website
For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
Free IC Diet Booklet: What Can I Eat?
Confident Choices IC Diet Blog
IC Diet Newsletter
*Let's Connect!*
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It's interesting how different people's bodies are. I've never been able to take Tylenol. I'll be in the bathroom all day peeing! However, I've tolerated a number of other pain meds. So strange...Frances
Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.
Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)
Other conditions: Migraines, allergies, mild IBS.
"If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)Comment
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Tyelnol and Advil
I take Tylenol with Prelief. I think without that, the Tylenol would irritate my bladder. I can take Celebrex with no problem.Comment
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Oh yes, I take Celebrex also. :-) No problems.....Julie Beyer, MA, RDN
IC Dietitian, Patient Advocate, Speaker, & Author
Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!
Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.
You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:
........ ........
Other IC Diet Resources:
IC Diet Webinar
IC Diet Website
For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
Free IC Diet Booklet: What Can I Eat?
Confident Choices IC Diet Blog
IC Diet Newsletter
*Let's Connect!*
Comment
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I've taken Tylenol with and without Prelief. Either way=flare.
I do not understand why Tylenol bothers my bladder, but Darvocet and Vicodin, which both have the same main ingredient as Tylenol, do not. It's a mystery to me, my doctors don't understand it, but fortunately, they've accepted my word for it and prescribe the Vicodin for me (Darvocet is no longer available in the US, which stinks because it's more effective for me than Vicodin.)Kadi
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
Source - Pinterest
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Current treatments:
-IC diet
-Elavil 50mg at night
-Continuous use birth control pills (4-5 periods/year)
-Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
-Pyridium if needed,
-Pain medicine at bedtime daily, as needed during the day several times per week
-Antibiotic when doing an instillation to prevent UTI
-Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
-Dye Free Benadryl 50 mg at bedtime
-"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
-Managing stress= VERY important!
-Fur therapy: Hugging the cat!
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Kadi that just goes to show how different we all are and just as we listen to other people about what flares them (because we might pick up on something that is meaningful for us) we can't just throw out everything that someone ELSE flares from. I talked to an oncologist one time about my meds and she was not surprised about my routine of taking half a Vicodin with my Atarax at night. She says they use Atarax in oncology sometime because they often can use less narcotics to get the same effect, giving patients a better quality of life. I rarely have bladder pain anymore....just the frequency and urgency. Between watching what I eat and my meds/supplements I do pretty good. So hang in there everyone, you will get better...........Julie Beyer, MA, RDN
IC Dietitian, Patient Advocate, Speaker, & Author
Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!
Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.
You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:
........ ........
Other IC Diet Resources:
IC Diet Webinar
IC Diet Website
For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
Free IC Diet Booklet: What Can I Eat?
Confident Choices IC Diet Blog
IC Diet Newsletter
*Let's Connect!*
Comment
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Kadi, I'm much like you. Can't do Tylenol at all. It's horrible. Just as decongestants. But many other meds are ok.Frances
Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.
Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)
Other conditions: Migraines, allergies, mild IBS.
"If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)Comment
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Vicodin & Decongestants
I am reading through posts to figure out meds. Been taking Vidocin (2-3 per day) for bladder pain and constant urgency/burning. I think the tylenol is irritating my bladder. Also decongestants definately irritate. Thank you for your posts. Figuring out meds is tough. I think I'll order some cystoprotek as well. I tried it once and it seemed to help.
Current meds: Elimiron 300mg (100 3x/day), Lyrica 200mg (100 2x/day) and simvistatin (cholestorol) and hyrocholorthyazide (bpressure). Was taking macrodantin (prevent UTI, however, don't get many so stopped it a few days ago). Take ambien for sleep.
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