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  • #1

    Is soy a problem for most?

    Hello, I am a newbie. I have been having symptoms for two months now. Burning w occasional frequency. I have had numerous cultures come back negative. My uro had me on antibiotics that never worked. Actually made me worse . I have been on the IC diet and just started to cut out gluten. I was starting to feel great after my uro gave me Elavil 25mg at night. I stayed on the diet but noticed my symptoms were coming back and the only thing I added to my diet was a gluten free protein bar. I noticed yesterday that the protein bar has soy crisp in it.

    Is soy in such small quantities a problem for anyone?
    I also noticed that corn seems to be an issue as well.

    My doctor wants me to go on Elimiron, but I want to wait another month and see if a better diet gets this under control.

    When my symptoms started to flare up again I added Quercetin to my diet. Im not sure how much to take though. Each tablet is 1000mg. I have been taking one in the morning and one at night.

    If anyone has any advice that would be great!
    StephanieJo
    Tags: corn, elavil, elimron, quercetin, soy
  • #2
    I know soy is a problem for me - discovered this while visiting my parents for several days a few years ago. My dad has soy milk in his cereal in the a.m., and so I'd eat it along with him. After two days of this, my bladder was raw and screaming, and it took over a week for it to settle down. Now I'm really careful about soy - I can have small quantities (say, one small splash of soy sauce on meat/rice, or something that has a soy ingredient way down on the ingredients list) but I have trouble with larger quantities.

    You may be very sensitive to it. I would try going without the bars for a while just to see if it bothers you. Many ICers are indeed sensitive to soy, so that may well be what is happening for you.

    Good luck... I hope removing the soy gets you back to feeling great
    ****
    Jen

    *Diagnosed with severe IC in 2004
    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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    • #3
      Soy is a problem for me too. It was shortly after switching to Soy Milk for my cereal each morning that the symptoms of IC began for me. I did not make the connection at that time.

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      • #4
        Soy is listed as one of the biggest triggers, but I've had no problems with it. Corn is listed as being "soothing" to your bladder, ie the opposite of a trigger, but it's interesting that you've had trouble. It's weird how it's so different for different people.

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        • #5
          Yeah I was surprised that corn was a problem for me. But I noticed after I would eat corn chips or a corn tortilla that my bladder pain would increase. I check my urine when I go to the bathroom and after I eat corn there are tons of white floating things in my urine. So for now I am limiting corn from my diet. I am also doing gluten, dairy, and soy free as well. My plan is to start feeling better for a month or so and then add back in one of the above for two weeks to a month and see what happens.
          StephanieJo

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