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So I bought some Teecino vanilla nut tea bags yesterday and made myself a cup with some cream and it was heavenly AND it didn't bother my bladder. However last night I felt pretty nauseous and had an IBS episode. Everything else I ate was from home and pretty safe so I don't think it was food poisoning. I'm leaning towards the ingredients in the Teecino which I would hate to be the case because it's so good and fulfills my craving for coffee. I will try another cup in a few days to test it out but I'm just wondering if anyone else has noticed this. I know it has chicory root and inulin which are both pretty high in fiber but I'm not sure how that works when it's in tea form.
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The combo of things that brought me out of remission were artificial sweetners, liquid vitamins with citric acid, tight pants, lower body workouts and stopping all my allergy meds cold turkey during height of allergy season. I wish I knew back then what I know now about IC
First IC symptoms Spring of 2000; In-office cystoscopy 2002 -negative; Remission until 2007 (yeah!!); Negative PST spring of 2007; IC diagnosed via Cystoscopy and Hydrodistention 7/24/07; Another In-office cystoscopy 4/9/10 with biopsy showed inflammation
Treatments for my IC/PFD: Elmiron 400 mg per day; walking, Zyrtec, Claritin, Singulair, Neurontin 100 mg per day; Ice packs and laying down; About to try Cytotec
Tried and Failed: Heat (always makes me worse!), Heparin instills -too painful for my urethra; Atarax (interfered with my quality of sleep first time, second time dried my bladder out; Elavil makes me sick, lidocaine patches (just plain don't work), Cystoprotek (only tried a couple months but didn't seem to do much), Aloe Vera caps, pelvic floor therapy, trigger point work flared me worse, Lyrica (bad stomach pain)
Other Diagnoses: PFD 2009; Fibromyalgia 2006, Osteopenia 2012, GERD 2006, Gastroparesis (delayed gastric emptying) Anxiety: Other medications: Ambien, Dexilant, Ibuprofren, Necon 1/35, Voltaren gel for tailbone
BABY GIRL 10/28/08 *** BABY BOY 7/8/11 -
sorry I have not tried any of these products. I wish I had a suggestion.Daughter your faith has made you well,go in peace, and be healed of your disease.(Mark 5:34)
Tried:
Detrol:only took one pill and it made me sick
Elmiron:caused horrible pain(took 1 week)
CystaQ:caused alot of burning and pain(only took one pill)
Wellbutrin:only on it for three days as it caused alot of bladder pain
Elavil:Took one pill and it caused a flare that lasted almost two weeks. It was the longest flare I've ever had. Never again..ouch
Prelief:made my bladder burn and feel tingly.
Take:
Uracyst:Started May 19 2011
Enablex:take one pill daily with no issues
Naproxen:for pain as needed
Baking Soda with water:as needed and it's a God send. It brings down my pain within 20 mins.
Venofer: Started April 2012 by IV for low Iron. I do not tolerate oral Iron so this is the route I had to take.Does not bother my bladder but did have other side effects. I take Benedryl with each treatment to avoid side effects.
Supplements:Whey Protein powder daily
Dessert Harvest Aloe It has been helping alot but I can only take it every two days as my "die off" reaction has been severe.
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