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  • ALOE VERA

    HAS ANYONE OUT THERE TAKEN ALOE VERA BY DESERT HARVEST FOR YOUR IC. I WAS TOLD ABOUT THIS TODAY AND FOUND IT ON THE WEB AND ORDERED SOME. THEY HAVE SOME GOOD TESTIMONIES AND GOOD PERCENTAGE OF PEOPLE HELPED. JLT

  • #2
    I have been on the aloe vera for three months with the 6 capsules a day. I am also on the usual ic medicines, elavil, elimiron and ditropan. I could see a difference after the first month on aloe vera. I was almost symtom free with just a small flare now and then. I shared this information with my doctor and she was amazed of my progress because I was only diagnosed the end of August. I truly believe the aloe vera has made me feel so much better. I seem to have alot more energy and have not suffered from a cold at all this season. I started to cut back on my elmiron and had been off of it for about three weeks and I will say I was in a flare for about four days but not bad. I started back on my elimiron and will discuss this with my doctor tomorrow. My goal was to be off the ic medicines and just be able to take the aloe vera. My doctor has ordered samples and sharing this information with other patients. I was going to post today on the message board to see if anyone had tried the aloe vera. Let me know how you are doing. I also have started taking MSM and I am not sure if that might have made me flare.

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    • #3
      I have just learned about the Aloe Vera and have ordered samples.

      Yes, I agree there are some really good testimonials on their web page.

      I am currently preg. so I will wait til after baby to try them.

      I feel pretty excited that they will work somehow and then we can all live a normal life again.

      princess

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      • #4
        Hi Davenport,

        When taking the Aloe Vera were you eating all kinds of foods or sticking to your IC diet?

        Please let us know.

        Thanks.

        Princess angel

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        • #5
          PRINCESS. I RECEIVED YOUR EMAIL. I AM USING PRELIEF ON A DAILY BASICS AND AM GOING TO START TAKING THE ALOE VERA. IS YOUR IC WORSE WITH PREGNANCY WITH ALL THE ADDED PRESSURE? JLT

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          • #6
            Hey JLT,

            Yes it is the pressure sometimes is so bad from the pregnancy.

            How are you finding the Prelief. Is it actually working?

            Please reply.

            Thanks

            Princess

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            • #7
              I have been on aloe vera for 2 mos after over 2 years of IC. I took it mainly for its laxative value but find I am feeling better and better. Maybe due to less strain from constipation. I take two a day and am sticking with it. Also have found that if I sit a lot, keeping any hemmoroids under control with cream has been great for the urinary burning as well. The minute I sense any anal burning ( like form sitting) I act fast and what a difference it makes in my urinary tract. I just never thought there was a correlation between the two types of burning but now i am convinced that in me there is. I also have vulvodynia and guess the pain paths cross over. This is just my guess, But doing well! Just got back from a Paris trip and had the IC pretty well under control thoughout that long plane ride. I take Elmiron, neurontin and 10mgs of oxycontin at night. Also i think that for me walking is the best thing for IC as opposed to sitting. RATS! I love my computer! Hugs to all! Carolyn
              "If you have the heart of a child, you can always look for the rainbow. " Carolyn

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              • #8
                I have been taking one aloe vera at night and two gota kula. They both seem to be working very well!!

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                • #9
                  Hi all! I have been taking 4 caps of the Desert Harvest Aloe caps & I believe it does make a big difference! I ran out last month & went without it for a week & I efinately noticed more burning. I definately feel it helps!
                  Melinda

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                  • #10
                    Carolyn, What kind of cream do you use for your hemmies? Any kind I've used flares up my vulvodynia. Thanks! Grace
                    When I am afraid, I will trust in you. Psalm 56:3

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                    • #11
                      aoe vera made me worse

                      I read about the Aloe Vera capsules on the Desert Harvest web site. I read the patient testimonials. I was excited to try this after having IC for 20 years now. They sent a sample packet of six pills with my order. I took the six pills and it made my bladder worse!! It increased my frequency terrible. I did not even open the bottle and sent it back for return. Even had a problem with them crediting my credit card for the 66.00. I won't order anything from them again. For some people it is good . For me it was terrible.

                      Vicky

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                      • #12
                        Has anyone tried the liquid aloe or just the pill form and wear do you get the pill form? I tried the liquid once and then realized it had acid in it. Thats another thing ive wondered about there are so many things that have malic acid, citric acid, asorbic acid ect. even vitamins so its so hard to avid every little acid unless you lettuce all the time lol.......has anyone found a good multi vitamin? and do you all avoid those acids?

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