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  • Cystoprotek

    Hi Has anyone had a problem with Cystoprotek.

  • #2
    I did.

    Jem x

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    • #3
      Hi Jem Was it pain?

      Comment


      • #4
        Hey,

        The site won't let us post links to old threads, but if you do a search for 'my awful experience with cystoprotek' u will find my post from last year, where myself, Kadi and a couple of other girls talk about our bad experiences with it! I was going to cut and paste my post for you, but because there is a few others who shared their experiences too, it might be good for you to read their replies too!
        To answer briefly though, yes, it was the most horrendous pain and discomfort I have ever felt.

        Jem x

        Comment


        • #5
          Yes, Cystoprotek did make me very sick. Horrible migraine with vomiting and even worse IC flare. I did not know when I took it (and only 1/2 dose), that I am allergic to shellfish, as well as fish. I think the reaction I had was an allergic one. I was very disappointed. I'd really hoped it would help.
          Kadi

          -------------------------------------------------------------
          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          ------------------------------------------------------


          New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
          Source - Pinterest
          "


          Current treatments:
          -IC diet
          -Elavil 50mg at night
          -Continuous use birth control pills (4-5 periods/year)
          -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
          -Pyridium if needed,
          -Pain medicine at bedtime daily, as needed during the day several times per week
          -Antibiotic when doing an instillation to prevent UTI
          -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
          -Dye Free Benadryl 50 mg at bedtime
          -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
          -Managing stress= VERY important!
          -Fur therapy: Hugging the cat!

          Comment


          • #6
            If you have a problem with shellfish, you definitely should not try it. I couldn't take it, but there are several who post here who have had success with it.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              Fran42,

              I am not allergic to fish or shellfish, just so u know! Can't explain why I reacted as I did....

              Jem x

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