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  • Daily Instill Treatments Question

    Does anyone do at home instill treatments daily?

    I use Parsons Instills from a compound pharmacy. I have always used for rescue treatments, but I have been in a 2 month flare and trying to rebuild my bladder liner. I got relaxed on the diet for a while. It seems I get relief for one day and then feel more frequency the next 2 days and then feel better the 4th day. My doctor said to do them daily, but they are expensive. Insurance will not cover them.

    Any success on how others do them at home and do you ease up on them and use as a preventative after flare ? Like 1x or 2x a week?
    Thanks for all your encouragement and support

    Jonathan

  • #2
    I did them daily for a while, but haven't needed them. I know what you mean by expensive. It's really strange --- insurance companies usually cover instillations done in a doctor's office, but not at home, which is far less expensive for them. You might talk to your doctor about doing daily for a while, then reducing frequency when you feel better. I know that some people do them on an "as needed" schedule. If you get back to sticking with the diet, it could be that will help more than anything. You also could keep a diary so you can track symptoms and treatments.

    Sending healing thoughts,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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