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Bladder cocktails for urethral pain?

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  • #16
    I'm so sorry you're having so much difficulty. It can take a while for instillations to work --- I hope you have some relief soon. Please keep me posted on how you are doing.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #17
      Hi Donna. It’s been a while since I’ve posted. I was doing really well and then suddenly this past week I’m back to horrible pain. I went to doctors care last night to get another culture. I’ve had 5 weeks of instillations. I had sex last weekend and that’s when it all started up again. And I even take prophylactic antibiotics after sex. My last UTI was last month after sex. I’m not sure what to do anymore.

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      • #18
        It's hard to know how you are getting the infections. Are they doing cultures to be sure the infection is cleared after a series of antibiotics? Have you tried pyridium or urogesic blue for your urethral pain? You probably are already familiar with pyridium, which is available over the counter under the brand name AZO. It stains so if you try it, you'll probably want to use panty liners to avoid staining clothing.

        Sending well wishes,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #19
          Nothing stops the pain. Azo, Uribel, NSAIDs, nothing. They never do cultures after I finish the antibiotics. ☹️

          Comment


          • #20
            You might want to request that they do if the infections come back a short time after you finish antibiotics.
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #21
              I’ve spoken to my urologist about long term antibiotic therapy as well, but he won’t support it. I’m getting a specialty referral next week.

              Comment


              • #22
                Unfortunately, long term antibiotics can result in development of antibiotic resistant bacteria and some serious infections. I personally agree with your urologist.

                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

                Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment


                • #23
                  Oh I understand that. It’s just frustrating to continuously have UTI’s almost monthly. I had to cancel my last instillation for today due to it. I already had to cancel them twice for Covid and then another UTI. I think the most discouraging part of it is not knowing what is wrong. He won’t diagnose me with IC but treats me for it. He is just calling it urethritis.

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