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  • heparin instill dwell time

    I am cautiously going to attempt to start weekly heparin bladder instills again. I have had no sign of UTI now for almost a month and have not been cathing for IC maintenance. Anyway brushing up on my self cathing learning, found one thing out I did not know that the sterile water packet inside the catheter package was supposed to be bent in half to break it (good gosh) and let the water soak into the catheter for at least 15 seconds . . . and the blue tab on the outside of the catheter package was for sticking to the wall so you could pull it out easier and they have no touch catheters, and that you were supposed to let heparin dwell for a time.

    The time is what I need to know, wanted to ask here how long do you usually let the heparin stay in your bladder before next urination, they mentioned that you could plug the catheter by leaving the syringe in, I do notice that when I pull the catheter out some of the heparin comes out with the catheter removal, so how long have you been told if any to keep heparin in?

    Thanks any other tips would be appreciated.
    Diagnosed with IC sept. 2008, treatment then was hydrodistension, heparin instills for about 4 months and IC diet; symptoms lasted until sept 2009. Then only a couple of relapses overworking, stress etc. Then completely in remission until Jan. 2016 now pretty much symptom free as of mid august 2016.

    Symptoms: overall body aches, dryness feeling at vaginal opening, sitting makes it worse, standing makes it worse, stress makes it worse, no frequency or urgency, worse symptom is at night with panging of uretha/bladder.

    - went on diet, started Cysto Renew 3/31/16 and yoga at least twice a week.
    - tried uribel but really not for my symptoms since it seems it is for frequency and painful urination which I don't have
    - Ativan when needed to relax.
    - Elmiron only took for a couple of days; didn't like it
    - took atarax 1/2 10mg atarax pill at night really helped but gave me nightmares
    - tramadol worked great for back aches
    - generic claritin D worked best for me for calming bladder down and my panging
    - still taking cysto renew 4x a day and believe this and diet helped the most.
    - took dosage of cysto renew down to 2x a day and still ok

  • #2
    It's been several years since I did heparin self instills, but I kept it in for at least twenty minutes --- Things can change so I think it would be a good idea to call your doctor's office and ask about holding time. Heparin instillations did help me --- I hope you'll also have success with them.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      It just depends on how long you can hold it. In the beginning I could only hold a few minutes. It just came out my bladder due to spasms. There are times when I can hold it 1 -2 hours. For me the longer the better but not to the point of pain.

      Comment


      • #4
        Originally posted by tangerine3 View Post
        I am cautiously going to attempt to start weekly heparin bladder instills again. I have had no sign of UTI now for almost a month and have not been cathing for IC maintenance. Anyway brushing up on my self cathing learning, found one thing out I did not know that the sterile water packet inside the catheter package was supposed to be bent in half to break it (good gosh) and let the water soak into the catheter for at least 15 seconds . . . and the blue tab on the outside of the catheter package was for sticking to the wall so you could pull it out easier and they have no touch catheters, and that you were supposed to let heparin dwell for a time.

        The time is what I need to know, wanted to ask here how long do you usually let the heparin stay in your bladder before next urination, they mentioned that you could plug the catheter by leaving the syringe in, I do notice that when I pull the catheter out some of the heparin comes out with the catheter removal, so how long have you been told if any to keep heparin in?

        Thanks any other tips would be appreciated.
        How are you doing with the instillations? I hope it's going well.


        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Hi Donna,

          Thanks for asking! How are you?

          I never started my instills again. My Gyno/Urol put me on prophylaxis macrodantin 100mg 1x a day and have not had a UTI since May that is 5 mos the longest I have gone so far in over a year. So happy with that until last week a UTI popped up. Results came back and this time now macrodantin is resistant. I have had luck with Fosfomycin so she gave me that and referred me to an infectious disease Dr. whom I had my 1st visit today. Since the Fosfomycin worked no need for IV antibiotics for now . . .ID did another culture and we will see if Fosfomycin did indeed work. If not then I guess IV AB. Other than that I have been doing good and thought the low dose macrodantin every day was a good idea but now ID does not condone don't know if gyno/uro will continue that although she has said that it will take a long time for that method to work if at all. So conflicting ideas there. My "IC" is non existent I have done some research and not sure if I believe IC now or embedded UTI is at the bottom of all this from the very beginning.

          At this time I am researching natural estriol oil or cream for vaginal dryness, atrophy and thin tissue that can be the culprit of all these UTIs. Havent gotten around to asking on here if it actually works or if anyone uses it. Just started looking today. I have been more lately on a UTI forum. Hope everyone on here is finding hope.
          Diagnosed with IC sept. 2008, treatment then was hydrodistension, heparin instills for about 4 months and IC diet; symptoms lasted until sept 2009. Then only a couple of relapses overworking, stress etc. Then completely in remission until Jan. 2016 now pretty much symptom free as of mid august 2016.

          Symptoms: overall body aches, dryness feeling at vaginal opening, sitting makes it worse, standing makes it worse, stress makes it worse, no frequency or urgency, worse symptom is at night with panging of uretha/bladder.

          - went on diet, started Cysto Renew 3/31/16 and yoga at least twice a week.
          - tried uribel but really not for my symptoms since it seems it is for frequency and painful urination which I don't have
          - Ativan when needed to relax.
          - Elmiron only took for a couple of days; didn't like it
          - took atarax 1/2 10mg atarax pill at night really helped but gave me nightmares
          - tramadol worked great for back aches
          - generic claritin D worked best for me for calming bladder down and my panging
          - still taking cysto renew 4x a day and believe this and diet helped the most.
          - took dosage of cysto renew down to 2x a day and still ok

          Comment


          • #6
            Having to fight infections can be a real challenge --- it can be tough to identify the "whys" that it keeps coming back. I know you've probably tried everything I can think of, but just in case you haven't, I'll make a few suggestions: I stopped getting infections when I switched to showers only. Other things that can be tried: Plain white, unscented, toilet tissue and blot (don't wipe around the urethra); plain white, unscented (boring!) underpants and double rinse when laundering; be sure to drink enough water.

            I hope this helps. My bladder is doing very well --- and I'm at ten years past my cancer diagnosis --- I'll see my oncologist again in December. Thanks for asking.

            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              Thanks for that, yes I'm a shower girl too
              Diagnosed with IC sept. 2008, treatment then was hydrodistension, heparin instills for about 4 months and IC diet; symptoms lasted until sept 2009. Then only a couple of relapses overworking, stress etc. Then completely in remission until Jan. 2016 now pretty much symptom free as of mid august 2016.

              Symptoms: overall body aches, dryness feeling at vaginal opening, sitting makes it worse, standing makes it worse, stress makes it worse, no frequency or urgency, worse symptom is at night with panging of uretha/bladder.

              - went on diet, started Cysto Renew 3/31/16 and yoga at least twice a week.
              - tried uribel but really not for my symptoms since it seems it is for frequency and painful urination which I don't have
              - Ativan when needed to relax.
              - Elmiron only took for a couple of days; didn't like it
              - took atarax 1/2 10mg atarax pill at night really helped but gave me nightmares
              - tramadol worked great for back aches
              - generic claritin D worked best for me for calming bladder down and my panging
              - still taking cysto renew 4x a day and believe this and diet helped the most.
              - took dosage of cysto renew down to 2x a day and still ok

              Comment

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