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Uracyst no longer available?

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  • Uracyst no longer available?

    Hello. My pharmacist informed me that Uracyst is no longer available. I called Aralez, the company that distributes it in Canada and was informed that it's no longer available globally. The person said he didn't know why. Just wondering if anyone knows about this and if we have any alternatives in Canada? I've checked for news and cannot find anything. Thanks

  • #2
    Hi,

    I just found out today when I went for my instill that it is no longer available. I'm crying as I write this because Uracyst is the only thing that has helped me. I am horrified I will not find something else. My doctor suggested DMSO but I will have to research more to see if this is an alternative. I just don't know what I will do.
    Daughter your faith has made you well,go in peace, and be healed of your disease.(Mark 5:34)

    Tried:
    Detrol:only took one pill and it made me sick
    Elmiron:caused horrible pain(took 1 week)
    CystaQ:caused alot of burning and pain(only took one pill)
    Wellbutrin:only on it for three days as it caused alot of bladder pain
    Elavil:Took one pill and it caused a flare that lasted almost two weeks. It was the longest flare I've ever had. Never again..ouch
    Prelief:made my bladder burn and feel tingly.

    Take:
    Uracyst:Started May 19 2011
    Enablex:take one pill daily with no issues
    Naproxen:for pain as needed
    Baking Soda with water:as needed and it's a God send. It brings down my pain within 20 mins.
    Venofer: Started April 2012 by IV for low Iron. I do not tolerate oral Iron so this is the route I had to take.Does not bother my bladder but did have other side effects. I take Benedryl with each treatment to avoid side effects.
    Supplements:Whey Protein powder daily
    Dessert Harvest Aloe It has been helping alot but I can only take it every two days as my "die off" reaction has been severe.

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    • #3
      You might want to consider rescue instillations --- they usually contain a water solution plus an analgesic (such as lidocaine or marcaine) --- other ingredients can vary. Some ICers do them at home.

      DMSO isn't being used as much any more. I had them years ago and, while I do think that over time they helped, I had them monthly and planned on several days of pain after each one.

      I hope you are able to find something that will give you some relief.

      Warm hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Originally posted by carole View Post
        Hi,

        I just found out today when I went for my instill that it is no longer available. I'm crying as I write this because Uracyst is the only thing that has helped me. I am horrified I will not find something else. My doctor suggested DMSO but I will have to research more to see if this is an alternative. I just don't know what I will do.
        Yes, I felt utterly defeated when I found out Uracyst was no longer being produced. It was working well for me, after I had to stop taking elmiron last year. But then I tried cbd oil about one month ago and much to my surprise it's working almost as well as elmiron and is more effective than Uracyst at reducing pain. Perhaps trying cbd oil may be something to discuss with your doctors? Good luck and hang in there.

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