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Problem after first instillation....advice anyone??

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  • Problem after first instillation....advice anyone??

    Hi Everyone,

    I had my first intallation yesterday. I'm not sure what was in it, I think it was a cocktail of heparin, anaesthetic and uracyst. Putting it in was quick and easy. I was pleasantly surprised. And after my bladder felt nice and numb.

    Maybe too numb though, because at 4pm, one hour after having it put it, I couldn't pee it out! I called my Dr. who said don't worry - just pee when you can. But by 8pm I still couldnt go. By this time I was bursting to go because I had drunk quite a lot of water to try to go! My stomach was huge and rock hard where my bladder was and I was freaking out. I called the Dr. and he said to go back to the hospital and let them cath me.

    So I had to lie there for 2 hours whilst they drained the urine! It was so very uncomfortable - much more than my first cath to get the installation in there.

    Today things are back to normal only very stingy and irritated.

    Apparently the Dr. is going to call me to discuss it. But has anyone else had this problem and what could have caused it? I'm now seriously questioning whether I want to continue with the installations...I can't go through this every week!

    My only thought is that maybe I drank too much water whilst the bladder was still numb? So maybe once I felt the urge to pee it was too full, therefore leading to retention.

    Ugh....I feel so disappointed....the initial procedure was so quick and easy but it just went down hill after that.

    Any advice gratefully recieved....

    MrsBucks. x

  • #2
    It's possible that drinking too much could cause it. One thing I suggest is that you ask your doctor about self catheterizing. It's not difficult and you won't ever have to go to ER for a catheter again --- it's a good feeling.

    When the bladder gets too full and you can't urinate, it can be very painful (of course you know that!); and it takes a while to drain it because they need to do it slowly or the pain can be worse.


    Donna
    Stay safe


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    • #3
      Originally posted by Mrs.HMBucks View Post
      Hi Everyone,

      I had my first intallation yesterday. I'm not sure what was in it, I think it was a cocktail of heparin, anaesthetic and uracyst. Putting it in was quick and easy. I was pleasantly surprised. And after my bladder felt nice and numb.

      Maybe too numb though, because at 4pm, one hour after having it put it, I couldn't pee it out! I called my Dr. who said don't worry - just pee when you can. But by 8pm I still couldnt go. By this time I was bursting to go because I had drunk quite a lot of water to try to go! My stomach was huge and rock hard where my bladder was and I was freaking out. I called the Dr. and he said to go back to the hospital and let them cath me.

      So I had to lie there for 2 hours whilst they drained the urine! It was so very uncomfortable - much more than my first cath to get the installation in there.

      Today things are back to normal only very stingy and irritated.

      Apparently the Dr. is going to call me to discuss it. But has anyone else had this problem and what could have caused it? I'm now seriously questioning whether I want to continue with the installations...I can't go through this every week!

      My only thought is that maybe I drank too much water whilst the bladder was still numb? So maybe once I felt the urge to pee it was too full, therefore leading to retention.

      Ugh....I feel so disappointed....the initial procedure was so quick and easy but it just went down hill after that.

      Any advice gratefully recieved....

      MrsBucks. x
      I agree with Donna, learning how to self cath will be very beneficial if you feel instillations will help you. I myself can never go on my own after instillations or can I empty on my own. I avoid instillations and only do them as a last resort for that reason. The reason you could not pee is because your bladder was numb.
      Symptoms: urgency, frequency, difficulty urinating, weak and hesitant stream.
      Suffered with IC since 2000 with mainly frequency, officially diagnosed in 2008. Started elmiron once diagnosed until remission for a blissful 5 years.
      I've always considered my IC mild and manageable until remission ended on 12/26/12. Symptoms returned while 10 weeks pregnant with spasms that caused difficulty emptying bladder and urgency. Had ok days and BAD days entire pregnancy. My symptoms seem to be under control as long as I take my meds everyday.

      Current meds:
      Elmiron: 400mg
      Amitriptyline 45 mg
      Flomax .4 mg
      Quasnese
      Valium suppositories ( as needed)
      Glucosamine supplement

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