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  • Very sick after first instillation

    Hi all, I'm a newby and just had my first instillation today (heparin and lidocaine). Starting within an hour of the instillation, I started vomiting - and was violently ill for 3 hours afterwards. I hadn't eaten anything and feel okay now so can't imagine it was a bug or food poisoning. Can this sort of reaction be caused by an instillation? Thanks

  • #2
    It's very possible the reaction was caused by severe stress. I know that emotions can cause nausea. If you were extremely nervous about the instillation, that could have been the cause. I doubt it was food poison or a bug if it's gone already. Did the instillation help any with the pain?

    Warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Thanks Donna,
      I didn't even know I was getting an instillation so I doubt that stress could have done it. My pain is worse now than it was before the instillation.

      Comment


      • #4
        Not knowing ahead of time could be more stressful than being able to plan for it. Will you be having more instillation treatments? Sometimes it can take several before any improvement.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          So this happened again today after my second instillation. Has anybody else gotten sick from them?

          Comment


          • #6
            It could be an allergy or an intolerance to something in it, I would tell your Dr or nurse doing it to tell dr. I don't think this is normal
            My are with you all. May you all find a way to peace and joy in your lives.

            Comment


            • #7
              I agree with mothergoose. Definitely talk to your doc about your reaction. You could be having a reaction to the heparin or lidocaine
              ----------------------------------------------------
              My blog on IC, adoption, and academia: the garlic whisperer

              Diagnosed Jan 2013. Currently taking:

              200mg Elmiron morning and night
              25mg Elavil at night (no drowsiness or weight gain)
              culturelle in the morning
              SLIT drops for allergies (environmental) 3 drops/night under the tongue
              zyrtec 24 hour nightly (recommended by uro)
              Instillations 3x/week: Parson's Solution
              uribel and prelief as needed

              Also took Desert Harvest Aloe (3 in the morning and 3 at night) for a year and had great luck.
              No longer need them, so I only take them during flares.

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              • #8
                Re: Very sick after first instillation

                I've learned that the stomach and the bladder are closely related. I believe they have a set of nerve fibers in common (or nerves that are realtively close to one another) and do something called "cross-talking". When one set of nerves flare up it can typically affect the other set (which is why when I am having an IC flare I will some times experience an IBS flare and vice versa). maybe the instillation is causing a bladder spasm or some other type of reaction that is crossing over to your stomach? Just a guess. I am about to get my first instillation so I am hoping I don't experience any major side effects. I hope you feel better.
                • Started with nocturia 10 years ago then slowly progressed into full blown IC about 6 years ago.
                • Officially diagnosed in 2012 after undergoing a cystoscopy.
                • Experience urgency/frequency/burning/pain.
                • Wake up 4-10 times (on average) per night to urinate.
                • Urinate between 20-40 times a day total
                • Tried Elmiron with no success.
                • 10mg Amitryptiline helps occasionally (for sleep) but generally turns me into a zombie.
                • Prelief has little effect.
                • Azo/Uristat as needed, but has little effect.
                • Tried IC friendly diet for one year with no success.
                • Tried Detrol and Vesicare, but only made the pain worse.

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