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  • Strange Question...

    Ok, so I got to thinking today about hydrodistention and wondered why it makes some people feel better. Is it possibly because it stretches out the bladder?

    If that's the case, than wouldn't bladder training help in the same way? I've noticed that if I hold my uring for 3 hours (if I can), it makes my bladder feel better than if I go more often. By holding it, I am stretching it out. Would that be similar to them putting water in my bladder (on a much smaller scale I realize)?

    Jane
    Jane
    Diagnosed 1/7/14 via cysto/hydro

    Current Treatment:
    10 mg amitriptyline, DH Aloe Vera

    Used During Flares:
    Uribel, extra DH Aloe Vera, Klonopin and Tramadol (as needed)

    Practicing bladder training and stress control (hot baths, pelvic stretching)
    Recently tried PT, do not appear to have PFD

    Things that have not helped in the past:
    Oxybutynin, Vesicare, Pyridium, Myrbetriq, Vagifem

    Also have migraines and IBS

  • #2
    Re: Strange Question...

    Yes, that makes sense. I did bladder training for about a year and it helped a lot. I used to only pee a tiny, trickling stream at a time and now, when I'm not flaring, I pee a consistent amount.

    Remember though, that pee is an irritant to the bladder (that's why there is the layer to protect it - the layer that is messed up in IC bladders). So I wouldn't recommend holding it for too long. Three hours sounds okay though - unless you drank a ton a water.
    Diagnosed with IC in 2005, since then have been diagnosed with an unspecified autoimmune disease, with inflammation in my bladder, colon, left knee, left ear, left eye, lungs and pericardium. Argh!

    Medical research addict.

    Likes: hot baths and naps with cats

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    • #3
      Re: Strange Question...

      When I have a hydrodistention, my bladder is distended to the point where the lining cracks. It's accomplished by a hanging container of a water solution --- the weight of the solution is enough to stretch the bladder.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
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      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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      [3MG]

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      • #4
        Re: Strange Question...

        Donna describes it perfectly. The bladder lining is distended, cracks, and then it sets itself up to repair the lining. The nurse at my urologist's office suggested that I hold my urine for as long as I could at first, essentially training my bladder. If I could remember to do it in the morning, I was able to settle things down for the rest of the day. For some people holding the urine like that is extremely painful though, so try if you want to, but don't put yourself into any more pain that you need to.
        Julie Beyer, MA, RDN
        IC Dietitian, Patient Advocate, Speaker, & Author


        Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

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