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  • Need help about DMSO

    I just returned from my uro visit. We talked about the possibility of me having another hydro if this flare doesn't subside. I had a DMSO instill after my last hydro. Since then, I've been reading about how it isn't used much anymore and can possibly do damage to the bladder wall. I asked him about this and he said he never heard that and they still use it (but I wouldn't have to if I didn't want it). He asked me to send him what I read that shows that it could cause damage. Does anyone have any reputable sites (possible studies) that shows the damage DMSO can do to the bladder?

    Thanks!
    Jane
    Jane
    Diagnosed 1/7/14 via cysto/hydro

    Current Treatment:
    10 mg amitriptyline, DH Aloe Vera

    Used During Flares:
    Uribel, extra DH Aloe Vera, Klonopin and Tramadol (as needed)

    Practicing bladder training and stress control (hot baths, pelvic stretching)
    Recently tried PT, do not appear to have PFD

    Things that have not helped in the past:
    Oxybutynin, Vesicare, Pyridium, Myrbetriq, Vagifem

    Also have migraines and IBS

  • #2
    Re: Need help about DMSO

    http://www.ic-network.com/conditions...instillations/
    Diagnosed via cysto/hydro 2/6/2015
    Symptoms: frequency, urgency. uretha discomfort, mild bladder pain (a raw sore type feeling.)
    CURRENT TREATMENTS:
    IC Diet (2/15) , Elmiron 100-300mg (3/15-5/16) insurance issues switched to PPS-DR (5/16-present) 2 150mg capsules daily (pentosan polysulfate sodium same formulation in Elmiron) DH Aloe 3-6 capsules daily (3/15), Schiff Digestive Advantage probiotics 1 pill daily (3/15), Amitriptyline 25mg- (5/15-8/16)attempting to wean down due to suspected weight gain side effect. Hydroxydine 25-50mg as needed at bedtime (5/15) Quercetin 2 pills daily to help immune system and body inflammation. Cystoprotek 4 capsules daily (8/15). Prelief as needed.
    USE DURING FLARES: Heating pad, ice packs for PFD, Vaginal Valium 10-20mg, Uribel, Pelvic floor stretches.
    PAST TREATMENTS: PFD physical therapy (6/15-10/15) & Counseling for stress mgt (9/15-12/15) both very helpful. GNC brand progesterone cream (not sure if this made a difference). Too many different diets and herbs to list.
    TRIGGERS: STRESS STRESS STRESS. BCP. Hormonal fluctuance (ovulation/period). Coffee, artificial preservatives and dyes.

    Comment


    • #3
      Re: Need help about DMSO

      I had saved this link awhile ago when I was considering instills. Read the RiMSO aka DMSO section. Hope this helps
      Diagnosed via cysto/hydro 2/6/2015
      Symptoms: frequency, urgency. uretha discomfort, mild bladder pain (a raw sore type feeling.)
      CURRENT TREATMENTS:
      IC Diet (2/15) , Elmiron 100-300mg (3/15-5/16) insurance issues switched to PPS-DR (5/16-present) 2 150mg capsules daily (pentosan polysulfate sodium same formulation in Elmiron) DH Aloe 3-6 capsules daily (3/15), Schiff Digestive Advantage probiotics 1 pill daily (3/15), Amitriptyline 25mg- (5/15-8/16)attempting to wean down due to suspected weight gain side effect. Hydroxydine 25-50mg as needed at bedtime (5/15) Quercetin 2 pills daily to help immune system and body inflammation. Cystoprotek 4 capsules daily (8/15). Prelief as needed.
      USE DURING FLARES: Heating pad, ice packs for PFD, Vaginal Valium 10-20mg, Uribel, Pelvic floor stretches.
      PAST TREATMENTS: PFD physical therapy (6/15-10/15) & Counseling for stress mgt (9/15-12/15) both very helpful. GNC brand progesterone cream (not sure if this made a difference). Too many different diets and herbs to list.
      TRIGGERS: STRESS STRESS STRESS. BCP. Hormonal fluctuance (ovulation/period). Coffee, artificial preservatives and dyes.

      Comment


      • #4
        Re: Need help about DMSO

        Thanks rshell! I am going to try to use the names in this article to find scientific studies that might be available.
        Jane
        Diagnosed 1/7/14 via cysto/hydro

        Current Treatment:
        10 mg amitriptyline, DH Aloe Vera

        Used During Flares:
        Uribel, extra DH Aloe Vera, Klonopin and Tramadol (as needed)

        Practicing bladder training and stress control (hot baths, pelvic stretching)
        Recently tried PT, do not appear to have PFD

        Things that have not helped in the past:
        Oxybutynin, Vesicare, Pyridium, Myrbetriq, Vagifem

        Also have migraines and IBS

        Comment


        • #5
          Re: Need help about DMSO

          If a diluted solution that is no more than 25% DMSO, the studies showed it as safe. Rimso 50 is the brand name for DMSO, and it's 50% DMSO, so it needs to be further diluted. When I had it, they used half water solution, half Rimso 50; that, added with the lidocaine they instilled before the DMSO --- made it under under the 25%. Have you read the AUA Guidelines? If not, that could include some more items to discuss with your doctor.

          Warm hugs,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

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