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  • AZO before first instill?

    Hi,

    I'm having my first rescue instillation tomorrow. I'm very nervous this is going to be painful. Should I take an AZO beforehand? Or have most of you done fine with the heparin/sodium bicarbonate/lidocaine instill? I'm not sure how I should expect to feel during the procedure or in the hours and days that follow. Thanks in advance for sharing your thoughts and experiences.

  • #2
    Re: AZO before first instill?

    I haven't had any instills, just wanted to say I hope it all goes well for you and gives you some relief. :-)
    Jane
    Diagnosed 1/7/14 via cysto/hydro

    Current Treatment:
    10 mg amitriptyline, DH Aloe Vera

    Used During Flares:
    Uribel, extra DH Aloe Vera, Klonopin and Tramadol (as needed)

    Practicing bladder training and stress control (hot baths, pelvic stretching)
    Recently tried PT, do not appear to have PFD

    Things that have not helped in the past:
    Oxybutynin, Vesicare, Pyridium, Myrbetriq, Vagifem

    Also have migraines and IBS

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    • #3
      Re: AZO before first instill?

      Since it has lidocaine in the mix, you may not need anything else; lidocaine is an analgesic. If you can manage to relax, that really helps when the catheter is inserted.


      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

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      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        Re: AZO before first instill?

        Thank you to you both. I've been trying to read through all of the posts on here to try to find information about how I can expect to feel in the hours and days that follow, but there are many posts and it's kind of like looking for a needle in s haystack. But, I have read that says it is supposed to be soothing, so I'm hoping that I feel good in the hours and days that follow, but I am worried that I will be in a lot of pain. 😩😔

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        • #5
          Re: AZO before first instill?

          Hi gpfin0216 - I'm almost done a series of 9 instills (heparin) and honestly it differs for each person, BUT it's very soothing. I had my first one done while in a MAJOR flare up, and it actually took the edge off the flare for me.
          Donna is right in relaxing when getting cath'd. They use the very small caths here for my treatments, so it's not so bad.
          I was told not to take Azo etc because they test here right before every treatment for a UTI etc., and Azo will fudge up the urine tests - so if anything, maybe some tylenol or advil (whatever you can take), but I have taken nothing and felt fine. Worst part for me was the iodine they were using to be sanitary (I was reacting strongly to it), so they switched cleaning solutions and the other one is fine for me.
          good luck, I hope you find some relief!

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