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severe urethral swelling,Dr. wants to try instills:O

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  • #1

    severe urethral swelling,Dr. wants to try instills:O

    hello everyone, I recently posted bout having severe vaginl swelling ,urethral and bladder screams. Its been less than a week, and still flaring strong. Dr and I are trying to figure out whats next in treatment. Since my ic is focused on the bladder wall at the urethra(grape like polyps) and from having many dilitations s a child in a Drs office with no numbing,I have a very sensitive urethra and am wondering if I could handle instills at all. I am sc
    ared to make things worse. Anybody else have a simila r situation? could you tell me what happened ffor you? Thank youDebbie BTW I just added hyscyamine to the arsenal...it makes me loopy and thirsty. Not sure if its worth trying to hang with. Bye
    "no bad hair days!!! AND no bad bladder pain days!!!))
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  • #2
    That's a tough decision to have to make. If you're in severe pain anyway, it might be worth giving it a try. Is your uro willing to give you pain meds? I think I would insist on having some to see you through at least the first instillation. I also had polyps, but mine were removed when I had a hydrodistention some years ago and so far they haven't come back.

    Sending an encouraging hug and healing thoughts,
    Donna
    Stay safe


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    • #3
      I had polyps that got removed too...I guess they aren't too uncommon with IC.

      I think the lidocaine is a really good suggestion, and I hope you are able to tolerate everything without it being too painful or anything.

      Love, ICY

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