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    I had my second DMSO and I actually do not feel any worse,,,,even a little better! I am still taking pain meds. but, less, thank god. I am hoping that the treatments put me in a remission. How many of you went into remission after your DMSO?? And, how long did the remission last?
    DanaW

    "Don't quit when the tide is lowest, For it's just about to turn; Don't quit over doubts and questions, For there's something you may learn."

  • #2
    Dana
    My mom use to get dmso's and I know they put her in remisson. I don't know how long it took.. Eventually they stopped and she started hydro's every 6 months to a year.. My mom had been in remission for about 2 years... she was telling me the other day well I think I need to go back to the uro...
    Brat
    'The will of God will never take you where the Grace of God will not protect you.'

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    • #3
      i do the dmso at home and they have put me into remission a few times and they do help when i'm flareing to numb my bladder and stop the pain for a while i have diff times of remission but i take the treatments at home one to three times a day i take the heparin and the marcaine the marcaine is a nerve block mixed in with the heparin. I hope they contuine to work for you.
      good luck and many prayers sent to you.
      Rhonda
      Medicine taken daily or as needed:
      1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
      2. MS.Cotin 100mg 3x daily
      3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
      4. Fentanyl 100 mg Change every 48hrs.
      5. Gentamicin 80mg install after each rescue treatment
      5 Leviquin 500mg self start as needed.
      6. Klonopin 1 or 2 daily as needed.
      7. Prosed/DS as 1 every 6hrs as needed.





      I have IC, but IC doesn't have me anymore!

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      • #4
        Well the fun begins again. Now in another flare. I will still continue with the next DMSO and hope that it helps long term....
        DanaW

        "Don't quit when the tide is lowest, For it's just about to turn; Don't quit over doubts and questions, For there's something you may learn."

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        • #5
          Has anyone ever tried elmiron installations? My new urologist says he has a very high success rate with even the first 6 and eventually gets you down to a monthly maintance dose. This is a jump start to starting the oral elmiron and atarax and elavil.
          Indy

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          • #6
            I mentioned that same treatment to my Uro. and he said that he hadn't heard of anyone doing that. I was disappointed that he hadn't heard of it. I can't take Elimiron bc of headaches.
            DanaW

            "Don't quit when the tide is lowest, For it's just about to turn; Don't quit over doubts and questions, For there's something you may learn."

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            • #7
              i asked my doctor about those before i started the heparin and he said he didn't personal like them because you had to take more of them or something like that. that isnt his ex. words. but i was also told if the elimron wasnt helping me the install wouldnt either for me to stick with my new treatment at the time the heparin and marcaine.
              xxxxxxooooooo. wishing you luck.
              Rhonda.

              Dana, i hope you feel better soon i'm also flareing again i don't know if its from nerves or from another uti i dont think my first uti went away completely and its came back full force. frown
              Medicine taken daily or as needed:
              1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
              2. MS.Cotin 100mg 3x daily
              3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
              4. Fentanyl 100 mg Change every 48hrs.
              5. Gentamicin 80mg install after each rescue treatment
              5 Leviquin 500mg self start as needed.
              6. Klonopin 1 or 2 daily as needed.
              7. Prosed/DS as 1 every 6hrs as needed.





              I have IC, but IC doesn't have me anymore!

              Comment

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