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  • Soft Catheters!

    As you know I have started doing my own bladder instills this week. The catheter my uro prescribed for me is called LoFric Plus and they are awesome! They are super lubricated and do not cause pain. I am very sensitive and caths usually hurt but these do not. I just wanted to pass along the word on these in case anyone is interested.

    ALSO...for those of you who self cath and instill heparin and/or marcaine...what amounts of each do you use? Mine is 1cc of heparin and 5cc's of marcaine. It seems like not very much so I was just wondering.

    Thanks.
    Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
    _____________________________

    DX: IC - November 2002 after hysterectomy
    Interstim implanted March 2006 - died May 2011
    Interstim replacement June 2011
    Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
    Docs: Pain management doc, urologist, family practice

  • #2
    I'm glad you found some comfortable catheters. It's been a while since I did heparin and I don't recall the specific dose.

    Hugs,
    Donna
    Stay safe

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      The volume (cc) doesn't mean much unless you know the concentration.

      Heparin is measured in IU (international units) and the commonest solution is 1000 units/per cc and the commonest 'cocktail' is 10 cc, so 10,000 units per instillation.

      The usual concentration of Marcaine (bupivicaine) used in bladder cocktails is 0.5%; 5 cc works out to 25 mg, which is not a lot but you have to be damn careful with that stuff, an overdose can cause cardiovascular issues. Intravesical Marcaine is one of those therapies that is just 'clinical lore' - nothing published in the peer-reviewed literature, which drives pointy-headed scientists like me nuts.

      Your friendly neigborhood toxicologist
      marti

      Comment


      • #4
        I use one heparin 1 ml 10,000 unit ml and two bottles of Marcaine 0.5 10ml (50 mg) with 20 cc of water.
        Medicine taken daily or as needed:
        1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
        2. MS.Cotin 100mg 3x daily
        3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
        4. Fentanyl 100 mg Change every 48hrs.
        5. Gentamicin 80mg install after each rescue treatment
        5 Leviquin 500mg self start as needed.
        6. Klonopin 1 or 2 daily as needed.
        7. Prosed/DS as 1 every 6hrs as needed.





        I have IC, but IC doesn't have me anymore!

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        • #5
          I am using 1 ml (10,000 units) of the heparin and 5 ml of marcaine. Do you know what the purpose of the water is? My doc didn't mention water but prescribed 20cc syringes. Total in my bladder is 7 ml of fluid. It doesn't seem like very much - but does seem to be helping with the pain. I haven't had a vicodin since I started this on Thursday.

          Thanks for your help.
          Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!
          _____________________________

          DX: IC - November 2002 after hysterectomy
          Interstim implanted March 2006 - died May 2011
          Interstim replacement June 2011
          Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
          Docs: Pain management doc, urologist, family practice

          Comment


          • #6
            i'm not sure why i have to use the sterlie water but that is the way they told me to mix it maybe because they have me useing two marcaine Like i said i'm sure but it has helped me alot.
            Medicine taken daily or as needed:
            1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
            2. MS.Cotin 100mg 3x daily
            3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
            4. Fentanyl 100 mg Change every 48hrs.
            5. Gentamicin 80mg install after each rescue treatment
            5 Leviquin 500mg self start as needed.
            6. Klonopin 1 or 2 daily as needed.
            7. Prosed/DS as 1 every 6hrs as needed.





            I have IC, but IC doesn't have me anymore!

            Comment

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