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  • Dmso question-long term user

    I have been having monthly Dmso treatments for the past 3 years. Prior to that my treatments were weekly, then bi-monthly. I also take Elmiron and Hydroxyzine Hcl daily. Has anybody ever stopped the Dmso installations with positive results? My urogyno believes this is a life treatment. Interested in some advice. Thank you!
    IC diagnosis 1999
    Meds: Elmiron
    hydroxyzine hcl
    DMSO as needed
    valium as needed
    librax 3x day

    TENS therapy



    Thanks to all on the boards - YOU have helped more than I can say!



    A person's true wealth is the good he or she does in the world.

  • #2
    I have never had DMSO treatments. I use heparin/ lidocaine instillations. I don't recall anyone posting they had positive or negative results when they stopped DMSO instillations. The only post I have seen were not for treatments as frequently as you seem to have. Dr. Dell says for now there are no cures only effective treatment to manage the disease. So I guess my question is does your MD think the disease is lifelong and needs some type of treatment for management or does he think DMSO installations should be treatment of his choice?
    TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
    My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985

    Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
    Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
    I post to encourage and offer total support for rescue instillations.
    Find me on facebook: L. Clark Thomas
    Louann

    Comment


    • #3
      Thank you for your reply. My doctor seems to think since I’ve responded positively with the DMSO, there should be no reason to stop. I remember first being diagnosed over a decade ago-IC ruled my every waking hour and decreased the quality of my life greatly. I am on medications for the IC, and also for an immune deficiency. I really was hoping to decrease meds somewhere, but I’m thinking along the lines, if it’s not broken, don’t fix it.
      I am very grateful for the relief I’ve gotten throughout the years, it’s just been a lot of medication! Thanks again for your reply. Beth
      IC diagnosis 1999
      Meds: Elmiron
      hydroxyzine hcl
      DMSO as needed
      valium as needed
      librax 3x day

      TENS therapy



      Thanks to all on the boards - YOU have helped more than I can say!



      A person's true wealth is the good he or she does in the world.

      Comment


      • #4
        I was treated with monthly DMSO for many years until my urologist retired and I had to change doctors and the new one recommended I stop. I haven't experienced any problem without it. If you opt to continue DMSO, I suggest you print out the information at https://forum.ic-network.com/forum/t...age-to-bladder and share it with your doctor.

        Sending well wishes,
        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          Thank you Donna! In 2005, after my initial diagnoses, you were very helpful with advice (: I am scheduled to see another urogynocologist for another opinion and to gatjer some more info. i am just so scared to go backwards, so to speak. In the past decade I have been extremely lucky to have very few flares. I appreciate you reaching out - thanks again! Beth
          IC diagnosis 1999
          Meds: Elmiron
          hydroxyzine hcl
          DMSO as needed
          valium as needed
          librax 3x day

          TENS therapy



          Thanks to all on the boards - YOU have helped more than I can say!



          A person's true wealth is the good he or she does in the world.

          Comment


          • #6
            You're very welcome.


            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment

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