Tweet
I have been having monthly Dmso treatments for the past 3 years. Prior to that my treatments were weekly, then bi-monthly. I also take Elmiron and Hydroxyzine Hcl daily. Has anybody ever stopped the Dmso installations with positive results? My urogyno believes this is a life treatment. Interested in some advice. Thank you!
-
IC diagnosis 1999
Meds: Elmiron
hydroxyzine hcl
DMSO as needed
valium as needed
librax 3x day
TENS therapy
Thanks to all on the boards - YOU have helped more than I can say!
A person's true wealth is the good he or she does in the world. -
I have never had DMSO treatments. I use heparin/ lidocaine instillations. I don't recall anyone posting they had positive or negative results when they stopped DMSO instillations. The only post I have seen were not for treatments as frequently as you seem to have. Dr. Dell says for now there are no cures only effective treatment to manage the disease. So I guess my question is does your MD think the disease is lifelong and needs some type of treatment for management or does he think DMSO installations should be treatment of his choice?
TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985
Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
I post to encourage and offer total support for rescue instillations.
Find me on facebook: L. Clark Thomas
Louann -
Thank you for your reply. My doctor seems to think since I’ve responded positively with the DMSO, there should be no reason to stop. I remember first being diagnosed over a decade ago-IC ruled my every waking hour and decreased the quality of my life greatly. I am on medications for the IC, and also for an immune deficiency. I really was hoping to decrease meds somewhere, but I’m thinking along the lines, if it’s not broken, don’t fix it.
I am very grateful for the relief I’ve gotten throughout the years, it’s just been a lot of medication! Thanks again for your reply. BethIC diagnosis 1999
Meds: Elmiron
hydroxyzine hcl
DMSO as needed
valium as needed
librax 3x day
TENS therapy
Thanks to all on the boards - YOU have helped more than I can say!
A person's true wealth is the good he or she does in the world.Comment
-
I was treated with monthly DMSO for many years until my urologist retired and I had to change doctors and the new one recommended I stop. I haven't experienced any problem without it. If you opt to continue DMSO, I suggest you print out the information at https://forum.ic-network.com/forum/t...age-to-bladder and share it with your doctor.
Sending well wishes,
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
-
Thank you Donna! In 2005, after my initial diagnoses, you were very helpful with advice (: I am scheduled to see another urogynocologist for another opinion and to gatjer some more info. i am just so scared to go backwards, so to speak. In the past decade I have been extremely lucky to have very few flares. I appreciate you reaching out - thanks again! BethIC diagnosis 1999
Meds: Elmiron
hydroxyzine hcl
DMSO as needed
valium as needed
librax 3x day
TENS therapy
Thanks to all on the boards - YOU have helped more than I can say!
A person's true wealth is the good he or she does in the world.Comment
-
You're very welcome.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
Comment