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  • Instillation and flares

    Hello to everyone out there! I had my first DSMO treatment this past Monday, after the treatment I burned, felt like I need to use the restroom a lot. Now to top it all off I have had a flare all week, are all these things common in the instillation treatments? What to do if they are? Have to have 8 weeks of these treatments and do not look forward to the rest of them. Does any one else have a low tolerance to pain like myself. Doctor gave some pain medicine to take before coming so hope it will help this time. bamafan

  • #2
    My first few DMSO treatments were very painful for several days afterwards. I was ready to stop them when one night I slept through the night. That was enough to convince me to continue. I had DMSO instillations once a month for several years after the initial eight.

    Donna
    Stay safe


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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      I have not ever had any, but my Mom did all the time.. She said they worked well for her. She did sayd the first few reaaly did make her feel like you.
      'The will of God will never take you where the Grace of God will not protect you.'

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      • #4
        the last few times that i have had a DMSO treatment i always feel like crap for the rest of the day. i pee a lot for the rest of the day when i get one, but usually by the next morning i am back to normal. good luck!!
        [SIZE="1"]
        I've tried:
        Ditropan
        Detrol LA
        Levbid
        Prelief
        Elmiron
        Elavil
        Vesicare
        Cystoscopy/hydro
        Sanctura
        Enablex
        dmso and heparin instills
        Interstim

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        • #5
          Thanks to all that responded to my question. I really appreciate it and hope that they get better as I go alone the treatments. May God bless each one of you Bamafan

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          • #6
            The first 2 weekly instillations of DMSO that I had, I felt lousy for 5 days. I'd just start feeling better, then go have another one.

            The 3rd-7th instillations I had weekly, I'd flare badly the night of & day after, but started feeling better in between.

            When the series was over, about 10 days later, I felt much much better. So, for a year, I had the DMSO once every 4-6 weeks on Friday afternoons. I'd feel crummy that Friday night & Saturday, but would be good to go back to work on Mondays. They did help reduce my symptoms.

            Eventually I went to doing home heparin, marcaine, & sodium bicarbonate instillations & those work better for me. But, the once a month DMSO is cheaper & more convenient, so if that works for you, cool!

            Sending a hug & hoping things work out well for you!
            Kadi

            -------------------------------------------------------------
            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            ------------------------------------------------------


            New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
            Source - Pinterest
            "


            Current treatments:
            -IC diet
            -Elavil 50mg at night
            -Continuous use birth control pills (4-5 periods/year)
            -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
            -Pyridium if needed,
            -Pain medicine at bedtime daily, as needed during the day several times per week
            -Antibiotic when doing an instillation to prevent UTI
            -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
            -Dye Free Benadryl 50 mg at bedtime
            -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
            -Managing stress= VERY important!
            -Fur therapy: Hugging the cat!

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            • #7
              Ihad the treatment for 10 weeks and for the first 3-4 weeks, it did not help much. I had only a couple days a week where I felt OK. But now, I see real improvement. Hang in there! The only problem I'm worried about is when will I stop getting them. I was supposed to stop treatment after 8 weeks, and now after a week and a half, I feel like I need another one.

              Colleen
              Diagnosed October 2006
              Medications
              Percocet
              Hydroxine
              Elmiron
              Monthly installations

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